Author Topic: OSIA OSI300 Implant  (Read 2827 times)

Angela330

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OSIA OSI300 Implant
« on: April 04, 2024, 01:25:30 pm »
I am looking at getting an OSIA OSI300 implant to help with my SSD.  This device would allow me to continue to get MRIs to check on my residual tumor.  This device was just launched in October of 2023 so I am wondering if anyone has this implant.  I have an appointment on April 11th for a simulation to see if I would like it.  I am curious to see if anyone has this new implant and their experience with it. It's my understanding that the operation to implant is about 90 minutes and then a 6 week wait for it to heal before it can be activated.   I am excited to actually have an option available.   
4.3 cm Vestibular Schwannoma left side
Dry Mouth main symptom and then Balance issues & suffered from Hydrocephalus (No hearing loss before)
Retrosigmoid Surgery at Barnes Jewish Hospital, St. Louis, MO -2019
After: SSD, MRIs to monitor small residual tumor, some facial paralysis, No Balance Issues

donjehle

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Re: OSIA OSI300 Implant
« Reply #1 on: April 04, 2024, 09:43:19 pm »
I have read some about this device, and it looks very promising.  Please keep us posted on your experience with it.  And thanks for sharing this on the forums, Angela330.
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

carriekartman

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Re: OSIA OSI300 Implant
« Reply #2 on: May 24, 2024, 08:54:26 pm »
Oh good for you! My doctor said it was a no go, due to the shadow they cast on MRI, but now I'm going to ask again. Cannot wait to hear about it.

Angela330

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Re: OSIA OSI300 Implant
« Reply #3 on: September 14, 2024, 09:38:38 am »
Sorry, I have not replied back to this post but I am also a NO GO for this implant due to the shadowing cast it would cause on future MRIs. My doctor did give me the option of the Baha Titanium implant.   I have been reading & trying to decide if this would be an option or if I should just continue to live life with no assistance for my SSD.  Actually the more I read about the implants, I am not sure I would be happy with them as my surgery side is still very sensitive & tender and I believe the implants would make that surgery side even more sensitive.   Currently, I have decided that I am going to try Cros hearing aid and see if they can help me.  I have an appointment at the end of September to discuss this option. 
4.3 cm Vestibular Schwannoma left side
Dry Mouth main symptom and then Balance issues & suffered from Hydrocephalus (No hearing loss before)
Retrosigmoid Surgery at Barnes Jewish Hospital, St. Louis, MO -2019
After: SSD, MRIs to monitor small residual tumor, some facial paralysis, No Balance Issues

carriekartman

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Re: OSIA OSI300 Implant
« Reply #4 on: September 16, 2024, 10:42:53 pm »
Good luck! I too really wanted the OSIA, but my Head and Neck guy just showed me scans of the shadow they cast, and it's huge. So I understand it's a no.  I have been trialing Cros aids for months now, and am unimpressed.  The Cros makes everything louder, but it gives little to no benefit in bringing a speaker's words out of the background noise. A truck driving by, or a chair scraping the floor is jarringly loud, but I still can't make out what is said in a meeting, classroom or restaurant. With a quiet setting, and 1-3 people I don't even use the Cros, I hear better without it.  I wish we had better options.

DanFouratt

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Re: OSIA OSI300 Implant
« Reply #5 on: September 18, 2024, 05:14:00 pm »
Has anyone looked to to Cochlear implants.  There is a webinar in the library by Dr. Cunningham (Duke-July 8/1/2023) where he goes over the hearing options.  I attended it and found it interesting. There is no mention of OSIA but the other options are reviewed.
Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm

DanFouratt

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Re: OSIA OSI300 Implant
« Reply #6 on: September 18, 2024, 05:17:43 pm »
 Now I see OASI is a Cochlear implant.  I was tested for Cochlear implants by my ENT and I did not qualify for two reasons, my hearing was "too good" and I was too happy. My ENT was not concerned with shadowing. I am testing again in a year.
Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm