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Author Topic: Give Me A Minute  (Read 9805 times)

nancyann

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Give Me A Minute
« on: December 16, 2006, 05:51:26 pm »

                                                                                      GIVE ME A MINUTE

                                               
                                                            Give me a minute
                                                              so I can hear
                                                               the words you say
                                                              over the tinnitus in my ear

                                                             Give me a minute
                                                               so I can see
                                                                the grace and balance
                                                               hiding inside of me

                                                              Give me a minute
                                                                so I can find
                                                                  the beautiful face
                                                                 I left behind.
                                                   

                                          Please.....
                                                        just.....
                                                               Give me a minute.....

Went to the bank, the mall, then the car repair I've been going to for 10 years... hadn't been there since before the surgery...No one recognized me....
                                           
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Patti UT

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Re: Give Me A Minute
« Reply #1 on: December 16, 2006, 06:14:29 pm »
Nancy,

    :( so sorry. Made you feel bad I'm sure.  Your poem says it all. thanks for sharing


Patti UT
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2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

Obita

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Re: Give Me A Minute
« Reply #2 on: December 16, 2006, 08:45:34 pm »
Nancyann:

I am having coffee with an AN friend tomorrow.  She has facial paralysis.  She has made me realize something:

The most beautiful people in the world have crooked smiles.

Kathy
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Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

nancyann

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Re: Give Me A Minute
« Reply #3 on: December 16, 2006, 08:52:48 pm »
Hi Kathy,

 Can you ask her what she plans on doing about it ????   How long has she had facial paralysis >>

I'll have a repeat EMG in Jan., So , if more nerve fibers are firing... It'll be a 'watch & wait' ( kinda ass-backward as it's post op !!  lol)
I hear you Kathy,  it's just so hard sometimes girlfriend....

Nancy

PS   Thanks Patti, UT   also



Logged
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Lorenzo

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Re: Give Me A Minute
« Reply #4 on: December 17, 2006, 12:24:06 am »
Hi Nancy,
Oh dear, not a nice thing to happen... Thanks for sharing the poem.  :'(  :)
Lorenzo
« Last Edit: December 17, 2006, 06:36:21 am by Lorenzo »
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daylilly

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Re: Give Me A Minute
« Reply #5 on: December 17, 2006, 06:34:12 am »


          Hi Nancy,
          Tear in eye. Know how that feels.  Sue
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3 cm AN
translab July 2005, Emory, Dr. Mattox, Dr. Olson
gold weight, Dr. Wojno
left-sided deaf
left-sided facial paralysis

Obita

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Re: Give Me A Minute
« Reply #6 on: December 17, 2006, 07:16:24 am »
My friend Nancy:

She had surgery in mid '05 (they had to sever her facial nerve to get the tumor out-her tumor was huge).  She had hypoglossal-facial nerve anastamosis done in July.  Her surgeon said it will take at least 6 months to know if the surgery worked.

Hang in there Nancy,  Kathy
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Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

redgrl

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Re: Give Me A Minute
« Reply #7 on: December 17, 2006, 02:42:17 pm »
I know how you feel. I have it on the left side. People are always looking at me. Especially kids. It makes me sad when people who i have known for years don't recognize me. I have put on alot of weight during this hole AN process to so that didn't help. Anywho keep your smilin its all good!  ;)
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4 cm left side AN. Translab Sept 20th 06 at virginia mason w/Dr. Backous & Dr. Nussbaum. Second surgery Oct 15th 06 to repair CFS leak.

nancyann

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Re: Give Me A Minute
« Reply #8 on: December 17, 2006, 02:51:00 pm »
Hi all:


            I believe my best xmas gift is:



                                                                                 HAVING ALL OF YOU FOR SUPPORT  !!!!!



            My AN friends + music = HEALING

                                                                                  THANK - YOU !!!!!!!!!!
Logged
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

matti

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Re: Give Me A Minute
« Reply #9 on: December 17, 2006, 05:44:12 pm »
Nancy,

I understand your pain and wish I could be there to give you a hug.

cheryl
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3.5 cm  - left side  Single sided deafness 
Middle Fossa Approach - California Ear Institute at Stanford - July 1998
Dr. Joseph Roberson and Dr. Gary Steinberg
Life is great at 50

Derek

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Re: Give Me A Minute
« Reply #10 on: December 17, 2006, 06:24:28 pm »
Nancy

Your sad account has left me feeling very humble. You have an obvious inner beauty and strength of character that will eventually see you through this low period...and you will 'get by with a little help from your AN friends'!

Derek
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Residing UK. In 'watch & wait' since diagnosis in March 2002 with right side AN. Initially sized at 2.5cm and now self reduced to 1.3cm.
All symptoms have abated except impaired hearing on affected side which is not a problem for me.

flier58

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Re: Give Me A Minute
« Reply #11 on: December 17, 2006, 06:33:48 pm »
Nancy,
What a poignant poem.  My heart goes out to you.   There is an inner beauty and strenght in you which transpires thru your words. Remember, you have a lot of friends here who think your smile is beautiful just like your soul.
Flier58
 
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Jim Scott

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Re: Give Me A Minute
« Reply #12 on: December 18, 2006, 01:12:30 pm »
Nancy:

O.K.,  I'll admit it.  Your poem brought tears to my eyes.  Thank you for both the poem and for sharing your plucky attitude with us.

Folks like you are not only inspirational to those in similar AN post-op situations but you help those of us who had fewer post-op complications to really appreciate our blessings.  I wish you all the best in the weeks to come and I'll pray for your total recovery.

Merry Christmas to you.  :)


Jim
« Last Edit: March 29, 2007, 03:45:40 pm by Jim Scott »
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

nancyann

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Re: Give Me A Minute
« Reply #13 on: December 18, 2006, 01:53:02 pm »
Thank-you everyone again, for all your support.

Well, today's a much better day...I was feeling so peaceful all day, even at work, till....
I keep forgetting to get discharge info, I spilt water & forgot to wipe it up.....so

While I  finally WAS wiping up the water, a coworker was copying, I said to her:
" My memory is so bad today, I keep forgetting things "
co-worker: "That's okay, you're entitled.."
I said "damn straight, I'm going to milk this TUNA for all it's worth !!!" (of course I meant 'tumor')

We laughed for about 5 minutes !!!!   .........

LIFE DOES GO ON !!!!!!!  (if only I can get my mouth to work right !!!!   lol)

Thank you all again    XOXOXOXO    Nancy
Logged
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

nancyann

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Re: Give Me A Minute
« Reply #14 on: March 18, 2007, 01:48:51 pm »
Quote from: nancyann on December 16, 2006, 05:51:26 pm

                                                                                      GIVE ME A MINUTE

                                               
                                                            Give me a minute
                                                              so I can hear
                                                               the words you say
                                                              over the tinnitus in my ear

                                                             Give me a minute
                                                               so I can see
                                                                the grace and balance
                                                               hiding inside of me

                                                              Give me a minute
                                                                so I can find
                                                                  the beautiful face
                                                                 I left behind.
                                                   

                                          Please.....
                                                        just.....
                                                               Give me a minute.....

Went to the bank, the mall, then the car repair I've been going to for 10 years... hadn't been there since before the surgery...No one recognized me....
                                           
  I feel I've come so far from this moment... the journey is far from over but I thank-you all for being here....
Logged
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis
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