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Author Topic: Eight years and going strong  (Read 2996 times)

Tod

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Eight years and going strong
« on: May 04, 2018, 08:35:23 am »
A very brief update. On Monday I had MRI #18 at 730 am and about 930am my surgeon told me it looks the same as it did two years ago. Back again in two years for a 10 year follow-up and then likely go to longer period between appointments. So all good news. Most of the discussion was about the fact that my weight is exactly 100 pounds less than it was in 2016.

All good news. Luck and love to everyone.

-Tod
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Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

Greece Lover

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Re: Eight years and going strong
« Reply #1 on: May 04, 2018, 09:05:58 am »
great news!
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Vestibular Schwannoma 1.2 cm. Right side.
Middle fossa surgery at University of Iowa on May 9 2016.
Hearing saved.  Face is fine. Balance pretty darn good most days.
One year follow up MRI showed no tumor. 
Five year follow up showed no tumor, so I'm in the clear.

Patti

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Re: Eight years and going strong
« Reply #2 on: May 07, 2018, 06:35:35 am »
Good for you!!!!!!!
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4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

bethtretrault

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Re: Eight years and going strong
« Reply #3 on: May 07, 2018, 05:31:25 pm »
Excellent news!
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beth
12/2013 5mmx4mmx4mm left
tinnitus, w&w
5/2015 7mm-louder tinnitus, occasional dizziness
retro sigmoid 11/2015

ColleenS

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Re: Eight years and going strong
« Reply #4 on: May 14, 2018, 01:01:12 pm »
Happy Days!  ;D  Thanks for sharing.
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5/2/17 @ Vanderbilt Translab approach with Drs. Haynes & Chambless
Readmitted on 5/7/17 for CFL, lumbar drain; CFL repair surgery
10/18 5 Radiation treatments for tumor regrowth
3/19 Pain, swelling, facial paralysis
5/19 Facial paralysis, numbness
10/21 Mild facial paralysis still

jaylogs

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Re: Eight years and going strong
« Reply #5 on: May 14, 2018, 10:15:09 pm »
Hey Tod, good hearing from you man! Congrats on the weight loss, that is awesome!! Hope all is well with you, take care!
Cheers, Jay
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8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

notaclone13

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Re: Eight years and going strong
« Reply #6 on: May 15, 2018, 06:55:21 am »
Congratulations on the good news and weight loss. 
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Rhcdad

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Re: Eight years and going strong
« Reply #7 on: July 01, 2018, 03:34:21 am »
Terrific job, keep doing whatever you have been doing it looks likes its working !! Awesome
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2.54 cm tumor
TransLab @ House Clinic
Surgery 10/27/15
Numerous Post Surgery Issues
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