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Author Topic: Had gamma knife  (Read 3373 times)

claire1

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Had gamma knife
« on: June 13, 2008, 10:11:56 pm »
Hi
I had the GK this past Wednesday in Phillie.  I was amazed at the proffessionalism of all the dr's and nurses involved. I'm very tired,nauseau and have a headache that beats all but I'm glad its' over.  Now the wait begins. I'll have an MRI in 6 months. The med. cocktail was great, I don't remember much except when they took the frame off ,it bites.  I don't know when the nauseauness will stop or the headaches will stop but I'm hoping soon.  Haven't been able to eat much and lost 7 pounds in three days. That part is ok. Thank you for all your support and wisdoms of being there.
Claire

p.s. Going back home last week,prior to treatment, really helped me get grounded to see mom/dad family&friends. I found my Moggo again.
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leapyrtwins

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Re: Had gamma knife
« Reply #1 on: June 13, 2008, 10:38:40 pm »
Wow, Claire! 

Congratulations on the GK.  I didn't realize you were having treatment so soon.  Maybe it was on the AN Calendar and I just missed it (?); I haven't had a chance to check it recently.

Anyway, glad to hear it's over with.  I hope your side-effects pass swiftly and you feel better soon.

Here's to necrosis!

Jan

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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

er

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Re: Had gamma knife
« Reply #2 on: June 13, 2008, 10:48:34 pm »
Claire
Congratulations on your GK.
I was doing the same thing when I was in the hospital for my AN they gave me sea sick pills to stop the nausea. You might want to try it .It is always nice to lose weight , but that is a  heck of a way to do it. I do hope you get to feeling better.
eve
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Jim Scott

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Re: Had gamma knife
« Reply #3 on: June 13, 2008, 10:51:05 pm »
Congratulations, Claire!

I checked (3 times) and somehow, your CK never made the AN Treatment calendar.  I apologize for that oversight.

Nausea is a tough way to lose weight but I'm pleased that your CK went well.  I'm sure the nausea and headaches willl pass, soon. Overall, you seem to be O.K. and have a good attitude, which will help you, a lot.  Oh, and I'm gad you got your MoJo back.  :)

Jim

 

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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

sgerrard

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Re: Had gamma knife
« Reply #4 on: June 14, 2008, 12:33:06 am »
Hi Claire,

Congratulations on becoming a postie.

I hope the headache and nausea clear up soon; if not, you could call the doctor and see if they suggest taking something to help you get through it. Drink lots of water, too. It will all pass in a week or so. The main thing is that your AN has been zapped.

Take care,

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Tumbleweed

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Re: Had gamma knife
« Reply #5 on: June 14, 2008, 11:31:30 am »
I just tried to go to the AN calendar, using both Safari 1.3.2 and Netscape 7.2, and the page wouldn't load because it  couldn't be found. Does this calendar still exist?

Thanks,
Tumbleweed
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

Jim Scott

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Re: Had gamma knife
« Reply #6 on: June 14, 2008, 01:14:01 pm »
Quote from: Tumbleweed on June 14, 2008, 11:31:30 am

I just tried to go to the AN calendar, using both Safari 1.3.2 and Netscape 7.2, and the page wouldn't load because it  couldn't be found. Does this calendar still exist?

Thanks,
Tumbleweed

Try this address:  http://my.calendars.net/AN_Treatments.  I accessed it with Netscape 7.2.  I hope this helps.

Jim

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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

sgerrard

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Re: Had gamma knife
« Reply #7 on: June 14, 2008, 01:20:10 pm »
I just looked on the web site for Calendars.Net, and they said that on Macs, it helps to have the www at the front of the link.
I have changed my signature to include that, since it works that way for everyone.
So instead of http://my.calendars.net/AN_Treatments, it is now

http://www.my.calendars.net/AN_Treatments

See if  that helps.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

cmp

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Re: Had gamma knife
« Reply #8 on: June 14, 2008, 05:30:38 pm »
congratulations, Claire, on your GK (and on getting your mojo back)! Hope the nausea and headaches are soon resolved, and that it's smooth sailing until your 6 month MRI!

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5 cm AN surgery, Shands Hospital, FL, Dr Albert Rhoton, 1988; VII-XII anastamosis for right-sided facial palsy 1989; diagnosed Feb 2008 w/ 1.8 cm recurrence; drs McKenna & Martuza; surgery rescheduled for 6/24/08!

leapyrtwins

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Re: Had gamma knife
« Reply #9 on: June 14, 2008, 10:26:22 pm »
Tumbleweed -

if you still can't access the calendar with Jim's and Steve's suggestions, just give us your information and one of us will be glad to put it on the calendar for you.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Tumbleweed

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Re: Had gamma knife
« Reply #10 on: June 14, 2008, 11:47:52 pm »
Thanks, Steve! Your suggestion worked and I can now access the calendar. Jan, how do I add my Cyberknife treatment? It will happen the week of July 7th.

Thanks,
Tumbleweed
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

Sue

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Re: Had gamma knife
« Reply #11 on: June 15, 2008, 12:23:59 am »
Take care of yourself Claire.  Are you on steroids?  That can make for an interesting week for you.  I hope you feel better soon.  I only had a headache right after I got home and some of the meds were wearing off.  But I took some pills, had the steroids, passed out in bed for the rest of the day, and then didn't really have a headache after that.  Some other weirdness going on, but no headache.  And thankfully, I didn't have the nausea.  I am sorry you are troubled with that.

I hope you feel better soon.

Sue in Vancouver, USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

leapyrtwins

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Re: Had gamma knife
« Reply #12 on: June 15, 2008, 12:26:56 am »
Tumbleweed -

when you open the calendar, you will be in June.  Find "Jul" above the June calendar and click on it.  Once the July calendar is opened, click on the date you want to create an entry for.  A new window will open. 
 
In the new window, type in the "calendar text" box - maybe something like CK Tumbleweed.  Select "category" - AN treatment.   Go to "color select" and select a color if you want - this is optional, but decorative  ;)  Then click on "submit".

That's about it.

Jan

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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Tumbleweed

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Re: Had gamma knife
« Reply #13 on: June 15, 2008, 01:43:21 am »
Thanks, Jan! That worked!

Best,
Tumbleweed
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

leapyrtwins

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  • I am a success story!
Re: Had gamma knife
« Reply #14 on: June 16, 2008, 06:23:20 am »
Glad to hear it  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways
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