Author Topic: Mayo for Treatment/s  (Read 11646 times)

Kamama62

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Mayo for Treatment/s
« on: May 15, 2025, 09:36:53 AM »
Has anyone here had treatment done with Mayo?
July 2022-Diagnosed with 6mm x 4mm x 5mm AN
March 2024-8mm x 4mm x 5mm
March 2025-1cm x 7.5mm
MRI pending October 2025

bfoley

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Re: Mayo for Treatment/s
« Reply #1 on: May 16, 2025, 03:33:57 AM »
Greetings Kamama62-

I was treated at Mayo in MN. Started with Gamma in 2019 - deemed to be a failure (part died party kept growing) so I had translab surgery in 2023.  Let me know what questions you have!

hypothesisgrumpy

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Re: Mayo for Treatment/s
« Reply #2 on: July 08, 2025, 02:08:16 AM »
Greetings Kamama62-

I was treated at Mayo in MN. Started with Gamma in 2019 - deemed to be a failure (part died party kept growing) so I had translab surgery in 2023.  Let me know what questions you have!
After the Gamma treatment didn’t fully succeed, how did they help you transition into surgery—was it a smooth process?

bfoley

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Re: Mayo for Treatment/s
« Reply #3 on: October 16, 2025, 04:49:44 AM »
Sorry for the delayed response hypothesisgrumpy.  Just seeing this.  I would have to say I did not require help with the transition in the direction of care.  After learning that the part near my brain stem was continuing to grow, I knew it had to come out.  While they supplied materials regarding surgery and aftercare, I leaned more on this website for support in what to expect and how to prepare. 

There are minor after effects of surgery, but nothing major.  Eventually is has become a new normal. And the best part is that since my check up this year, they said I don't have to have another visit or MRI for 5 years! 

Lesliereynolds

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Re: Mayo for Treatment/s
« Reply #4 on: March 20, 2026, 05:29:57 PM »
Yes I chose to have rectosigmoid approach surgery with Michael Link, MD and team. I traveled from Michigan.  I chose Mayo clinic because I trusted them, their data was very good as far as outcome.  I am a medical doctor and pediatrician so i realize that the speed for me to digest the information and make a decision was likely fast compared to someone without medical experience. I hope that this forum will help you as i found it to be a valuable resource.  Mayo Clinic in Rochester had what I was looking for: an experienced team, neuro intensive care unit for aftercare during the critical first 24 hours, and always answered my questions honestly, even tough ones. 
The surgery was hard on my body and recovery has been slow but steady.  I advise a team at your home to include a doctor of osteopathy  and physical therapist skilled in craniosacral therapy and brain rehab, an audiologist, and neuro optometrist (glasses with prisms have completely stopped the jiggling when moving my head from side to side and taught my brain a new relationship with gravity). I am now 8 mos. post op.   As of this month, a new skill is keeping balance with my eyes closed and stepping backward, so I have returned to dance lessons and joy.  Surgery is shocking and painful, recovery is slow and steady, accepting being the BEST in this body is a long path.  Contact me if you want to ask questions.