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Author Topic: GOOD NEWS...I FINALLY HAVE A LITTLE MOVEMENT!!!  (Read 12049 times)

Denise

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GOOD NEWS...I FINALLY HAVE A LITTLE MOVEMENT!!!
« on: February 02, 2007, 09:58:11 am »
I am so excited!! :D

I had the 12/7 surgery last August.  Tomorrow will be my six month anniversary of the nerve switch surgery.  In December, I could feel a "tugging" type motion inside my face with no outward visible signs of movement when i moved my tongue.  Well last night my son said he saw a little twitching by my upper lip.

I can't begin to tell you how excited I am.  Finally, finally something is going my way!!  I have been patiently and impatiently waiting for this for a long time, as some of you know, this has been a long hard journey for me.

 I was going to wait until the Sat. nite phone call to tell you all, but, I am afraid I might forget to participate in the phone call.

Anyway, just wanted to let you guys/gals know.

Denise  :D :D
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4+ cm, left side
translab 5/9/2005
CSF leak repair 6/23/2005
platinum weight in left eye 11/9/05
12/7 nerve switch 8/3/06
Univ. of MN Drs. Levine/Haines

ppearl214

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Re: GOOD NEWS...I FINALLY HAVE A LITTLE MOVEMENT!!!
« Reply #1 on: February 02, 2007, 10:04:54 am »
*sits at office desk... takes fingers off keyboard, raises both hands into the air, with pointer finger up, stands up from desk and does Snoopy Happy Dance!* :)

Denise... my goodness... you have waited SO long for this!!!!!!!  Congrats! Congrats!  :-*

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

amymeri

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Re: GOOD NEWS...I FINALLY HAVE A LITTLE MOVEMENT!!!
« Reply #2 on: February 02, 2007, 10:26:56 am »
 ;D ;D ;D ;D ;D

Jumping for Joy!!!

I am SO happy for you!

Amy
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Amy

4 cm right AN removed restrosigmoid 4/13/06
Partial facial paralysis, SSD and trigeminal numbness for now

nancyann

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Re: GOOD NEWS...I FINALLY HAVE A LITTLE MOVEMENT!!!
« Reply #3 on: February 02, 2007, 11:17:26 am »

 GREAT NEWS DENISE !!!!!!!!

 THE 7/12 JUMP TOOK...  YEEEAAAAHH !!!!

 HOPE A LITTLE OF THAT TWITCH RUBS OFF ON ME !!!!!!!

 HAPPY THOUGHTS ALWAYS,   NANCY
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Joef

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Re: GOOD NEWS...I FINALLY HAVE A LITTLE MOVEMENT!!!
« Reply #4 on: February 02, 2007, 12:08:39 pm »
Yea! .. I know the "feeling!" .. in the last few months I can move lots of muscles I could not before!! (I'm 15+ months)

The lower lip is the last part that still seems "dead" .. is there any rime or reason to the order of which muscles come back??
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

nancyann

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Re: GOOD NEWS...I FINALLY HAVE A LITTLE MOVEMENT!!!
« Reply #5 on: February 02, 2007, 12:21:08 pm »
That's weird Joef:

My neurologist told me the 1st area to come back with nerve regeneration IS the chin area,
the upper cheek & eye area is the last.

Looks like your body is working backwards, but hey, as long as it's working !!!!!

Wonder why your chin area didn't come back first ??

Take care, Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

redgrl

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Re: GOOD NEWS...I FINALLY HAVE A LITTLE MOVEMENT!!!
« Reply #6 on: February 02, 2007, 05:33:59 pm »
YEAH FOR DENISE!!!!!!!!!!!!! ;D
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4 cm left side AN. Translab Sept 20th 06 at virginia mason w/Dr. Backous & Dr. Nussbaum. Second surgery Oct 15th 06 to repair CFS leak.

Jeanlea

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Re: GOOD NEWS...I FINALLY HAVE A LITTLE MOVEMENT!!!
« Reply #7 on: February 02, 2007, 07:53:43 pm »
Yea, Denise!  It is so exciting to see any movement in our faces.  Glad the 7/12 worked for you.

Jean
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translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

cookiesecond

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Re: GOOD NEWS...I FINALLY HAVE A LITTLE MOVEMENT!!!
« Reply #8 on: February 02, 2007, 11:52:20 pm »
Denise,
I am so happy for you!!! It is great share good news. Keep us posted.
Take are,
Lynn
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Battyp

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Re: GOOD NEWS...I FINALLY HAVE A LITTLE MOVEMENT!!!
« Reply #9 on: February 03, 2007, 09:11:20 pm »
YEAH DENISE...Doing the happy dance w/ you!
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matti

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Re: GOOD NEWS...I FINALLY HAVE A LITTLE MOVEMENT!!!
« Reply #10 on: February 05, 2007, 10:56:26 am »
AWESOME news Denise ;D   I'll  never forget the day I was able to slightly raise the corner of my mouth, it was the most incredible feeling and the turning point in my recovery.

Doing the happy dance with batty ;D

hugs,
Cheryl
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3.5 cm  - left side  Single sided deafness 
Middle Fossa Approach - California Ear Institute at Stanford - July 1998
Dr. Joseph Roberson and Dr. Gary Steinberg
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Obita

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Re: GOOD NEWS...I FINALLY HAVE A LITTLE MOVEMENT!!!
« Reply #11 on: February 05, 2007, 07:24:20 pm »
I TOLD YOU I SAW YOUR UPPER LIP TWITCH!!!  Happy dance time is right!!!

Say hi to Dr. Levine!!

Your big sis, Kathy
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Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

Gennysmom

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Re: GOOD NEWS...I FINALLY HAVE A LITTLE MOVEMENT!!!
« Reply #12 on: February 07, 2007, 06:53:07 pm »
Denise, as you know I've been busy on the other thing, so I just saw this.  Yea!!!!!!!!  Congratulations!!!!!!!!!!  So cool!!!!!!!

And, yes, you did forget to call!   :D
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3.1cm x 2.0cm x 2.1cm rt AN Translab 7/5/06
CSF leak 7/17/06 fixed by 8 day lumbar drain
Dr. Backous, Virgina Mason Seattle
12/26/07 started wearing TransEar

shoegirl

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Re: GOOD NEWS...I FINALLY HAVE A LITTLE MOVEMENT!!!
« Reply #13 on: February 08, 2007, 05:08:01 pm »
Yeah! Denise!  Congratulations! :)  Hope this is a sign of more good things to come for you!
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left side 2.0cm x 1.3cm  
Cyberknife - 12/2005
The Barrow Institute, Phoenix, AZ
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