Author Topic: 6 months after Cyberknife  (Read 1211 times)

Jennifer1969

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6 months after Cyberknife
« on: March 05, 2025, 09:23:41 pm »
Hi All,

I had CyberKnife six months ago and things were going very well until about a week and a half ago. I lost a lot of my hearing and started on DEXAMethasone and then the tinnitus started. Most of my hearing has returned and I am now off of the DEXAMethasone but the tinnitus is just louder and louder and relentless. I read that it can take a few days for the steroids to leave your body to bring your nerves back, but I’m really afraid this is going to be forever. It sounds like there’s a wind storm in my ear and it will not stop. There is absolutely no relief.  I do have my MRI on Friday so I’m hoping to find out more. I’m just wondering if anybody else has experienced this and what was their outcome?
Jennifer

donjehle

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Re: 6 months after Cyberknife
« Reply #1 on: March 15, 2025, 05:16:00 pm »
Hi Jennifer1969,

What did you find out from your MRI?  And what is the latest with your tinnitus?
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.