« previous next »
Pages: [1] 2

Author Topic: My Face Twitched!  (Read 10303 times)

msuscottie

  • Sr. Member
  • ****
  • Posts: 350
  • Postie x 3
    • mytooma - the acoustic neuroma blog
My Face Twitched!
« on: September 08, 2006, 12:35:55 pm »
I'm not sure what this means, but I was just coming back from lunch and looked in the mirror and the left side of my face (that I've had no feeling in since 10/04) was twitching below my eye up around my cheeckbone. OK, it just did it again. It probably looks crazy, but I'm assuming this is a good thing? Does that mean the nerve is regenerating?

Thanks in advance for any info.

Signed,
Twitchy
Logged

tony

  • Hero Member
  • *****
  • Posts: 666
Re: My Face Twitched!
« Reply #1 on: September 08, 2006, 01:15:03 pm »
Could mean many things - but definately worth investigations
There are tests to see if the nerve is still there (but dormant)
I should call your neuro on mon
Best regards
Tony
Logged

marie

  • Jr. Member
  • **
  • Posts: 59
Re: My Face Twitched!
« Reply #2 on: September 08, 2006, 02:34:58 pm »
It's been about 39 years ago that I had my 7/12 surgery done.  The neurosurgeon said that twitching would indicate regeneration.  I still remember how happy he sounded when I called to report the first tiny movement.  (almost happier than I was.)
Logged
surgeries : back of head 1967,1987
               translab 1991
               bone reduction 2002
               7/12  1968
               temporalis transplant  1969

matti

  • Hero Member
  • *****
  • Posts: 1234
Re: My Face Twitched!
« Reply #3 on: September 08, 2006, 06:23:02 pm »
The first sensation I felt was twitching. I immediately called my doctor and he told me it is most likely the nerve regenerating. It was a WONDERFUL feeling ;D I called everyone I knew and told them

cheryl
Logged
3.5 cm  - left side  Single sided deafness 
Middle Fossa Approach - California Ear Institute at Stanford - July 1998
Dr. Joseph Roberson and Dr. Gary Steinberg
Life is great at 50

Gennysmom

  • Hero Member
  • *****
  • Posts: 1070
  • Genny says "La!"
Re: My Face Twitched!
« Reply #4 on: September 08, 2006, 06:51:46 pm »
I'm only two months out, and my face is slowly coming back, but one of the things I notice is a twitching under my eye that I can't feel.  I see it when I look in the mirror.  Good luck!!!  I hope this is good news for you!
Logged
3.1cm x 2.0cm x 2.1cm rt AN Translab 7/5/06
CSF leak 7/17/06 fixed by 8 day lumbar drain
Dr. Backous, Virgina Mason Seattle
12/26/07 started wearing TransEar

Obita

  • Hero Member
  • *****
  • Posts: 985
Re: My Face Twitched!
« Reply #5 on: September 08, 2006, 07:17:55 pm »
Holy Crap.  You, Pattibobatti and Joef all in one week, twitching and moving............great news Scottie!!  I will tell you the same thing I told Patti and Joe:  I hope it starts keeping you awake at night like it did me.....it was a great feeling!!!  My facial nerves still twitch after 2 years and 4 months and boy do I like it.

Have a good weekend, Kathy
Logged
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

pattibobatti

  • Full Member
  • ***
  • Posts: 184
Re: My Face Twitched!
« Reply #6 on: September 08, 2006, 08:11:47 pm »
What is going on here!!!!! Good for you!!!!!

There really must be something in the water

It is very exciting when this happens.  I reallly hope your twitch means everything~~

Kathy makes me laugh with that 'holy crap'!!!!

Sweet dreams
Pattibobatti
Logged
17 mm AN removed 1-16-06
  retrosigmoid
  paralysis, cornea transplant,avascular necrosis

   'Are we having fun yet?'

wind6

  • Full Member
  • ***
  • Posts: 223
  • Winch Wench ;)
Re: My Face Twitched!
« Reply #7 on: September 09, 2006, 09:23:02 am »
I hope thats great news Scott. Mine started with a twitch too. Call your doc on Monday......this could be REALLY GREAT!!!!!!
Logged
2.5cm x 3.1cm facial nerve neuroma
removed 8-2-2005(retrosigmoid)
St.Johns Hospital-Springfield,Illinois
Dr.Michael McIlhany and Dr.Carol Bauer
Wait n' watch mode for 8 years.
Gamma Knife at Northwestern Memorial Hospital. Chicago,IL. Dr. James P. Chandler. July 10, 2013.

msuscottie

  • Sr. Member
  • ****
  • Posts: 350
  • Postie x 3
    • mytooma - the acoustic neuroma blog
Re: My Face Twitched!
« Reply #8 on: September 11, 2006, 10:14:05 am »
So ... my face hasn't twitched again since Friday. My Dr. had never said to call if it did twitch, so I don't know if I should be calling him or not? Is he just going to say, "yeah, that's nice," or do they need to know this for their charts or whatever? Not sure what I should do.
Logged

shoegirl

  • Sr. Member
  • ****
  • Posts: 311
Re: My Face Twitched!
« Reply #9 on: September 11, 2006, 11:11:25 am »
I'd call, what can it hurt? They may be able to give you some advice on what is happening, what to look for, etc.

Hope it keeps twitching!
Logged
left side 2.0cm x 1.3cm  
Cyberknife - 12/2005
The Barrow Institute, Phoenix, AZ

Laura

  • Full Member
  • ***
  • Posts: 199
Re: My Face Twitched!
« Reply #10 on: September 11, 2006, 12:12:39 pm »
 ;) That is great Scottie! I would call and ask them exactly what you asked here... is this something you need to know for your charts? What harm can it do? Maybe they will have more info to offer after hearing your news.
Logged
Diagnosed August 17, 2006
AN on right side 1cm x 7mm x 7mm
30% hearing loss with no other symptoms
Watching and Waiting
http://www.patient-network.com/lparr
It's mind over "matter"... even if the "matter" is in my mind

msuscottie

  • Sr. Member
  • ****
  • Posts: 350
  • Postie x 3
    • mytooma - the acoustic neuroma blog
Re: My Face Twitched!
« Reply #11 on: September 11, 2006, 12:33:11 pm »
Maybe you're right. Just feel like I'm bothering them if I don't "need" anything
Logged

Obita

  • Hero Member
  • *****
  • Posts: 985
Re: My Face Twitched!
« Reply #12 on: September 11, 2006, 12:39:56 pm »
Scottie:

I would call.  You and your insurance company paid him/her a bazillion dollars...........any of us would want to know:  "What does this mean?"  Chances are you will be leaving a message with a nurse.  That is their job.  I called my Dr. many times after surgery with questions.......he or his nurse always called me back.

Good luck,  Kathy
Logged
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

Laura

  • Full Member
  • ***
  • Posts: 199
Re: My Face Twitched!
« Reply #13 on: September 11, 2006, 01:09:36 pm »
Bother away, he will get over it if you are a bother!!!! I agree with Kathy, they have made plenty of money off of you and the insurance company; I think he could spare you 5 minutes  ;).
Logged
Diagnosed August 17, 2006
AN on right side 1cm x 7mm x 7mm
30% hearing loss with no other symptoms
Watching and Waiting
http://www.patient-network.com/lparr
It's mind over "matter"... even if the "matter" is in my mind

ppearl214

  • Administrator
  • Hero Member
  • *****
  • Posts: 7451
  • ANA Forum Policewoman - PBW Cursed Cruise Director
Re: My Face Twitched!
« Reply #14 on: September 11, 2006, 02:30:16 pm »
hello "Twitchy"

Call him!  He paid for his house cuz of you, you call him! :)

Phyl
Logged
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"
Pages: [1] 2
« previous next »