Author Topic: Pressure Changes where tumor was- is it growing again?  (Read 1309 times)

Yttrium

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Pressure Changes where tumor was- is it growing again?
« on: March 17, 2025, 09:52:48 am »
Hi guys, 

I had my tumor removed 8 months ago by Dr. Schwartz and Dr. Friedman. It was 3.0 cm x 3.1 cm so they did a translabyrinthine approach which resulted in complete hearing loss. It was considered a subtotal resection, but just barely since they got almost all of it. They said my MRI 4 months post-op looked good and didn't seem worried. Since the surgery though, I have felt increases of pressure where the tumor was on the right side and I feel overly paranoid that it is growing back. Do you think that is just a side effect of the hearing loss or is it not normal to feel more pressure changes. Looking to hear if anyone has experienced anything similar/ if it indicated regrowth or not.

Best,
Emi

donjehle

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Re: Pressure Changes where tumor was- is it growing again?
« Reply #1 on: March 19, 2025, 04:26:38 pm »
Hi Emi,

I have not had surgery so I do not have the same experience you have had.  However, sometimes people feel like a tumor is growing back when it really is not.  So, I don't want you to be anxious and worried about something that may not be the case.

Will you have another MRI soon?  The MRI can show if there is any change since your 4-month post-op MRI.

Best wishes on your continued recovery!
Don
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.