Author Topic: Tinnitus Suddenly Worse  (Read 1133 times)

Jordybutt

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Tinnitus Suddenly Worse
« on: October 19, 2024, 03:12:35 am »
Hi all.

It has been just over 2 years since AN surgery removal 87%. This past few weeks tinnitus has struck me roaringly worse and with dizzy spells. I can’t understand it. Does anyone have anything to add?

Jordy
Diagnosed 3cm AN Right Side 31/10/2022
Retrosigmoid Approach 04/01/2023
13% Remaining

donjehle

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Re: Tinnitus Suddenly Worse
« Reply #1 on: October 31, 2024, 04:33:53 pm »
Hi Jordy!

Welcome back to the ANA Forums!  I wish I could help you regarding the tinnitus and the dizzy spells.  But can you share what the last two years have been like otherwise?  You did such an excellent job sharing your experience on these forums.

I hope the tinnitus dies back down soon.
Don
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

UkulelesAreAwesome

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Re: Tinnitus Suddenly Worse
« Reply #2 on: October 31, 2024, 07:19:00 pm »
Hi Jordy. It's been 2 years since I had gamma knife. Some days my tinnitus is like a loud roar. Other days it's like a click or chirp. Some days it bothers me. I haven't figured out why it fluctuates.

mwatto

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Re: Tinnitus Suddenly Worse
« Reply #3 on: October 31, 2024, 10:55:51 pm »
I used to have tinnitus - I feel its a few things that aggravate it and I talked this through a few years back with an audiologist. Firstly blood pressure, virus exposure, certain ototoxic medications even NSAIDS can, sleep disorders, high histamine diet, ageing and hearing loss, hormonal fluctuations. Melatonin helped me somewhat and reducing stress. Magnesium seemed to help and when it was at its worst 1mg valium before bed or full spectrum CBD/CBN (just saying what helped me) maybe as they are muscle relaxants. White noise also helps. Perhaps see an audiologist for more insights.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

DanFouratt

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Re: Tinnitus Suddenly Worse
« Reply #4 on: November 01, 2024, 05:07:17 pm »
Michele,

When you say you used to have tinnitus, does that mean it is gone now?

Dan
Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm

mwatto

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Re: Tinnitus Suddenly Worse
« Reply #5 on: November 05, 2024, 07:40:38 pm »
Hi Dan yes I never experienced much tinnitus (years ago had pulsitile tinnitus maybe a sign of the AN). I did get some tinnitus after the rna Vx a few years back and after Covid too but it went away again. I am unaware of it. I take melatonin which may help plus I do a lot of destressing techniques such as the free Relax breathing exercise on Calm app for example. I also keep my blood pressure in normal range. At night I use the 737 cabin noise on Spotify as my white noise and listen to calming music all day. As I sit here now there is a very soft static sound in my ear. It doesnt bother me and unsure if that is tinnitus? My audiology report says I am at around 87% hearing in that ear still...but next report is in Feb. She said important to keep earwax down with eardrops and maybe a clean with an audiologist - which is helpful.  I still get stabbing ear pain at times if I lie on that side too long though. Thyroid and jaw misalignment can also cause tinnitus- I now wear a dental guard at night as I was clenching.
« Last Edit: November 07, 2024, 07:48:46 pm by mwatto »
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

DanFouratt

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Re: Tinnitus Suddenly Worse
« Reply #6 on: November 07, 2024, 03:48:07 pm »
Jordy,

Sorry I high jacked the stream, with my question to Michelle.  My tinnitus has been consistent since it first presented itself. It has not changed.  It did get a little worse after CK but went back to "normal".  My has always been a bit on the loud side.  I wish I had an answer.  I will look in to what Michelle said.  My sister has tinnitus and uses some of the same things Michelle mentions.  They will probably help us.

Good Luck,

Dan
Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm