Author Topic: Debbi Bifulco Update  (Read 127873 times)

leapyrtwins

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Re: Debbi Bifulco Update
« Reply #450 on: June 16, 2008, 01:43:39 pm »
Well, I hope I'm one of the "masterminds" that you decide to employ.  Working for Lori is sure to be very fun - and highly amusing   :D

Great pictures, Debbi  ;D

Jan

Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Debbi

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Re: Debbi Bifulco Update
« Reply #451 on: June 16, 2008, 02:50:59 pm »
Jan, you are at the very TOP of the master mind list!!

Debbi (one eye on the sutures)
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Jim Scott

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Re: Debbi Bifulco Update
« Reply #452 on: June 16, 2008, 03:15:43 pm »
Debbi:

Glad to learn that your incision is normal and uninfected.  My body must like to absorb sutures.  It's funny that way.  :)

Thanks for the photos.  Not bad for just over 6 weeks out of surgery.  Knowing you as we do, I'm certain you'll keep improving. 

Meanwhile, your buoyant attitude is encouraging to all. 

As rewarding as it may be, please don't overdo the gardening.  Now, get some rest...you've earned it.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Kaybo

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Re: Debbi Bifulco Update
« Reply #453 on: June 16, 2008, 03:20:11 pm »
I used to LOVE to play Mastermind...

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

lori67

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Re: Debbi Bifulco Update
« Reply #454 on: June 16, 2008, 03:30:43 pm »
I will be in charge of deciding how we spend all our money.  I'm not sure I have any other skills.  But I'm darn good at spending money!   ;D

First thing we'll buy is a few board games for Kay.

Jan, I've trained James pretty well.  It's a work in progress.  But I did have more luck training him to get my newspaper from the driveway than I did with my dog.  Although I think it's less about his training than it is about my dislike of sitting in downtown traffic for an hour for a 2 second dr. appointment to pull out few sutures.

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Pooter

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Re: Debbi Bifulco Update
« Reply #455 on: June 16, 2008, 07:26:27 pm »
"Spitting sutures" ?  Never heard of them.  I'm glad that it wasn't more more serious than that.  Employing all the "masterminds" of the forum is quite a job.  ;)  Good luck with that and everything!  Good pics!

Brian
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

leapyrtwins

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Re: Debbi Bifulco Update
« Reply #456 on: June 16, 2008, 08:10:35 pm »

First thing we'll buy is a few board games for Kay.

Oh, come on, Lori.  Can't we buy K something more exciting than that  ???   :(

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: Debbi Bifulco Update
« Reply #457 on: June 16, 2008, 08:43:54 pm »
I NEED excitement...    ::)

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

leapyrtwins

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Re: Debbi Bifulco Update
« Reply #458 on: June 16, 2008, 08:46:14 pm »
I NEED excitement...    ::)

K

Don't we all  ;D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sgerrard

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Re: Debbi Bifulco Update
« Reply #459 on: June 16, 2008, 08:55:31 pm »
Buy her a tattoo.  ;D

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

leapyrtwins

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Re: Debbi Bifulco Update
« Reply #460 on: June 16, 2008, 09:02:22 pm »
On one condition - that I can buy you one, too  :D

I was thinking yours could say "May I knit you a hat?"   ;)

I'm sure my fellow mastermind Lori could find some dollars in the budget for that.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

wendysig

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Re: Debbi Bifulco Update
« Reply #461 on: June 16, 2008, 09:16:13 pm »
Hi all -
Debbi, you look great!! I just sent you an e-mail, but being here answers most of my questions.  I'm so glad it's not another infection and you're just spitting sutures.  I did that once with another type of surgery and it scared me too!  I hope I'm one of the master-minds you're planning to employ.  I love working with Jan and Lori and they can vouch for me.  Lori thinks I'm a wonderful investor too!  Take care of yourself and try not to overdo it.

Lori - You're back!  Good to see you!  I explained to Jan and maybe you too in an earlier post, I am still hoping to meet you two, maybe at the Jersey shore.  It just depends on when I get home from Florida, how much time I have to get my pre-testing done, assuming my tentative date turns into an aactual one, and what I have left to do in preparation for my surgery.  I am hoping to be ready to go at any time as far as getting what I will bring to the hospital, etc. before we leave for vacation.  This month is so jam-packed, I don't think I have time to do anything that isn't already on my calendar.   Hop all is well with you.

Hi Jan! 

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

sgerrard

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Re: Debbi Bifulco Update
« Reply #462 on: June 17, 2008, 12:33:46 am »

I was thinking yours could say "May I knit you a hat?"   ;)


I think tattoos have to be more threatening than that.

More like "I will  knit you a hat."  :D

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

leapyrtwins

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Re: Debbi Bifulco Update
« Reply #463 on: June 17, 2008, 06:53:33 am »
I think tattoos have to be more threatening than that.

More like "I will  knit you a hat."  :D

So, does that mean you're taking me up on my offer?  LOL

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Debbi

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Re: Debbi Bifulco Update
« Reply #464 on: June 17, 2008, 09:07:28 am »
Good grief, people!  I step out for awhile and Jim is tatooing hats???  Oh, wait, maybe I got that wrong.  At the very least, I read something a group tatoo event next year...  Oh, and did I hear ... Party at Jan's House?!

Okay, silliness aside - I am SO over this PICC line thing!  Dr. Louie called last night to tell me that blood levels continue to improve and we'll wait to see what tomorrow's draw shows - maybe I can go off the IV this weekend.  Please keep fingers, toes, etc crossed.  I know four weeks isn't that bad in the scheme of thigns - but it is starting to feel like an eternity.  I would like not to have to plan my day around IV infusions (Kay, I know you can relate!)  Okay, enough whining.  Sorry...

In anticipation of getting the thumbs up to get the PICC line out sometime soon, I am seeing my PC doc tonight to see if he'll give me a prescription for a mild anit-anxiety pill.  I know I'm being a big weenie, but I am so wigged out by the idea of having this line taken out that I know I'll have myself worked into a state of high anxiety. Isn't that silly?  Well, at least I don't feel any need to put on a brave face and suffer in silence...   ;D

So, minor grievances aside, I am feeling pretty good these days.  I think I've only napped once in the last week, and the random pains in my head and neck are getting better (or maybe I'm just getting used to them  :-\)  The bruising from the belly incision is FINALLY gone, although I won't be entering any bikini contests in the foreseeable future - ha! 

A little piece of the giant scab on my head worked its way off last night, so I have a little bleeding - but nothing to worry about.  I keep a small dressing lightly over that area at night and sometimes in the day. 

Ladies, you'll understand this next one - I haven't seen my hair stylistin TWO months!!!  And, I'm 52.  Need I say more???  Dr. Louie said that no chemicals should get near my incision yet.  At this point, I'm wondering if I can get highlights on half of my head - would that be trendy???  Well, the very fact that I am worrying about my hair is a good sign isn't it?

Enough rambling.  Let me go see what else is going on in Forum-land...

Debbi - still spitting stitches... Duck!

Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com