Author Topic: Travel to get a treatment done  (Read 3566 times)

CS

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Travel to get a treatment done
« on: July 29, 2014, 12:17:04 pm »
Hi everyone,

If I have to travel to out of the state to get a treatment done, how can I follow-up with doctor and if I have any problem after the treatment?
« Last Edit: July 29, 2014, 12:56:37 pm by CS »
Diagnosed: 06/04/14
12mm x 6mm x 7mm AN
Seeking best treatment option! :)
09/24/14 Retro-Sigmoid Removal

arizonajack

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Re: Travel to get a treatment done
« Reply #1 on: July 29, 2014, 08:51:15 pm »
Phone and email.

After you've received treatment you can get your periodic MRIs where you live and just have the results sent to your "away" doctor for review.
3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

CS

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Re: Travel to get a treatment done
« Reply #2 on: August 01, 2014, 11:10:57 am »
hi Arizonajack,

Thanks for the info!

I was wondering that if I get any treatment done and any problem occurs later, how can I take care of...
Diagnosed: 06/04/14
12mm x 6mm x 7mm AN
Seeking best treatment option! :)
09/24/14 Retro-Sigmoid Removal

CHD63

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Re: Travel to get a treatment done
« Reply #3 on: August 01, 2014, 04:21:22 pm »
Hi CS .....

I appreciate your concern about follow-up treatment if any problem occurs.  Because ANs are relatively rare, many AN patients must travel a distance for treatment by experienced physicians.  Whether out of state or not, it naturally is a concern.

If it helps any ..... if you have surgery, most surgeons require their patients to stay in the area for at least 10 days post-op, during which time most issues occur if they are going to (this is also exceedingly rare).

I went out of state for both of my surgeries.  The second one, I flew across the country.  I asked this very question before I went.  The answer was "We do not see many problems occurring past the 10 day mark and if you should happen to, call us and we will refer you to a doctor in your area to see you."  I did not have any problems.

Choosing a highly experienced treating physician greatly minimizes the chance of post-op problems.

Hope that helps.  Many thoughts and prayers.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

CS

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Re: Travel to get a treatment done
« Reply #4 on: August 04, 2014, 11:50:44 am »
Hi Clarice,

Thank you for advice-

I always admire your graceful responses to everyone and am sure that you've encouraged and comforted many. :)  It's very helpful to hear and get advice from someone who has experienced.
I am blessed that I was able to see very good and experienced surgeons and radiation oncologists and got their consultations. Narrowed down to two surgeons with two approaches.
Diagnosed: 06/04/14
12mm x 6mm x 7mm AN
Seeking best treatment option! :)
09/24/14 Retro-Sigmoid Removal