Author Topic: Looking for a Neurologist in the Boston area  (Read 154 times)

mountaingirl

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Looking for a Neurologist in the Boston area
« on: November 21, 2024, 03:23:05 pm »
I am looking for a neurologist in the Boston area that can help with post acoustic neuroma nerve issues. Specifically, the trigeminal nerve. The nerve is constantly in pain and I am unable to take the drug used for nerve pain. Any help would be greatly appreciated.

mwatto

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Re: Looking for a Neurologist in the Boston area
« Reply #1 on: November 21, 2024, 08:02:30 pm »
Hi I wanted to reply as I have experienced this past 6 years. Much to my surprise an MRI revealed that my trigeminal nerve was not affected by the AN. The ear and back of eye and face pain was TMJ! Wearing a dental mouth gurad has helped so much. Also full spectrum CBN at night for sleep and nerve pain. This was all I took for pain- tho I do still rub bit of Voltaren over that joint at times. I also use a face roller now at night- gently massage the area.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

Director

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Re: Looking for a Neurologist in the Boston area
« Reply #2 on: November 22, 2024, 08:35:36 am »
Dear mountaingirl,

The Facial Pain Association has a searchable healthcare directory that may be helpful for you.  Visit https://www.facepain.org/ and go to "find a doctor."

Best regards,

The ANA Team

windingshores

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Re: Looking for a Neurologist in the Boston area
« Reply #3 on: Today at 10:21:15 am »
I am in the Boston area. It can be hard to get into an MD.  You could try Mass. Eye and Ear since this is the result of surgery for an an.an.

MGH has a facial pain clinic  https://www.massgeneral.org/neuroscience/treatments-and-services/facial-pain-clinic