Author Topic: just has retro sig onb Tuesday  (Read 4073 times)

bethtretrault

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just has retro sig onb Tuesday
« on: November 07, 2015, 04:50:00 pm »
Home. Yay! Slight vertigo and taking steriods and valium. Having also double vision. They say hope will resolve. Anyone else experience this? For how hong? Using a walker but getting around the house okay. Hearing diminished but not totally gone.
beth
12/2013 5mmx4mmx4mm left
tinnitus, w&w
5/2015 7mm-louder tinnitus, occasional dizziness
retro sigmoid 11/2015

Tod

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Re: just has retro sig onb Tuesday
« Reply #1 on: November 07, 2015, 08:57:25 pm »
Hey Beth! Congrats! Been wondering how you were doing. I had a double-vision for a few months. I wear glasses and the O/T had me tape about 2/3ds of the lens on the tumor side, to train my eye. Ultimately, the opthalmalogist used a plastic prism lens instead of tape. The double-vision is not atypical and it may not last long at all.

Best, be good to yourself.

-Tod

Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

bethtretrault

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Re: just has retro sig onb Tuesday
« Reply #2 on: November 08, 2015, 07:33:27 am »
Thank-you Tod. That is very reassuring.
beth
12/2013 5mmx4mmx4mm left
tinnitus, w&w
5/2015 7mm-louder tinnitus, occasional dizziness
retro sigmoid 11/2015

CHD63

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Re: just has retro sig onb Tuesday
« Reply #3 on: November 08, 2015, 09:01:09 am »
Hi Beth .....

Adding to Tod's reassurance ..... I, as well, had double vision after my first surgery (retrosigmoid).  I had a lot of nystagmus (rapid involuntary movements of the eyes) before surgery and that persisted afterwards for a couple of months.  The double vision only lasted a couple of weeks.  Reading was very tiring for many months, but I was able to do it in shorter periods.

Your recovery sounds very similar to mine and I am fine now.

Many thoughts and prayers.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

bethtretrault

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Re: just has retro sig onb Tuesday
« Reply #4 on: November 08, 2015, 12:22:06 pm »
Thank-you.
beth
12/2013 5mmx4mmx4mm left
tinnitus, w&w
5/2015 7mm-louder tinnitus, occasional dizziness
retro sigmoid 11/2015

mcrue

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Re: just has retro sig onb Tuesday
« Reply #5 on: January 10, 2016, 05:38:34 am »
Fantastic. I hope you are doing very well after all this time.

The surgeons I spoke with advised me against Retrosigmoid since I'm heavy-set. Plus the headache factor.

Best wishes.
5/19/2015 - 40% sudden hearing loss + tinnitus right ear

6/26/2015 - AN diagnosed by MRI - 14mm x 7mm + 3mm extension

8/26/2015 - WIDEX "ZEN" hearing aid for my catastrophic tinnitus

12/15/2015: 18mm x 9mm + 9mm extension (5mm AGGRESSIVE GROWTH in 5 months)

3/03/2016:   Gamma Knife - Dr. Sheehan