Author Topic: Very worried  (Read 23987 times)

ANSydney

  • Hero Member
  • *****
  • Posts: 722
Re: Very worried
« Reply #30 on: January 15, 2017, 04:09:18 pm »
Willbur, good luck with your MRI tomorrow.

Willbur

  • Full Member
  • ***
  • Posts: 105
  • I will shrink it
Re: Very worried
« Reply #31 on: January 16, 2017, 07:33:09 am »
Willbur, good luck with your MRI tomorrow.

Thanks Sydney! I have it later this afternoon! I will be sure to post results when I receive them.  ;D ;D ;D
Diagnosed@29
10/13/16 - 21x23x19
1/16/17 - 22x23x19
1/24 - Surgery Successful
3/6 - MRI/CT Scan No Regrowth

Willbur

  • Full Member
  • ***
  • Posts: 105
  • I will shrink it
Re: Very worried
« Reply #32 on: January 17, 2017, 03:26:53 pm »
It is not shrinking at all. It actually grew just a tiny, tiny bit, but I didn't get exact measurement from doc.
Diagnosed@29
10/13/16 - 21x23x19
1/16/17 - 22x23x19
1/24 - Surgery Successful
3/6 - MRI/CT Scan No Regrowth

ANSydney

  • Hero Member
  • *****
  • Posts: 722
Re: Very worried
« Reply #33 on: January 18, 2017, 04:44:20 am »
Look at the images and check exactly how much it grew.

ANSydney

  • Hero Member
  • *****
  • Posts: 722
Re: Very worried
« Reply #34 on: January 18, 2017, 05:01:34 am »
If growth is tiny, are you going another 6 months and MRI again? (Very few shrink, but it does happen - the literature has from 3% to 22% that shrink, with 13% about the median. Part of that variability is how many mm is the threshold to consider it shrinking. As far as growth goes, I think at 2 mm threshold, more than two-thirds don't grow.)

Willbur

  • Full Member
  • ***
  • Posts: 105
  • I will shrink it
Re: Very worried
« Reply #35 on: January 18, 2017, 10:05:03 am »
If growth is tiny, are you going another 6 months and MRI again? (Very few shrink, but it does happen - the literature has from 3% to 22% that shrink, with 13% about the median. Part of that variability is how many mm is the threshold to consider it shrinking. As far as growth goes, I think at 2 mm threshold, more than two-thirds don't grow.)

Good point. I'm scheduled to have surgery on Tuesday, but I'd like to avoid if I could. :'(
Diagnosed@29
10/13/16 - 21x23x19
1/16/17 - 22x23x19
1/24 - Surgery Successful
3/6 - MRI/CT Scan No Regrowth

lilith

  • New Member
  • *
  • Posts: 23
Re: Very worried
« Reply #36 on: January 18, 2017, 11:51:13 am »
Good luck with surgery! Let us know how you feel.

Lilith
33mmx19mm AN (Diagnosis 5.05.2016)
Radiosurgery in Mexico City: 25.05.2016
Pre and post-radiosurgery: little bit of imbalance, mild hearing-loss, wonky head.

ANSydney

  • Hero Member
  • *****
  • Posts: 722
Re: Very worried
« Reply #37 on: January 19, 2017, 04:15:22 am »
Willbur, are your symptoms severe? Could you go another 6 months, get an MRI and then decide?

Also, how long have your symptoms been.

alabamajane

  • Hero Member
  • *****
  • Posts: 635
Re: Very worried
« Reply #38 on: January 19, 2017, 08:38:25 am »
Sending positive thoughts and wishes for a successful surgery and steady recovery,,

Once we make our decision for treatment (or watch and wait) it is important to remain confident in that decision and find peace. It will help you immensely. After all,, we each are the ones personally impacted by the decision. It's ours alone to make.

We look forward to your post surgery post!
translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26

Willbur

  • Full Member
  • ***
  • Posts: 105
  • I will shrink it
Re: Very worried
« Reply #39 on: January 19, 2017, 11:36:06 am »
Willbur, are your symptoms severe? Could you go another 6 months, get an MRI and then decide?

Also, how long have your symptoms been.

Not severe no.... They just said the larger it grows, it means less of a chance to save the facial nerve or would take longer to wake up. Current measurement for me is 22x23x19 compared to 21x23x19 in October. The doc thinks they are off on the measurement and it is technically the same either way.
Diagnosed@29
10/13/16 - 21x23x19
1/16/17 - 22x23x19
1/24 - Surgery Successful
3/6 - MRI/CT Scan No Regrowth

ANSydney

  • Hero Member
  • *****
  • Posts: 722
Re: Very worried
« Reply #40 on: January 19, 2017, 01:37:37 pm »
A 1 mm difference is withing the error of measurement.

voron999

  • New Member
  • *
  • Posts: 35
Re: Very worried
« Reply #41 on: January 19, 2017, 10:29:27 pm »
Welcome to the club. At least your AN is very small at this point. You've got many options including watch and wait. How old are you?
I am 48; just started my own topic next to yours.
Jan 11, 2016: 4 x 3 mm nodule in the left ......consistent with an acoustic neuroma.

ANSydney

  • Hero Member
  • *****
  • Posts: 722
Re: Very worried
« Reply #42 on: January 30, 2017, 04:16:34 pm »
Willbur, did you have treatment? If so, how did it go?

Willbur

  • Full Member
  • ***
  • Posts: 105
  • I will shrink it
Re: Very worried
« Reply #43 on: January 30, 2017, 07:59:28 pm »
Willbur, did you have treatment? If so, how did it go?

Its been about a week. I am right side paralyzed with the hopes the nerve wakes up within a month or so. Doc said I will get readjusted but never again will i go through with surgery. It sucked hardcore and I can barley type. I am bit disappointed with outcome but yet we we will see where that leads me too..
Diagnosed@29
10/13/16 - 21x23x19
1/16/17 - 22x23x19
1/24 - Surgery Successful
3/6 - MRI/CT Scan No Regrowth

ANSydney

  • Hero Member
  • *****
  • Posts: 722
Re: Very worried
« Reply #44 on: January 30, 2017, 08:06:13 pm »
Sad to hear Willbur. I've been following you since you were diagnosed shortly after I was with about the same sized tumor. When you say right side paralyzed, are we talking about the body or the face? Your tumor was medium and I would have thought that the chance of severe complications would be small.

Do the doctors give a good chance of recovery?

I hope everything turns out good "within a month or so".