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Author Topic: New  (Read 4751 times)

Butten

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New
« on: January 01, 2016, 10:58:46 pm »
Hi everyone

I am new to this site, back in 2014 I had lung cancer and had it removed
Now I find I'm having loss of hearing in right ear and headaches along with dizziness when I bend over or look up
Last night when I got out of bed to go to wash room I was walking like I was drunk
I had a an ear infection with blood and awful smell the ENT went in and cleaned it up and said it was a acute infection
2 weeks later there are no changes I still have no hearing in right ear along with all these symptoms above

I did have a CT scan and it showed nothing
The ENT said there is something going on further inside and now will be starting testing on January 8th.
I am truly scared
Has anyone else had issues like this?
I am 51 year old female
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arizonajack

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  • Arizona - It's a Dry Heat
Re: New
« Reply #1 on: January 02, 2016, 11:42:43 am »
Yes, all of us here have had some or all of those issues and we all found that all or some of those issues were caused by an Acoustic Neuroma.

At this point I suggest pushing for an "MRI with contrast". That's the best way to determine if you have one or not.

If you have one, this is a good place for knowledge and support.
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3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

Butten

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Re: New
« Reply #2 on: January 02, 2016, 11:53:13 pm »
Thanks I see family dr on Monday and ENT on friday
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ANER

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Re: New
« Reply #3 on: January 09, 2016, 09:18:23 am »
Statistically, patients with unilateral hearing loss as measured by an audiologist have a 1/1000 chance of being diagnosed with an AN.   Keep positive, get an MRI and keep us posted..  As I tell my wife, It's not time to worry....yet.
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Diagnosed 10/22/15  11-8-7mm
Watch and Wait as of 11/9/15
Had a ride in the MRI on 5/2/16 with no new growth.
Riding this Watch and Wait Train until May 2017.

arizonajack

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Re: New
« Reply #4 on: January 09, 2016, 09:43:59 am »
Quote from: ANER on January 09, 2016, 09:18:23 am
Statistically, patients with unilateral hearing loss as measured by an audiologist have a 1/1000 chance of being diagnosed with an AN.   Keep positive, get an MRI and keep us posted..  As I tell my wife, It's not time to worry....yet.

It's never time to worry.

If you don't have an AN, there's nothing to worry about.

If you do have an AN, it happens whether you worry or not. So why worry?

 ;D
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3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

ANGuy

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Re: New
« Reply #5 on: January 09, 2016, 12:09:00 pm »
Quote from: arizonajack on January 09, 2016, 09:43:59 am
Quote from: ANER on January 09, 2016, 09:18:23 am
Statistically, patients with unilateral hearing loss as measured by an audiologist have a 1/1000 chance of being diagnosed with an AN.   Keep positive, get an MRI and keep us posted..  As I tell my wife, It's not time to worry....yet.

It's never time to worry.

If you don't have an AN, there's nothing to worry about.

If you do have an AN, it happens whether you worry or not. So why worry?

 ;D

This is very true.  Worrying does nothing to help us.  Of course, it is human to worry about this kind of thing, but I think we are all better off being aware of the fact that we will tend to worry and we should avoid it.
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Diagnosed June 2014 1cm AN at 47 years of age.  Had fluctuating symptoms since 2006.    6 mos MRI (Dec 2014) showed no growth, MRI  in July 2015 showed no growth.  MRI Jan 2016 showed no growth.  MRI Aug 2016 showed no growth.  I'm gonna ride the WW train as long as I can.

PaulW

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Re: New
« Reply #6 on: January 10, 2016, 12:32:11 am »
Sounds like a serious but pretty common inner ear infection.
A CT scan will pick up most AN's over 10mm so if you do have an AN it will be a baby one.
These infections can damage your hearing sometimes permanently. You may need a small procedure done to help your hearing and resolve the infection.
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10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!
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