Hi! my name is Omri, im from israel and im 20 years old.
for beginning, after reading some of your messages here i understand that giving a name to the tumor is a must in this club so ill hope to find a good one soon
10 months ago a weird hoaresness started to bother me, i went to the ENT doctor and he didnt find anything. after 6 months of looking for an answer to the problem, I went to a new ENT doctor, and she found that my right vocal cord is paralyzed, she sent me to a CT scan and a week later i was told that i might have a Glomus tumor in the jugular foramen. went to a MRI scan - the answer is a 2.1cm tumor - might be a glomus or a schwannoma, most of the neuroradiologist thought its a schwannoma.
im suffering from hoarseness,swallowing problems, shoulder dysfunction and my tongue is kinda paralyzed in one side.
after a month of trying to decide which therapy i should take i chose to take the radiation, on a Novalis TX machine in a very professional center in Israel. they told me to come in 2 weeks to do it. the treatment day has finally arrived and i had the MRI scan, they built my mask, i had a CT scan and everything. a hour before the actually radiation, the doctor called me and my parents and told us that the neuroradiologists of the center thinks that the diagnosis might be wrong and its might be a chondroma/chondrosarcoma. and i have to wait till they decide what to do with me.
this week i met a neurortologist and he told me that they need to take a biopsy and its not hard taking, so theyll find out whats in it, so ill can have the radiation. he also said that if i want to have a surgery, no one in israel (although we have a great neurosurgents in israel) can make this operation, and he wants to send me to Gruppo-Otologico hospital in italy to have the surgery there, he sent the MRI scan there and we are waiting for action.
Im sorry for showing such a confused thing - but thats the way the things went.
I wanted to ask you some questions, i know i might find them in other messages, but after seeing couple of messages i understand that every case has its own ideas.
1. If the GammaKnife and other stereotactic solutions has more than 90-90% success rates, why not everyone who fits this therapy is going to do that and choose surgery that can cost in worsening their problems?
2. I saw that in some messages people said that the doing the radiosurgery in one place can be complete different not only by the machine (gamma or novalis) but also results, does expirience really matter as it is in a surgery?
3. Do you know any other big medical centers in europe that are better than gruppo-otologico?
4. Anyone here is about my age and had the same options and the doctors always told him about his age? that he is young and getting a surgery is better, but also told him that radiosurgery can also solve the problem?
Thank you so much, sorry about the bad english!
Omri
