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Author Topic: New drug therapeutics for schwannomas  (Read 3651 times)

notaclone13

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New drug therapeutics for schwannomas
« on: November 15, 2022, 11:34:57 pm »
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donjehle

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Re: New drug therapeutics for schwannomas
« Reply #1 on: November 19, 2022, 12:37:50 pm »
Thank you for sharing that article.  I'm looking forward to further developments with this!
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Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

drumfest

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  • Posts: 36
Re: New drug therapeutics for schwannomas
« Reply #2 on: November 20, 2022, 03:52:43 pm »
Thank you very much for sharing this article.  Please post updates if you're able.  Hoping this pans out for all in the AN boat!!!
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Diagnosed 4/2022 L sided AN 1.2cm.  stuffiness/clogged sensation w/slight hearing loss but good WRS.  Occupation: Professional musician.  No treatment yet

mwatto

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  • Posts: 460
Re: New drug therapeutics for schwannomas
« Reply #3 on: November 25, 2022, 12:48:49 am »
Thank you for this - I check in mainly to get any therapeutic updates here - to learn. Still having nerve pain 4 years out - stabbing behind eye, throat, ear. Still cant sleep that side... I hate that I had no real choice at time- caught between rock and hard place.
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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

SP

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  • Posts: 183
Re: New drug therapeutics for schwannomas
« Reply #4 on: November 28, 2022, 10:39:35 pm »
Really interesting to see where this research goes to provide better options for all with AN tumors.
Thanks for posting!!!

Stella
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My AN Story – Sydney to Stanford CK

2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015
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