Author Topic: Trigeminal neuralgia after retrosigmoid surgery  (Read 3500 times)

SML

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Trigeminal neuralgia after retrosigmoid surgery
« on: February 22, 2023, 04:27:54 pm »
Just wondering... has anyone been diagnosed with trigeminal neuralgia 14 years after surgery???
SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

mindyandy

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Re: Trigeminal neuralgia after retrosigmoid surgery
« Reply #1 on: July 22, 2024, 12:09:34 pm »
I had trigeminal neuralgia before surgery. I sure hope you found relief
14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

mwatto

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Re: Trigeminal neuralgia after retrosigmoid surgery
« Reply #2 on: July 30, 2024, 08:18:13 pm »
Have had bad nerve pain on and off and a few things helped like full spectrum CBD, rubbing in a small amount of voltaren around my ear, wearing a dental guard (much as I dont like) and anything that relaxes me and helps me sleep. I use a few things on and off supplement wise to reduce inflammation. I also keep my blood pressure in check and use a supportive pillow (mine also caused by pressure and blood flow, maybe TMJ also). Saw a neurosurgeon this year who told me - as did dentist and specialist -very unlikely AN however he did say and virus (I have had herpes simplex as a kid, also last year RSV and Covid and the vax-will flare nerve pain.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing