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Author Topic: Can you hear me now?  (Read 16110 times)

leapyrtwins

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Re: Can you hear me now?
« Reply #30 on: June 08, 2008, 09:50:22 am »
Quote from: sgerrard on June 07, 2008, 11:34:45 pm

Oh yee of little faith, I am crushed!  :(

Sorry, Steve.  Reality can be hard to face sometimes  :'(

I didn't think you'd find this comment - at least not so soon - but then again, you always seem to  ;)
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

OMG16

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Re: Can you hear me now?
« Reply #31 on: June 08, 2008, 12:19:46 pm »
Hey Steve I have an idea for your hats since it is summer and I am running a fever maybe you could make little pouches somehow so we can put ice cubes in our hats.  What do you think?  Maybe that is above your skill level.   8)

Isn't it against the law to hire small children for your hat enterprize?  Just looking out for your reputation since you are now so high up in the chain of command.  No need to thank me I'm here to help in anyway I can.  :D

16
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I believe you are given choices in life and it is not what has happened to you that defines who you are.  It is how you handle the situation and finding the positive in an almost hopeless situation that counts the most.  My son is my hero and I have had the pleasure of learning this from him.

lori67

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Re: Can you hear me now?
« Reply #32 on: June 08, 2008, 04:26:38 pm »
16-

The ice cubes are a great idea...there are a few women here who may find them useful for going through "the change"....good thing I'm only 29!   :D

And it's nice of you to look out for Steve...we wouldn't want him to lose all that money he's making now and not be able to buy us drinks...

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

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Re: Can you hear me now?
« Reply #33 on: June 08, 2008, 06:16:15 pm »
The ice cubes are a good idea - especially for those women older than Lori - but the hats are supposed to be knit - with yarn.

Probably wouldn't be a good idea to wear them in the summer heat - with or without ice cubes.  Unless you want your BAHA to overheat, that is  ;)

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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lori67

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Re: Can you hear me now?
« Reply #34 on: June 08, 2008, 06:51:35 pm »
Would knit sun-visors be too hard for Steve to make?

Or maybe we could wear those pith helmets - like jungle explorers used to wear (at least in cartoons) - with a built in fan to keep our heads and BAHA cool and Steve could knit helmet coozies.  Or are they cozies... ???

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Kaybo

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Re: Can you hear me now?
« Reply #35 on: June 08, 2008, 07:52:24 pm »
Lori~
WOW!  We are the same age - Kendie put that I was 29 on her Mother's Day thing in Pre-K.  I've aged a LOT in the last year, though, b/c LAST year Emee put that I was 16!!  I guess this surgery was rougher on my than we all thought!! 

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

wendysig

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Re: Can you hear me now?
« Reply #36 on: June 08, 2008, 08:06:33 pm »
Jan, K and Eve,
You were all right -- it was Benedryl.  That stuff always makes me feel like a spacecadet and then of course, there was the swelling and itching driving me crazy.  K, I wish it were that easy -- take Benedryl , get brain and AN damage, no more surgery.  You know, I told my internist before I knew I had an AN, that if I could take a pill and make this go away I would be very happy.  Maybe someday there will be one.  In the meantime, I'll settle for the good advice, sense of community and zaniness that goes on here.


By the way Steve -- we're all curious -- just how well can you knit?

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

sgerrard

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Re: Can you hear me now?
« Reply #37 on: June 08, 2008, 09:48:46 pm »
Quote from: wendysig on June 08, 2008, 08:06:33 pm

By the way Steve -- we're all curious -- just how well can you knit?


Now, now, as we all know, the most important virtue for AN patients is patience. As we always say, it gets better with time.  :D

Steve

PS: Pith helmet cozies with ice cube pouches?  ???
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

leapyrtwins

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Re: Can you hear me now?
« Reply #38 on: June 08, 2008, 11:03:34 pm »
Poor Steve.  First it was your average knit hat, then it was knit hats with ice cube holders.  Now we are up to pith helmet covers with cozies  ::)

Note to Steve - buy us all a couple of drinks at the symposium, and chances are we'll forget all about the hats  ;)

Jan

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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lori67

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Re: Can you hear me now?
« Reply #39 on: June 09, 2008, 09:54:34 am »
K - you think you aged quickly - yesterday Paige told me I was 116 years old.   :'(  Talk about robbing the cradle - she said Daddy was 22.

I think we need to work on our math skills around here...

Lori

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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

wendysig

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Re: Can you hear me now?
« Reply #40 on: June 09, 2008, 10:58:46 am »
Lori -
I have to say my girls are good to me in that way, they tell everyone I'm 36.  If only that were true, but at least they seem to have all their friends convinced!

Wendy

Steve -  If you buy me a marguerita I'll not onlly forget the hats but I'll teach you how to knit (as much as I know anayway)!

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

lori67

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Re: Can you hear me now?
« Reply #41 on: June 09, 2008, 11:59:58 am »
Steve,

I am very greedy and would like a margarita AND a hat.   ;D

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

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Re: Can you hear me now?
« Reply #42 on: June 09, 2008, 12:02:07 pm »
Lori -

116  ???

Guess I'm younger than you after all  ;)  And congratulations on the child groom  ;D

Jan

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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

wendysig

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Re: Can you hear me now?
« Reply #43 on: June 10, 2008, 12:10:54 am »
Lori -
Yup- guess I'm younger than you too.  You must be very special to get someone that young interested in you.  Either than, or he he  REALLY likes older women!  Sorry, but I couldn't resist!

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

lori67

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Re: Can you hear me now?
« Reply #44 on: June 10, 2008, 11:06:06 am »
I don't think he'd care how old I was as long as I can cook!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.
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