Author Topic: Calimama Report  (Read 3609 times)

calimama

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Calimama Report
« on: June 04, 2008, 07:50:56 pm »
Hi Guys, Fabian here to give you a brief report on Trish's surgery.
Surgery was about 10 hrs, most of the tumor was removed. She is doing OK but obviously it will take her some time to recover.
Thanks evreybody for your continuos support. All this has been a bit overwelming but I am sure things will go back to normal soon. We will provide more updates later.





Left 2.9cm CP Angle AN discovered Jan 2008. Retrosig surgery June 2, 2008 Toronto, Canada. Facial paralysis and numbness, double vision (4th nerve), SSD. DV totally recovered in 4th month; palsy started to recover slowly around month 7. Had twin boys 13 months after surgery. Doing great.

cmp

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Re: Calimama Report
« Reply #1 on: June 04, 2008, 08:06:29 pm »
Thanks for posting, Fabian--folks were getting very antsy not knowing how Trish is doing.

Glad she's safely out of surgery (which sounds as though it was quite a marathon--you are exhausted too, no doubt!. Very best wishes to her for lots of healing so she can go home with you and Cali!
5 cm AN surgery, Shands Hospital, FL, Dr Albert Rhoton, 1988; VII-XII anastamosis for right-sided facial palsy 1989; diagnosed Feb 2008 w/ 1.8 cm recurrence; drs McKenna & Martuza; surgery rescheduled for 6/24/08!

sgerrard

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Re: Calimama Report
« Reply #2 on: June 04, 2008, 08:11:59 pm »
Thanks, Fabian.

I'm glad to hear Trish is OK. Some of the retro sigmoid surgeries do get long like that. She will get better every hour and every day. Take it nice and easy and both of you get as much rest as you can. All our best to Trish.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

leapyrtwins

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Re: Calimama Report
« Reply #3 on: June 04, 2008, 08:21:37 pm »
Thank you so much for posting, Fabian.

As cmp said, we were starting to get antsy.

Glad to hear Trish is okay, and you are right it does take time to recover.  But as Steve said, Trish will get better every day - I know this from personal experience  :)

Take care of yourself, make sure you get some rest and give our best to "postie" Trish.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Glenda

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Re: Calimama Report
« Reply #4 on: June 04, 2008, 08:28:36 pm »
Thank you Fabian!  I'm so glad that the surgery is over and that she is doing ok  We'll keep praying for a smooth recovery. 
Try to get rest yourself!  Give Trish our best!!

Glenda
Diagnosed 5 mm AN  Jan 2008
Deep in IAC
June 2010 7 mm
July 2011 8.5 mm
July 2012 1.1 cm
Nov 28, 2012 Mid Fossa Surgery Wake Forest Baptist Hospital-Winston-Salem NC, Dr John Wilson and Dr Eric Oliver


SSD tinnitus dizziness

wendysig

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Re: Calimama Report
« Reply #5 on: June 04, 2008, 08:36:54 pm »
Fabian,
Thanks for posting.  All the natives were getting restless.  Glad to hear Trish is  doing okay.  Please keep us posted (no pun intended).

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Kaybo

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Re: Calimama Report
« Reply #6 on: June 04, 2008, 08:45:54 pm »
Fabian~
I was a restless one and I am relieved now to know she is OK!!  Give her a big ole' smooch from me!!   :-*

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Pooter

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Re: Calimama Report
« Reply #7 on: June 04, 2008, 11:32:08 pm »
I am glad Trish is doing well after surgery.  I had marathon (12 hrs) recently (May 8th) and can speak from experience that it will take some time for her to get back to normal.  Its been about a month and I still am at home.  But, I am making progress each day, and she will too.  Give her a hug from all of us.  We are thinking of her.

Brian
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Debbi

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Re: Calimama Report
« Reply #8 on: June 05, 2008, 05:58:44 am »
Fabian - thanks so much for updating us!  As you can see, we are like a bunch of nervous parents with each other.  Tell Trish to get lots of rest (and you do the same!)  and concentrate on healing.  As everyone else has said, each day will get better, but it is a slow process.

hugs to you both,
Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Nicole222

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Re: Calimama Report
« Reply #9 on: June 05, 2008, 07:24:34 am »
So glad to hear that the surgery went well.  I hope she recovers quickly.   Let her know she has many people continuing to pray for her recovery :)
Had surgery (retrosigmoid) May 9th, 2008 to remove a 3.5cm AN from left side.
Home one week later, no facial nerve damage. 
SSD -Left ear.
Thankful daily for fantastic surgeons and wonderful family and friends.
34 years old.  Married mommy to Jordan, 23 months.

Sammict

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Re: Calimama Report
« Reply #10 on: June 05, 2008, 07:58:38 am »
thanks Fabian

So glad to hear Trish is doing well. I'll be thinking of her during her recovery can't wait to hear from her.

Sam

LADavid

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Re: Calimama Report
« Reply #11 on: June 05, 2008, 08:05:46 am »
Thanks for the update, Fabian.  It's good to hear Trish is doing well.  Give her our best and tell her we're anxious to see hear from her once she gets home.

David
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

cindyj

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Re: Calimama Report
« Reply #12 on: June 05, 2008, 08:12:58 am »
Yes, thanks for updating, Fabian.  Glad she came through well and will be on her way to recovering.  Please let her know we're all thinking of her!

Cindy
rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

lori67

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Re: Calimama Report
« Reply #13 on: June 05, 2008, 09:40:36 am »
Great to hear some news on Trish!  Thank you for remembering us, Fabian.  We appreciate it.  Especially since we know you're probably exhausted yourself about now.

Tell Trish we can wait til she's home and on the mend and give Cali a big hug!!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Jim Scott

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Re: Calimama Report
« Reply #14 on: June 05, 2008, 10:06:54 am »
Fabian:

Great news - and  thanks for posting.  It sounds as if Trish's surgery was relatively uneventful.  Good!  Let's hope her recovery goes just as well, as I'm sure it will.  Give Trish our collective well-wishes and tell her we look forward to having her here as a 'postie'.:)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.