« previous next »
Pages: [1]

Author Topic: 9 months since CK  (Read 4167 times)

marystro

  • Sr. Member
  • ****
  • Posts: 327
9 months since CK
« on: May 03, 2007, 09:19:04 pm »
Hi everyone,

Got my 2nd MRI in August scheduled today.  Wow!!  Time really flies with AN.  Can't believe it's already 9 months since CK.  I am doing fine.  The nerve pain is now all gone.  Little numbness of the AN side of the face.  Then just the Big "T" - EEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEE......  That's about it.

Hope my friends on this board are all doing well or still thinking positively.  Truly, having an AN is not the end of the world.  Life is good if we want to make it.

Mary
Logged
Mary
July 2006 - 22 x 18 x 20 mm
August 2006 - CK at Stanford by Dr. Chang/Dr. Soltys
February 2008 - 19 x 15 x 20 mm and stable
May 2009 - 17 x 14 x 18 mm

mellowrama

  • Full Member
  • ***
  • Posts: 172
Re: 9 months since CK
« Reply #1 on: May 22, 2007, 03:25:19 pm »
Hi Mary,

I'm so glad to hear your pain is going away! Sounds like you're doing great, except for the Teeeeeeeeeeee
My numb/tingleness is still a come and go...scheduled for my second MRI on the 30th...it will be post 8 months after CK.

Yes, I'm thinking positive!
Melinda
Logged
22mm x 19mm x 12mm CyberKnife  9/25/2006 BNI Dr. Daspit/Dr. Smith/Dr. Brachman
Failed radiation - regrowth to 2.6cm 
Translab Surgery w/ House Docs 8/26/2009 Dr. Friedman, Dr. Schwartz, SSD, tinnitus. 
Baha surgery with Dr. Baker in OKC nov 2009
Baha revision surgery by Dr. Horn in ABQ 8/2011

ppearl214

  • Administrator
  • Hero Member
  • *****
  • Posts: 7451
  • ANA Forum Policewoman - PBW Cursed Cruise Director
Re: 9 months since CK
« Reply #2 on: May 22, 2007, 05:44:17 pm »
Mary, what the heck do I say? First, you've been missed... :-*  2nd, I am SOOOOOOOOOOOOOOOOOOOOOOO tickled you are doing so great (join the club, dahlink!).  I'm thrilled to hear that your pain is/has subsided and you are doing fab! Send me a postcard from your next overseas journey and sending you all huggles and fantastic wishes for continued wellness.

Phyl
Logged
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

pearchica

  • Sr. Member
  • ****
  • Posts: 320
  • Hey!
    • Political Chic Chat- an Independent Political Cocktail for Women
Re: 9 months since CK
« Reply #3 on: May 29, 2007, 07:15:18 pm »
Yeah Mary- glad to know all is getting better- take care, Annie
Logged
Annie MMM MY Shwannoma (sung to the son My Sharona by the Knack-1979)
I have a TUMAH (Arnold Schwarzenegger accent) 2.4 x 2.2 x 1.9CM. CK Treatment 2/7-2/9/07, Stanford- Dr. Stephen Chang, Dr. Scott Soltys

marystro

  • Sr. Member
  • ****
  • Posts: 327
Re: 9 months since CK
« Reply #4 on: May 29, 2007, 08:05:53 pm »
Howdy everyone!!  Sorry about not being on the board lately...  Really missed you guys.   :(  Just been so busy with everything else.  Having a 9-year old only child can totally consume you!?#(&%)  Someone please tell me teenagers are worse...   ::) ::)  Just kidding!!  ;)

Anywhoooo..  Just came back from another biz trip...  Get this, I had to fly to Dubai from Mumbai (Bombay) to get to Hong Kong.  Not really enviable to fly so many hours just for a 36 hours on the ground!  Yikes!!! >:(

I am hangin' in here however.  Still have some numbness/tingling once a while.  Big EEEEEEEEEEEE.  Not too bad...

How are you Melinda?  Phyl?  Mark?  BevM? and others?

Mary

Logged
Mary
July 2006 - 22 x 18 x 20 mm
August 2006 - CK at Stanford by Dr. Chang/Dr. Soltys
February 2008 - 19 x 15 x 20 mm and stable
May 2009 - 17 x 14 x 18 mm

mellowrama

  • Full Member
  • ***
  • Posts: 172
Re: 9 months since CK
« Reply #5 on: June 01, 2007, 05:21:22 pm »
Hello Mary and all,

I just got back my MRI results (9 months)...this is what the notes are...my doc hasn't seen the results yet.  I'm not sure it sounds good...

"Impression:  Persistent enhancing left cp angle mass is stable to slightly progressive as compared to the 5/31/06 exam, presently 2.3x1.9x1.6 cm in size.   

Possibilities to include acoustic schwannoma versus meningioma.  Consider ct evaluation ifthis has not been prior performed.  If this demonstaretes higher attenuation on ct, meningioma would be considered more likely."

Any ideas on what this means?  I think I'll try to post it to Medberry on CK board too.
melinda
Logged
22mm x 19mm x 12mm CyberKnife  9/25/2006 BNI Dr. Daspit/Dr. Smith/Dr. Brachman
Failed radiation - regrowth to 2.6cm 
Translab Surgery w/ House Docs 8/26/2009 Dr. Friedman, Dr. Schwartz, SSD, tinnitus. 
Baha surgery with Dr. Baker in OKC nov 2009
Baha revision surgery by Dr. Horn in ABQ 8/2011

marystro

  • Sr. Member
  • ****
  • Posts: 327
Re: 9 months since CK
« Reply #6 on: June 07, 2007, 08:56:50 pm »
Hi Melinda,

Did you get the doctor's report yet?  The suspense is killing me.  Althought I know you will be fine... ;)

Mary
Logged
Mary
July 2006 - 22 x 18 x 20 mm
August 2006 - CK at Stanford by Dr. Chang/Dr. Soltys
February 2008 - 19 x 15 x 20 mm and stable
May 2009 - 17 x 14 x 18 mm

mellowrama

  • Full Member
  • ***
  • Posts: 172
Re: 9 months since CK
« Reply #7 on: June 18, 2007, 12:46:41 am »
Hi Mary,

Yes, his nurse finally called me and they reported no growth...;-) 

thanks, m
Logged
22mm x 19mm x 12mm CyberKnife  9/25/2006 BNI Dr. Daspit/Dr. Smith/Dr. Brachman
Failed radiation - regrowth to 2.6cm 
Translab Surgery w/ House Docs 8/26/2009 Dr. Friedman, Dr. Schwartz, SSD, tinnitus. 
Baha surgery with Dr. Baker in OKC nov 2009
Baha revision surgery by Dr. Horn in ABQ 8/2011

marystro

  • Sr. Member
  • ****
  • Posts: 327
Re: 9 months since CK
« Reply #8 on: June 18, 2007, 09:10:00 pm »
YEAH!!! ;D
Logged
Mary
July 2006 - 22 x 18 x 20 mm
August 2006 - CK at Stanford by Dr. Chang/Dr. Soltys
February 2008 - 19 x 15 x 20 mm and stable
May 2009 - 17 x 14 x 18 mm
Pages: [1]
« previous next »