Author Topic: I AM NEW  (Read 6766 times)

violet

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I AM NEW
« on: February 18, 2008, 03:20:17 pm »
 I AM 38 YEAR OLD,WOMAN. MY AN IS 1.4*0.6*0.7 CM ON THE RIGHT SIDE,BUT I HAVE SOME TROUBLE WHIT NERVUS FACIALIS ON THE LEFT SIDE.IS THERE ANYBODY WITH SAME PROBLEMS?

Kaybo

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Re: I AM NEW
« Reply #1 on: February 18, 2008, 03:40:58 pm »
Violet~
I am almost 38 & my tumor was on the right side -- does that count??

I can't say that I have the other issues, but glad you found this site -- I'm sure someone else can share something that will help you more.

Welcome!
K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Nancy Drew

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Re: I AM NEW
« Reply #2 on: July 23, 2008, 03:50:06 pm »
Violet,

Are you out there?  Please come back so we can help you.  Support is powerful.

Nancy
12/05 AN diagnosed left ear 4.5mm
06/08 6mm
Gamma Knife 10/21/08
1 year MRI  6.8mm x 5.5mm
2 year MRI  5.9mm x 4.9mm
3 year MRI  6.5mm x 6.0mm 
Slight Hearing Loss Post GK

Swedish Gamma Knife Center
Englewood, CO
Dr. Robert Feehs

Jim Scott

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Re: I AM NEW
« Reply #3 on: July 25, 2008, 12:15:20 pm »
Nancy:

This lady ('Violet') registered and posted a message five months ago, then never seemed to respond or return.  Odd, but it happens.  Although we have many 'regulars', these forums can be like a train station, with folks coming and going all the time.  Many seem to just pass through and never return, such as 'Violet'.  Some become inveterate posters (ahem) and some just 'drop in' occasionally, sometimes with many months in-between posts.  Everyone has their reasons and I don't question them.  We're just pleased to have as many members as we do (3200+) as well as a core of dedicated forumites who make the forums interesting, informative and fun. I appreciate all of them.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Nancy Drew

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Re: I AM NEW
« Reply #4 on: July 25, 2008, 01:57:58 pm »
Jim,

I always take lost dogs back to their owner if they have a tag.  I guess I was just trying to find Violet to bring her back here.  Makes sense what you said though.
Hopefully Violet is doing OK.

I had to look up INVETERATE: (in·vet·er·ate)  1. settled or confirmed in a habit, practice, feeling, or the like: an inveterate gambler. 
2. firmly established by long continuance, as a disease, habit, practice, feeling, etc.; chronic.

Were you talking about yourself (ahem)?  I don't have as much time in as you do, but I'm working on it.  Hey, nice to learn a new word.  I feel smart already, and I'm going to impress someone with my new word today if I can push myself away from my computer.

Keep us educated with your big words. 

Nancy
12/05 AN diagnosed left ear 4.5mm
06/08 6mm
Gamma Knife 10/21/08
1 year MRI  6.8mm x 5.5mm
2 year MRI  5.9mm x 4.9mm
3 year MRI  6.5mm x 6.0mm 
Slight Hearing Loss Post GK

Swedish Gamma Knife Center
Englewood, CO
Dr. Robert Feehs

Jim Scott

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Re: I AM NEW
« Reply #5 on: July 25, 2008, 03:02:24 pm »

Jim,

I had to look up INVETERATE: (in·vet·er·ate)  1. settled or confirmed in a habit, practice, feeling, or the like: an inveterate gambler. 
2. firmly established by long continuance, as a disease, habit, practice, feeling, etc.; chronic.

Were you talking about yourself (ahem)?  I don't have as much time in as you do, but I'm working on it.  Hey, nice to learn a new word.  I feel smart already, and I'm going to impress someone with my new word today if I can push myself away from my computer.

Keep us educated with your big words. 

Nancy


I didn't realize how little-known the word inveterate is.  You're the second person to comment on it.  Still, I'm glad you're encouraging me to use - not really 'big' - but often less-common words.  I just assumed they made my posts more coherent and interesting.  I admit to feeling a bit embarrassed when I realize that folks are pulling out their dictionary to look up some word I've used in a post here.  But, at this point in my life, I'm not about to radically alter my writing style so I guess the dictionary should be kept close at hand awhile longer. 

I was referring to myself in my previous post.  I was attempting to be droll but I think the attempt may have failed.

I don't have as much free time as you might presume but I make the time to visit this site.  Sometimes only for 10 or 15 minutes or at odd hours, but I do try to read all the new posts and respond when appropriate.

Finally, I don't think you or anyone else posting here needs to learn any new words from me to feel smart.  They already are.    :)

Jim

4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Nancy Drew

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Re: I AM NEW
« Reply #6 on: July 25, 2008, 03:59:20 pm »
Jim,

I am sure I can speak for many, hopefully, in relaying that we love your writing skills and your use of impressive words.  I personally like the challenge of picking up my dictionary to check out new words.  My vocabulary is lacking, and I am surprised I made it through graduate school.  Most of my teachers made many comments on my papers, but they gave me some slack.

I probably spend more time on this forum than you do right now since I am dealing with my obsession.  Plus, I am a slow reader, and I have to really work hard to find the right words to express myself.  I think you are what might be called efficient in your reading and writing skills.  Thanks for all of the "good" that you add to this forum.  You are a wise and insightful person.

Hopefully Violet doesn't mind that we are using her post to communicate.  Maybe we will convince her to come back. 

Take Care,

Nancy



12/05 AN diagnosed left ear 4.5mm
06/08 6mm
Gamma Knife 10/21/08
1 year MRI  6.8mm x 5.5mm
2 year MRI  5.9mm x 4.9mm
3 year MRI  6.5mm x 6.0mm 
Slight Hearing Loss Post GK

Swedish Gamma Knife Center
Englewood, CO
Dr. Robert Feehs

leapyrtwins

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Re: I AM NEW
« Reply #7 on: July 25, 2008, 06:39:12 pm »
I was referring to myself in my previous post.  I was attempting to be droll but I think the attempt may have failed.

I don't have as much free time as you might presume but I make the time to visit this site.  Sometimes only for 10 or 15 minutes or at odd hours, but I do try to read all the new posts and respond when appropriate.

Yes, this is an old thread, but now that's it's been "reopened" I'm hijacking it!  I'm sure you expected no less from me  ;D

Jim, I just wanted to say that now you and I can be droll together!   ;)

I think most of us "inveterate" posters don't have as much free time as others might presume - but like you, I feel it's important for me to make the time.

Keep up the good work, Jim.

BTW, did you notice that I didn't have to ask what "coherent" meant?  I personally think your vocabulary has had a great affect on the majority of us.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

4cm in Pacific Northwest

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Re: I AM NEW
« Reply #8 on: July 25, 2008, 09:31:31 pm »
Scotty = " phuminoultramicroscopicsilicovolcanoc "  ;) :D ;D

Hugs to him.

Beam me up!  :-*

DHM :D
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

Nancy Drew

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Re: I AM NEW
« Reply #9 on: July 25, 2008, 09:50:06 pm »
Don't know what in the heck that means DHM, but it was funny nevertheless.  I am in the process of watching all of the Star Trek episodes (only on episode 4 so still a newbie) so I assume that is where you are coming from.  Is Jim a Trekie?  He has got to be something.  I think Jan or someone maybe said he is in the witness protection program.  I also heard that Jim Scott is not even his real name.  Maybe his name has been changed to protect the innocent or something like that!!!  Anyway, this has turned out to be a fun place to go to get a laugh.  If Violet only knew what havoc she has created here.  We are calling you Violet.  And, Jim we might as well be talking in front of your face.  You are probably sitting back and getting a laugh!!!   

Nancy
12/05 AN diagnosed left ear 4.5mm
06/08 6mm
Gamma Knife 10/21/08
1 year MRI  6.8mm x 5.5mm
2 year MRI  5.9mm x 4.9mm
3 year MRI  6.5mm x 6.0mm 
Slight Hearing Loss Post GK

Swedish Gamma Knife Center
Englewood, CO
Dr. Robert Feehs

4cm in Pacific Northwest

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Re: I AM NEW
« Reply #10 on: July 26, 2008, 08:22:37 am »
ok ok cut and paste the below … into www.googlecom
" phuminoultramicroscopicsilicovolcanoc " 

The "Scotty" nick name started here on this thread
http://anausa.org/forum/index.php?topic=6575.msg64698#msg64698

And we are still having a good ole laugh with the “cell phoneâ€? topic (BTW comes up often with this forum  ::) ;) ;D and now in the news)
http://anausa.org/forum/index.php?topic=6970.msg71422#msg71422


Now we have an ANA longevity club started... (Thanks to Pooter  :-*)
http://anausa.org/forum/index.php?topic=6970.msg71633#msg71633

Yes yesterday was a fun and silly day … here on the forum. Scotty is SO fun to tease:D ;) ;D

Daisy Head Mazy :)



4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

Nancy Drew

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Re: I AM NEW
« Reply #11 on: July 26, 2008, 11:20:14 am »
Gotcha! . . . . . . DONE!!!

Scotty, now you can beam me up!  That was a lot of reading!!!

Nancy
12/05 AN diagnosed left ear 4.5mm
06/08 6mm
Gamma Knife 10/21/08
1 year MRI  6.8mm x 5.5mm
2 year MRI  5.9mm x 4.9mm
3 year MRI  6.5mm x 6.0mm 
Slight Hearing Loss Post GK

Swedish Gamma Knife Center
Englewood, CO
Dr. Robert Feehs

Pooter

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Re: I AM NEW
« Reply #12 on: August 02, 2008, 11:14:41 am »
So, with cell phone in hand you can work in a fish hatery and never grow up with the rest of us and have a funny name.  GREAT!

-Iamabouttoleavetownanyminute  :)
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager