One AN and one meningioma

[Elena Melnikova]

One AN and one meningioma without NF , are there such people here ? And is there such a combination without NF? I am 44 years old. Please respond! Thanks !

[cp76]

I have an AN, a small trigeminal schwannoma, and a tiny thing that they assume is a meningioma.

I have tested negative for NF2 but can't know for sure until tumors are resected. 

[Elena Melnikova]

Thank you for your reply ! Has there been any treatment? And how long have the tumors been detected?

[Elena Melnikova]

I have an AN, a small trigeminal schwannoma, and a tiny thing that they assume is a meningioma.

I have tested negative for NF2 but can't know for sure until tumors are resected.

Thank you for your reply! Has there been any treatment? And how long ago were the tumors discovered?

[Viva]

Hi Elena,
I’m 48 and was diagnosed with a vestibular schwannoma (VS) on my left side, measuring 18×11 mm, and an incidental 4 mm petroclival meningioma on the right side near the porus of the trigeminal nerve. I’m going to be tested for NF2 in June, although Dr. Stattery thinks I’m not NF2. Did you take the test for NF2? do you have any family history of hearing loss or NF2?

[Elena Melnikova]

Hello! No, I haven't taken any tests for these syndromes. And none of my relatives have hearing loss or a brain tumor diagnosis. My neurosurgeon, who removed my vestibular schwannoma five years ago, believes that I have a spontaneous combination of two tumors: a vestibular schwannoma and a meningioma. He says I don't have neurofibromatosis. I really want to believe him.

[RGG]

One AN and one meningioma without NF , are there such people here ? And is there such a combination without NF? I am 44 years old. Please respond! Thanks !

Hi Elena,
I’m 48 and was diagnosed with a vestibular schwannoma (VS) on my left side, measuring 18×11 mm, and an incidental 4 mm petroclival meningioma on the right side near the porus of the trigeminal nerve. I’m going to be tested for NF2 in June, although Dr. Stattery thinks I’m not NF2. Did you take the test for NF2? do you have any family history of hearing loss or NF2?

Hi Elena, Viva,
I'm in a similar situation, had my AN originally removed 10 years ago (dealing with regrowth now), and this month they found an incidental 1 cm meningioma.  Scared of having NF2 and future tumors, waiting to get an appointment for testing.  How did things turn out in your cases?

thanks,
Rumen

[Viva]

Hi Rumen,

I’m sorry to hear about your AN regrowth and the new meningioma. I can understand why you’re worried about NF2, especially with having more than one tumor.

Are you going to have radiosurgery for the regrowth of your AN?

Where is your meningioma located? Is it at the skull base?

I also have an AN and an incidental 4 mm meningioma. Mine is located at the skull base, which unfortunately is not an easy area to operate on. The meningioma was found incidentally when I had an MRI for my AN.

I had radiosurgery for my AN in March 2026. My neurosurgeon has told me that, with a meningioma as small as 4 mm, treatment may not be needed for many years—possibly 5 or even 10 years—depending on whether it grows and other factors. It might be worth asking your neurosurgeon about the prognosis and what they expect in your particular case, especially since yours is 1 cm.

I was tested for NF2 in June, but I’m still waiting for my results. From what I understand, the genetic test is considered quite accurate, although the interpretation can depend on the specific situation.

I don’t have any known family history of NF2 either. I hope your appointment goes well and that you get some reassuring answers. Please let us know how your NF2 testing turns out.