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Author Topic: hemihypertrophy in child(ren)?  (Read 4188 times)

mar50

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hemihypertrophy in child(ren)?
« on: April 14, 2008, 11:03:35 am »
Hi -I had surgery and GK in the summer of 2006 for a left-sided AN and cyst.   My 22 month old son recently  has been diagnosed with hemihypertrophy (one side of the body growing faster than the other - his is mild, and mostly affects his leg/foot) and I have been told (by my son's pediatrician) that it is sometimes related to NF2.  Never has it been mentioned that I have any signs of NF2, but I'm curious as to any NF2ers' experiences with hemihypertrophy.

Thanks in advance!   

 
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Cheryl R

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Re: hemihypertrophy in child(ren)?
« Reply #1 on: April 14, 2008, 12:19:44 pm »
I am NF2 but have never heard of this before and also speaking as a retired nurse.          I iwll be interested in see if anyone else has.         I hope you are able to get some answers.
                                             Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care
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