Topamax anyone?

[Nannybee]

I had my first visit with Neurology today for headaches. Very good experience, which is refreshing after my disastrously disappointing visit at Penn neurotology. After a thorough exam and discussion of the risks/potential benefits we decided to trial Topamax.

I'm aware of the potential nasty side effects, but willing to give it a try to prevent these headaches.

Anyone have experience with Topamax?

Thanks.

[Imcamodchick88]

Hi nannybee,

I'm on topomax. My only side effect is that I can't drink sodas any more, they taste horrible. But since starting this med I went from 10-15 migraines a month to 3-4, which are manageable through midrin. I also lost 30 lbs.

My stepmom is also on it and she swears by it, as is my step-aunt. I guess it's our family drug, then again ours is for migraines.

Good luck!
Kristin

[lifeisgood]

Tried topomax.
Didn't help with facial pain but I got really skinny. (size 2) Currently a 4/6.
The only thing that helps my pain is Imitrex.  I also went gluten free and that reduced the headaches/facial aches.
Good luck!
I have been on many Effexor, Neurontin, etc etc and didn't find relief.

Mary

[arizonajack]

Tried topomax.
Didn't help with facial pain but I got really skinny. 

I'm on topomax.  I also lost 30 lbs.

I have to lose another 50 lbs. Send me some of that stuff. 

[Captain Deb]

I was on Topamax for 3 years--lost 25 lbs and helped headaches somewhat, but it didn't touch the relief I got from Botox injections!  I found the Topomax very difficult to titrate onto--kept triggering emotional stuff and episodes of depressions.  I had to start with the sprinkles--12 mg into applesauce at first and worked my way up to 300 mg a day.

Capt Deb