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Author Topic: 12 years later..  (Read 4240 times)

Tod

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12 years later..
« on: February 11, 2022, 07:10:26 am »
Hi everybody! It's been awhile (years) since I have been around, but I received a couple of PMs that brought me back to the site, and tomorrow is the 12th anniversary of my surgery starting, and Sunday night the 12th anniversary of my surgery ending. I just want to say that all is well and my MRI last spring showed no new growth and now I am moving to a 3 year cycle for MRIs.

Life is good. There are almost always challenges after surgery or even after radiation. All you can do is just keep making relentless forward movement, acknowledging and celebrating even the smallest improvements because the big ones are made of a bunch little ones.

I wish you each the best in your journeys and a life of continuous improvement and well-being.

-Tod
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Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

donjehle

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Re: 12 years later..
« Reply #1 on: February 11, 2022, 05:41:22 pm »
Welcome back, Tod, to the forums, and thank you for the update!

It is always wonderful to hear the success stories and those, like you, who have persevered through the difficult challenges and can look back to see how far you have come.

Thank you for sharing again!  And happy 12th anniversary!
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Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

SP

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Re: 12 years later..
« Reply #2 on: February 13, 2022, 07:00:21 pm »
Glad to hear you are doing well Tod!

love this:

"keep making relentless forward movement, acknowledging and celebrating even the smallest improvements because the big ones are made of a bunch little ones"

be well,
Stella
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My AN Story – Sydney to Stanford CK

2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

alabamajane

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Re: 12 years later..
« Reply #3 on: February 15, 2022, 04:29:20 pm »
Hi Tod,
Good to hear you are still progressing and moving forward! That’s all we can do right ?!

I remember reading about your journey and reading your posts. I had my 10 year anniversary last Oct 27-31. I had 2 operations 4 days apart. But all is good and I too keep plugging along. Got my BAHA in 2014.

Good luck to you and all of us AN Warriors.

Jane
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translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26

donjehle

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Re: 12 years later..
« Reply #4 on: February 15, 2022, 06:20:24 pm »
Thank you, Jane, for also sharing how well you are doing at your 10 year anniversary!  Reading what y'all post is very encouraging for those of us who are new on the journey.  I love to hear how you are still progressing.

Best wishes!
Don
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Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

Karin Mauro

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Re: 12 years later..
« Reply #5 on: November 10, 2024, 12:07:34 pm »
As a newly diagnosed reluctant schwannoma host facing Translab surgery in 11 days I’m finding this mental picture I’ve drawn from your 12th anniversary post of your treatment course terrifying. I’m certain I couldn’t survive all you’ve been through. I’m so glad that you’re doing well. Best wishes to you.
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