Author Topic: Age of AN patients: UPDATE with data and names thru post 126 p 9  (Read 36972 times)

marystro

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Re: Age of AN patients: UPDATE with data so far
« Reply #60 on: May 30, 2007, 08:24:15 am »
Hi Mark,

Yes, you did call it a "garden variety" AN.  That is the only comment I can remember precisely as the rest of them are a blurr when I was so devastated then.  Your comment was the "calmer"!!  I guess and hope the "garden" is dying now as I can feel lots of "activiites" going on in there....

My last trip was not a "breeze" since I had to go from San Diego through LA to Singapore to Bombay all in 1 "sitting" or "sleeping"...  Then one night in Bombay followed by Bombay to Dubai to Hong Kong - also a 1 "sitting"/"sleeping" trip.  One night in Hong Kong.  Then came home.  A 6-day trip!!  Don't envy me please!!!  It was ugly!!!   :P  SF to Fort L. is much preferred  ;).   Hope to cut down travel somewhat...

BTW, we should start planning another west coast get together...  It was fun last time... :D :D

Mary
« Last Edit: May 30, 2007, 08:35:18 am by marystro »
Mary
July 2006 - 22 x 18 x 20 mm
August 2006 - CK at Stanford by Dr. Chang/Dr. Soltys
February 2008 - 19 x 15 x 20 mm and stable
May 2009 - 17 x 14 x 18 mm

lthompson

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Re: Age of AN patients: UPDATE with data so far
« Reply #61 on: May 30, 2007, 09:33:56 am »
Hi, diagnosed at age 40 (8 mm) still wait and watch.   No growth in 3 1/2 years.

zjane

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Re: Age of AN patients: UPDATE with data so far
« Reply #62 on: May 30, 2007, 10:26:49 am »
Dx @ 32 1cm
FSR @ 33 1.4cm
18 mo. later we have determined that FSR had failed

So Surgery sometime this summer @ age 35 for 2.1cm / Translab
right side AN found Nov 04 1.0x0.7
FSR Cabrini - Dr. Lederman 5 sessions Nov 05 1.4x1.0
Translab Hinsdale Hospital - Dr. Wiet / Dr. Kazan Jun 07 2.3x1.2 (CSF leak, lumbar drain)

2yr Post-Op MRI Apr 09 Clean

targa72e

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Re: Age of AN patients: UPDATE with data so far
« Reply #63 on: May 30, 2007, 09:57:17 pm »
I was diagnosised at 39 with a 4mmx4mm AN, Watch and wait for 2 years tomorrow.

john
5mm x 5mm watching and waiting

kristin

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Re: Age of AN patients: UPDATE with data so far
« Reply #64 on: May 30, 2007, 10:18:02 pm »
dx'd at age 28, surgery at age 29 for an 8 mm left AN
8 x 5 mm Left Acoustic Neuroma
Middle Fossa
House Ear Clinic
Dr. Derald Brackmann, Dr. William Hitselberger
April 14, 2005

"I have told you these things, so that in me you may have peace. In this world you will have troubles. But take heart! I have overcome the world." John 16:33

Brendalu

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Re: Age of AN patients: UPDATE with data so far
« Reply #65 on: May 31, 2007, 03:28:18 am »
54 when I got the "news", had 3.5 bugger ejected translab one and a half months later.  Just past my twenty-second month anniversary.
Brendalu
Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

chrissmom

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Re: Age of AN patients: UPDATE with data so far
« Reply #66 on: June 02, 2007, 08:42:03 pm »
Did you get Chris ? 

Age 21 and 5.3+ cm.

lori78

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Re: Age of AN patients: UPDATE with data so far
« Reply #67 on: June 02, 2007, 09:09:10 pm »
28, 3.5cm was told I had 'inner ear infections' and treated w antivert for a YEAR til the MRI.  FUN TIMES
Lori, Left AN,  2 translab surgeries and GK radiation, 3.5 cm x 3.5 cm, Dr. Singh Sahni and Drs Fred and Wayne Schia, Chippenham Johnston-Willis, Richmond, VA. Deaf in left, temp paralysis post surg 1/07

neal r. lyons

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Re: Age of AN patients: UPDATE with data so far
« Reply #68 on: June 03, 2007, 12:01:47 pm »
Age 60  Had MRI results suggesting AN r.side on May 4, 2007.  Initially tingling and light -headedness episode occurred on Feb.3, 2007  ( 2.6x2.8)       Very likely to schedule Translab surgery at House with Dr. Brackmann to take place this month  Neal

Initial diagnosis-Mild stroke (examined by non-neuro doctor)
AN 2.6X2.0X2.8 (right side)                                           June 22, 2007
House Ear Clinic/St. Vincent's Hospital@ Los Angeles, Ca.

Translabyrinthine(5 1/2 hr.):  Dr.Brackmann-neurotologist    Dr.Schwartz-neurosurgeon    Dr.Kutz-incision@stitches    Dr.Stefan-internist

TaylorsMom

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Re: Age of AN patients: UPDATE with data so far
« Reply #69 on: June 03, 2007, 12:29:16 pm »
     Taylor had a tough time just learning to read in about 1st grade.  It was much harder for her than for her older brother.  She would get so frustrated.  I asked her neuro surgeon if the tumor could have been affecting her then, causing her cognitive problems.  He said "before then" so we are sure hers had started to grow befor she ever started kindergarten.  Finding the right diagnosis sure explained a lot.

     Taylor's Mom

Catflower

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Re: Age of AN patients: UPDATE with data so far
« Reply #70 on: June 03, 2007, 02:14:48 pm »
Diagnosed at age 59 with suboccipital sugery at age 60, but I'm sure it was there for at least two years before I was diagnosed.

Omaschwannoma

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Re: Age of AN patients: UPDATE with data so far
« Reply #71 on: June 03, 2007, 02:41:35 pm »
Dx: 48 y.o. 1.3 cm AN
Tx: Surgery (suboccipital) in January, 2005
1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear

Kenn

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Re: Age of AN patients: UPDATE with data so far
« Reply #72 on: June 03, 2007, 07:25:58 pm »
Initial Hearing Loss - Age 49
MRI and Diagnosis - Age 51
Surgery (Translab at HEI 9/26/06) - Age 52 (Delayed due to HMO Issues)
Excellent Results
Translab - HEI 9/26/06 for 2cm Tumor
Dr. De la Cruz and Dr. Hitselberger
Excellent Results - Minor taste issues and barely noticeable eye issues.  Left side deafness of course.  It was all but gone anyway.

Kenn

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Re: Age of AN patients: UPDATE with data so far
« Reply #73 on: June 03, 2007, 07:52:20 pm »
Oops, forgot - 2 cm
Translab - HEI 9/26/06 for 2cm Tumor
Dr. De la Cruz and Dr. Hitselberger
Excellent Results - Minor taste issues and barely noticeable eye issues.  Left side deafness of course.  It was all but gone anyway.

jacobs

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Re: Age of AN patients: UPDATE with data so far
« Reply #74 on: June 03, 2007, 08:49:47 pm »

 Diagnosed age 38
 3.5cm tumor
 
Translab April 24,2006 3.5x2.5cm
Sunnybrook Hospital,Toronto.Dr.Chen&Dr.Perusmen
Left side facial paralysis,gold weight in eyelid &"deaf on the left"
now I'm a true canadian...EH?