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Author Topic: Not a newbie. But still scared  (Read 3393 times)

Roalb

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Not a newbie. But still scared
« on: March 06, 2017, 01:33:45 pm »
Well.  Preop tomorrow at Vanderbilt. Surgery is scheduled for next Tuesday March 14th with Doctors Haynes and Thompson. I have every confidence that I am in good hands.  After failed FSR (2000) and considerable growth since 2014 MRI, waiting,  or more radiation are not an option.  I'm sure I will be returning to this site in a while to discuss with all of you,  these symptoms that I'm already experiencing. Eye issues, facial issues, swallowing problems, and the worst, walking in counterclockwise circles( Takes forever to get anywhere). Wish the best for all of you. If you pray, say one for me.
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3cmx2cmx2cm (12/27/16 scan)
Failed FSR June 2000 @ Johns Hopkins
Surgery(Trans Lab) 03/14/17 @ Vanderbilt

alabamajane

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Re: Not a newbie. But still scared
« Reply #1 on: March 06, 2017, 07:04:07 pm »
Welcome,,
Good luck with pre op tomorrow ,, you are going to a great facility with experienced doctors  and I am sure will have a successful surgery.

I hope recovery is smooth and that most of your symptoms will go away afterwards. Walking in circles is a new one to me  :o,,,, must be terribly frustrating!! Maybe that will stop!!

Prays and hugs to you for next week too.
Peace,,
Jane
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translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26

mandihester

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Re: Not a newbie. But still scared
« Reply #2 on: March 07, 2017, 10:29:23 am »
Best wishes to you and prayers for a smooth recovery!
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AN right side found August 2016- grape size
Retrosigmoid microsurgery October 2016
Before surgery- minor hearing loss, major balance and dizziness issues.
After surgery- severe hearing loss (it fluctuates), no dizziness, minor balance issues

mac84

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Re: Not a newbie. But still scared
« Reply #3 on: March 07, 2017, 01:38:06 pm »
Good Luck!! I've met Dr. Thompson and really like him. Vanderbilt is a first class facility!
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Diagnosed 10/13/14 with 1.4cm AN L side
1st Consult with Vanderbilt 11//14
W/W.  Next MRI in April 2015 at Vanderbilt.
April 2015 MRI no growth -
April 2016 MRI no growth - still 1.46cm.
4/17: No growth!
4/18: No growth! MRI 2 yrs
4/20: No growth! Symptoms stable- MRI 2 yrs

Roalb

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Re: Not a newbie. But still scared
« Reply #4 on: March 11, 2017, 09:56:41 am »
Preop went smoothly. Hospital staff were very nice and efficient. Driving up to North Atlanta to visit with some family then on to Nashville on Sunday. Looking forward to having this thing out of my head. For me, the worst side effect of the tumor, is the difficulty swallowing. Have lost about 10 lbs.since that started.  The lost weight is not a problem. Just don't want it to get out of hand. Best wishes to all. Talk to you after surgery.
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3cmx2cmx2cm (12/27/16 scan)
Failed FSR June 2000 @ Johns Hopkins
Surgery(Trans Lab) 03/14/17 @ Vanderbilt

alabamajane

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Re: Not a newbie. But still scared
« Reply #5 on: March 11, 2017, 06:07:20 pm »
Roalb,
Will have you in my thoughts and prayers on Tuesday.
Try to enjoy your weekend and Monday and find peace as you prepare for surgery,,,

You are in great hands,,,waiting to hear from you on the other side of surgery ,,
Jane
Logged
translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26
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