Author Topic: AN Book ...  (Read 22705 times)

leapyrtwins

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Re: AN Book ...
« Reply #45 on: June 23, 2008, 06:52:23 pm »
When I came around and saw the little gnome/nun I kinda thought the same thing except my
surgeon and anesthesiologist were with me too and didn't figure we had all croaked

Soundy -

this is right up there with Scottie's chaplain story.

It's strange how you had the presence of mind to logically realize that since the two docs were there with you, your "number wasn't up" yet   :)

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Soundy

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Re: AN Book ...
« Reply #46 on: June 23, 2008, 10:24:28 pm »
yep ... the walls were still standing , to so didn't figure a bomb ,earthquake or fire had swept
through and got us all... though in lightening fast speed , that still amazes me since my brain now
operates is snail mode most of the time , these things crossed my mind ,  before deciding we weren't
dead that there really a gnome at the foot of my bed  :D

the gnome/nun thing was kinda scary as it happened ... but later funny ... I went back post op and
met her as a nun... she still looked a bit gnome-ish , even without lots of good drugs and an
hour or so out of surgery.. Sister Mary Margaret I think was her name...the whole story is here
somewhere

A chapter of this odd interpretations our brains made of things might be funny reading

On second thought I think her name is Mary Grace... Mary Margaret was one of the little girls
I had at Day Camp a couple weeks ago
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

leapyrtwins

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Re: AN Book ...
« Reply #47 on: June 23, 2008, 10:53:45 pm »
Soundy -

I went to a catholic women's college, so in my experience there are a million variations of  Mary "something".  Mary Claire, Mary Grace, Mary Therese, Mary Jo, Mary Beth, Mary Alice, Mary Catherine, Mary Margaret, Mary Eileen, Mary Anne, etc., etc., etc.,   The list goes on and on  :D

I was one of the few that wasn't named Mary; but it's my middle name, so I fit right in  ;)

Janet Mary
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

msuscottie

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Re: AN Book ...
« Reply #48 on: June 24, 2008, 07:13:25 am »
OK, I'm entertained just reading this thread, so let's establish 10-12 people willing to write a 5-10 page "story" about their experience. Just add your name and "focus" if you're interested ... I'll start ...

1) Scott - 2 Microsurgeies + GK Radiation
2)
3)
4)
5)
6)
7)
8)
9)
10)

Debbi

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Re: AN Book ...
« Reply #49 on: June 24, 2008, 07:46:34 am »
OK, I'm entertained just reading this thread, so let's establish 10-12 people willing to write a 5-10 page "story" about their experience. Just add your name and "focus" if you're interested ... I'll start ...

1) Scott - 2 Microsurgeies + GK Radiation
2) Debbi - the whirlwind 2-month lead up to translab, and recovery
3)
4)
5)
6)
7)
8)
9)
10)
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

leapyrtwins

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Re: AN Book ...
« Reply #50 on: June 24, 2008, 07:49:19 am »
OK, I'm entertained just reading this thread, so let's establish 10-12 people willing to write a 5-10 page "story" about their experience. Just add your name and "focus" if you're interested ... I'll start ...

1) Scott - 2 Microsurgeies + GK Radiation
2) Debbi - the whirlwind 2-month lead up to translab, and recovery
3) Jan - retrosigmoid + BAHA
4)
5)
6)
7)
8)
9)
10)
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

msuscottie

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Re: AN Book ...
« Reply #51 on: June 24, 2008, 01:26:20 pm »
Well, what can we do with 3 people?   :D

leapyrtwins

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Re: AN Book ...
« Reply #52 on: June 24, 2008, 01:43:33 pm »
Give it some time.  Not everyone is a forum addict like Debbi & me  ;)
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lori67

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Re: AN Book ...
« Reply #53 on: June 24, 2008, 09:34:43 pm »
Well, you can count me in for number 4, but I'd have to figure out what to write about...

And Jan, in regards to your nun story - at my college we had Sister Mary Bookstore (she worked in the bookstore, of course), Sister Mary Calculus, Sister Mary Registrar, Sister Mary Library.. who knows what their real names were, but at least we all knew where they worked!  My high school had Sister A/V (in charge of the audio/visual room)  I wonder if her name was Mary?

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

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Re: AN Book ...
« Reply #54 on: June 24, 2008, 09:38:02 pm »
Lori -

we had Sister Mary Paperplate - she was an older nun who wore the old-time habit with the headpiece that resembled a white paper plate - hence her name  :D

Hey, do you like that word "hence" ?  I'm trying to expand my vocabulary  ;)

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: AN Book ...
« Reply #55 on: June 24, 2008, 10:27:18 pm »
I have no clue how to get that quote thing to work, but I will contribute my story...

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Larry

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Re: AN Book ...
« Reply #56 on: June 24, 2008, 10:29:34 pm »
I'm in Scottie. I have started but had to put it down coz of rotten headaches.

need to look up the spelling of every anti inflamatory on the market (lol)


Laz
2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

Pooter

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Re: AN Book ...
« Reply #57 on: June 25, 2008, 12:05:18 am »
OK, I'm entertained just reading this thread, so let's establish 10-12 people willing to write a 5-10 page "story" about their experience. Just add your name and "focus" if you're interested ... I'll start ...

1 ) Scott - 2 Microsurgeies + GK Radiation
2 ) Debbi - the whirlwind 2-month lead up to translab, and recovery
3 ) Jan - retrosigmoid + BAHA
4 ) Lori - who knows? ;)
5 ) Kaybo
6 ) Larry - rotten headaches
7 ) Brian - retrosigmoid, poss. CSF leak under skin which caused MASSIVE headaches
8 )
9 )
10 )

(That better?)
« Last Edit: June 25, 2008, 12:07:17 am by Pooter »
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

msuscottie

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Re: AN Book ...
« Reply #58 on: June 25, 2008, 07:13:40 am »
Almost there, let's get a few more!  :)

leapyrtwins

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Re: AN Book ...
« Reply #59 on: June 25, 2008, 07:21:08 am »
How about Captain Deb?  She's bound to have an interesting story!
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways