Author Topic: Do my symptoms sound familiar - going crazy waiting  (Read 412 times)

Bigkenny1975

  • Newbie
  • *
  • Posts: 2
Do my symptoms sound familiar - going crazy waiting
« on: January 06, 2025, 02:56:46 am »
I'm new here and I've not been diagnosed, I have an MRI with contrast booked for next Tuesday. Not looking for you to diagnose as I know the symptoms could be many things but I wanted to check if anyone had similar symptoms to me prior to diagnosis.

I'm 49 (m) and I've had hearing loss for years, it's in both ears but significantly worse in my left. I have also experienced a blocked feeling in my left ear frequently, sometimes lasting days, I always thought it was water in my ear and it eventually cleared.

In the last few months I've started experiencing a drooling sensation from the left side of my mouth, almost never any drool there though. I also have a patch on my left cheek that feels numb/tight. These all come and go. My left eyelid also seems to be drooping as does the corner of my mouth

A few times when I have been shopping I got dizzy spells, kind of hard to explain what they felt like, although one time I looked at a poster and it looked like it was moving. I also get headaches frequently and occasionally migraines.

All this led me to a GP, who referred me to a neurologist. She did a load of tests and confirmed I wasn't imagining it. She has requested an MRI to check for Acoustic Neuroma.

Since that appointment three weeks ago my dizzy spells have increased to several times a day, especially when bending or moving my head suddenly. The numbness also seems to be happening for longer periods and more frequently. I am not sure if the worsening symptoms are stress related as I wait for the MRI though.

I have a couple of other symptoms - tremor, eye watering etc but these don't bother me and I have already created a big post.

Do these sound familiar?

BertH

  • Administrator
  • New Member
  • *****
  • Posts: 7
Re: Do my symptoms sound familiar - going crazy waiting
« Reply #1 on: January 06, 2025, 12:33:16 pm »
Welcome to the crowd no one wants to be in. Those sound like AN symptoms; most of the patients (and myself) have had most, or not all of the same symptoms. Your doctor may tell you headaches are not a symptom, but a lot of us disagree. I had migraines regularly before diagnosis and removal- none since. My retrosigmoid surgery was in February of 2009.
I'm one of the moderators here, post op for a 3.5 CM acoustic neuroma. Board member 2011 - 2020, Denver area supportbgroup leader 2010-2017. If you want to talk, let me know. I'll give you my cell #
Bert
Full member since 2010

Bigkenny1975

  • Newbie
  • *
  • Posts: 2
Re: Do my symptoms sound familiar - going crazy waiting
« Reply #2 on: January 06, 2025, 01:10:13 pm »
Welcome to the crowd no one wants to be in. Those sound like AN symptoms; most of the patients (and myself) have had most, or not all of the same symptoms. Your doctor may tell you headaches are not a symptom, but a lot of us disagree. I had migraines regularly before diagnosis and removal- none since. My retrosigmoid surgery was in February of 2009.
I'm one of the moderators here, post op for a 3.5 CM acoustic neuroma. Board member 2011 - 2020, Denver area supportbgroup leader 2010-2017. If you want to talk, let me know. I'll give you my cell #

Thanks for the offer to talk, I'm in the UK so time difference and cost probably rule it out but it means a lot. I'll be ok, not long to wait now, I think it is not knowing that I am finding hard. IF it is AN then at least I can focus on what to do

BertH

  • Administrator
  • New Member
  • *****
  • Posts: 7
Re: Do my symptoms sound familiar - going crazy waiting
« Reply #3 on: January 07, 2025, 10:06:43 am »
It's a relief to know the reason behind the symptoms. I'm glad to help any way I can. Keep us posted, please!
Bert
Full member since 2010