Author Topic: Pulsatile Tinnitus Help me  (Read 6235 times)

jrogers21

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Pulsatile Tinnitus Help me
« on: November 17, 2013, 11:53:00 pm »
So it all started when I was 5 months pregnant with my son and it wasn't that noticeable. After the baby I didn't notice but over time it has gotten worse and now its to the point where I can't hear without pressing my neck to hear. I have been to an ENT and they said my hearing was normal and I've had CTs, MRI, and MRA which were all normal. The only way to make it stop is to press the right side of my neck for relief. I just need answers before I go crazy.

mesafinn

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Re: Pulsatile Tinnitus Help me
« Reply #1 on: November 18, 2013, 03:41:36 pm »
I just wanted to write and affirm that I understand.

Were your MRIs with contrast?

The pulsatile tinnitus was--and remains--my biggest frustration.  I've heard my heartbeat in my left ear for 14 months now.  I am mostly "used" to it, but it can still be annoying.

I had an MRA as well, and they could not identify a cause.  I have consulted with a half dozen doctors, neurosurgeons, ENT specialists and voodoo doctors.  No one can identify a cause and tell me this is rare.

If it helps, you're not alone, but I recognize that's of little consolation.   I sleep with a TV on since that's when I notice it the most.

Sending what support I can--

P.
Oct 2012:  Constant Pulsatile Tinnitus
Feb 28, 2013: Dx AN 1.4 cm X .9 mm
April 19, 2013:  GK at UPMC w/Dr. Lunsford

Some things in my life need to matter less, and other things in my life need to matter more.  So yes, I'm taking this as a "lesson learned experience."

shalu186

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Re: Pulsatile Tinnitus Help me
« Reply #2 on: June 16, 2014, 02:15:58 am »
hi all,

 My pulsatile tinnitus started in my right ear when i was pregnant. The doctor said it ill go away after my delivery.. but it did not go.

 now it is two years am suffering. my tinnitus is constant. If my press my neck it stops.

 I had MRI brain scan without contrast, it came back normal. My doctor was not able to find a cause. IS this a serious problem?

 I have a daughter just completed one year.. I do not want to die leaving her alone

 If anyone knows about my symptoms please reply as soon as possible.

 Thanks...
 Lavanya

Jim Scott

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Re: Pulsatile Tinnitus Help me
« Reply #3 on: June 16, 2014, 01:45:54 pm »
Hi, Lavanya ~

Although I'm not a physician, I believe that pulsatile tinnitus is not known, by itself, to be fatal - but it certainly can be maddening.  It has many causes, high blood pressure being one of them.  In some situations serious medical issues could be the cause of the tinnitus.

Unfortunately, finding the exact source of pulsatile tinnitus can be complicated and sometimes frustrating.  However, your suffering makes the quest to find the source of your pulsatile tinnitus somewhat urgent.  I would suggest that you seek out a sympathetic doctor that will do the testing that may discover the source of the tinnitus you're dealing with.

I wish you success - an eventual end to your pulsatile tinnitus.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

shalu186

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Re: Pulsatile Tinnitus Help me
« Reply #4 on: June 16, 2014, 11:56:32 pm »
Thank you very much Jim:)
your reply helps me a lot... let me go for consultation again.. and let u know the result:)

Thanks,
Lavanya