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Author Topic: Does anyone know of a good cancer forum?  (Read 4469 times)

AL-Tcw

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Does anyone know of a good cancer forum?
« on: March 08, 2018, 12:03:41 pm »
Recently diagnosed with cancer shortly after my AN was discovered so for now my AN surgery has been put on hold.  This forum has helped me so much I was wondering if anyone had any experience with a good cancer forum to help me with that aspect of my life. Thank you
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Diagnosed 1/10/18 AN 3.2cm x 2.2cm
Translab 8/30/18 (Facial Paralysis) Cyberknife 12/18-20/18, BAHA abutment 12/28/18

alabamajane

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Re: Does anyone know of a good cancer forum?
« Reply #1 on: March 09, 2018, 08:15:10 am »
So sorry for your new diagnosis on top of the AN diagnosis !! How cruel,,,,

I don’t have any suggestions unfortunately but wanted to send wishes for better health and peaceful thoughts to you,, I hope you are able to find top notch doctors for both health issues.

I believe I have noticed some mention indeed.com as a forum for answers but I may be wrong,,,,,
Good luck,,,
Jane
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translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26

LakeErie

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Re: Does anyone know of a good cancer forum?
« Reply #2 on: March 09, 2018, 12:02:34 pm »
I do not know of any forums for cancer in general. What type of cancer were you diagnosed with? (rhetorical question) For example, I was diagnosed with colon cancer in 2013 and follow the "Colon Club" site. There may be groups for cancer types on Facebook, too.
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4.7 cm x 3.6 cm x 3.2 cm vestibular schwannoma
Simplified retrosigmoid @ Cleveland Clinic 10/06/2011
Rt SSD, numbness, vocal cord and swallowing problems
Vocal cord and swallowing normalized at 16 months. Numbness persists.
Regrowth 09/19/2016
GK 10/12/2016 Cleveland Clinic
facial weakness Jan 2017

AL-Tcw

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Re: Does anyone know of a good cancer forum?
« Reply #3 on: March 28, 2018, 09:16:48 am »
Quote from: LakeErie on March 09, 2018, 12:02:34 pm
I do not know of any forums for cancer in general. What type of cancer were you diagnosed with? (rhetorical question) For example, I was diagnosed with colon cancer in 2013 and follow the "Colon Club" site. There may be groups for cancer types on Facebook, too.

Hi, I have throat cancer. I will have another surgery in 2 weeks. Thank you for the suggestion.
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Diagnosed 1/10/18 AN 3.2cm x 2.2cm
Translab 8/30/18 (Facial Paralysis) Cyberknife 12/18-20/18, BAHA abutment 12/28/18

AL-Tcw

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Re: Does anyone know of a good cancer forum?
« Reply #4 on: March 28, 2018, 09:18:48 am »
Quote from: alabamajane on March 09, 2018, 08:15:10 am
So sorry for your new diagnosis on top of the AN diagnosis !! How cruel,,,,

I don’t have any suggestions unfortunately but wanted to send wishes for better health and peaceful thoughts to you,, I hope you are able to find top notch doctors for both health issues.

I believe I have noticed some mention indeed.com as a forum for answers but I may be wrong,,,,,
Good luck,,,
Jane

Thank you so much.
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Diagnosed 1/10/18 AN 3.2cm x 2.2cm
Translab 8/30/18 (Facial Paralysis) Cyberknife 12/18-20/18, BAHA abutment 12/28/18

AL-Tcw

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Re: Does anyone know of a good cancer forum?
« Reply #5 on: March 28, 2018, 09:22:11 am »
Quote from: Cityview on March 09, 2018, 02:52:37 pm
AL-tcw

Sorry for your dual diagnoses.
I found inspire.com helpful.
They have over one million members and many, many different health communities.
Some of the communities are affiliated with major societies, for example the brain tumor one is affiliated with ABTA.
I no longer have a membership there as I feel I have overcome my particular diagnosis and no longer need info.
Hopefully you will find a community there that fits your needs.
Wishing you good health.

Thank you
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Diagnosed 1/10/18 AN 3.2cm x 2.2cm
Translab 8/30/18 (Facial Paralysis) Cyberknife 12/18-20/18, BAHA abutment 12/28/18
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