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Author Topic: Good News  (Read 4438 times)

mary07

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Good News
« on: July 31, 2008, 05:34:08 am »

  I went for my yearly MRI 2 wks ago  had  Gamma Knife last yr around this time . I asked for the report  becouse I dont go to see the doc till Sept.  but it says that the AN  has shrunk some  this is awsome I have been praying for this for a couple of yrs . I did loss most my hearing  on that side but I can accept that. I hope it keeps shrinking  I will keep everyone posted... Have a Good Day.

             Mary
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Omaschwannoma

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Re: Good News
« Reply #1 on: July 31, 2008, 05:48:39 am »
Mary,

Read about your "good news" and want to say how happy I am for you!  Congratulations and may you have continued shrinkage.
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1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear

leapyrtwins

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Re: Good News
« Reply #2 on: July 31, 2008, 07:09:10 am »
Mary -

I hope your AN continues to shrink also.

Thanks for sharing your good news!  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

JulieW4

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Re: Good News
« Reply #3 on: July 31, 2008, 10:23:45 am »
Good news is always great.  Hoping for a smaller tumor after the next MRI.

Julie
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2.7mm X 3.7mm AN
misdiagnosed for 13 years
complete hearing loss on right side
Had Translab surgery on June 30th, released from hospital 48 hours after completion of 5 hours of surgery
BAHA abutment surgery on Oct. 31st, received processor on Dec. 4th

DebbieL

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Re: Good News
« Reply #4 on: July 31, 2008, 10:50:03 am »
Mary,

That's great news.  Keep shrinking!  I just finished CK and hope mine will do the same. 

Debbie
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Jim Scott

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Re: Good News
« Reply #5 on: July 31, 2008, 03:48:08 pm »
Mary:

Good news, indeed!  Post-radiation tumor shrinkage is always a positive sign that the GK 'worked'.  I hope and will pray that shrinkage (and ultimately, necrosis) continue apace.  :)  Meanwhile, congratulations!

Jim

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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Nancy Drew

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Re: Good News
« Reply #6 on: July 31, 2008, 05:50:41 pm »
Very good news Mary, especially since I am considering GK in the near future.  Always nice to hear positive GK stories.  Best Wishes :D

Nancy
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12/05 AN diagnosed left ear 4.5mm
06/08 6mm
Gamma Knife 10/21/08
1 year MRI  6.8mm x 5.5mm
2 year MRI  5.9mm x 4.9mm
3 year MRI  6.5mm x 6.0mm 
Slight Hearing Loss Post GK

Swedish Gamma Knife Center
Englewood, CO
Dr. Robert Feehs

GM

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Re: Good News
« Reply #7 on: July 31, 2008, 06:48:26 pm »
Great news!!  Hope you continue to see shrinkage!
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Originally 1.8cm (left ear)...Swelled to 2.1 cm...and holding after GK treatment (Nov 2003)
Gamma Knife University of Virginia  http://www.medicine.virginia.edu/clinical/departments/neurosurgery/gammaknife/home-page
Note: Riverside Hospital in Newport News Virginia now has GK!!

windy

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Re: Good News
« Reply #8 on: July 31, 2008, 07:21:37 pm »
I am so glad you had good news!  Your prayers are being answered.  I am very happy for you!
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* Diagnosed w/AN (9mm x 11mm x 9mm) - 6-10-08
* GK @ UPMC w/Dr. Lunsford - 8-5-08
* Stable MRI - Aug. 2009
* 2 MM's Growth - Aug. 2010
* Lost 60% Hearing - Dec. 2010
* More Growth?? - Wait & Watch - Jan. 2012
* 1 MM Shrinkage - Aug. 2012
* 2 MM's Shrinkage - Aug. 2013
* Slight Shrinkage - Aug. 2014

sgerrard

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Re: Good News
« Reply #9 on: July 31, 2008, 10:44:57 pm »
Thanks for posting, Mary. You are right, it is awesome. Can't help asking for more of the same, please. Nice going!

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Pooter

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Re: Good News
« Reply #10 on: July 31, 2008, 10:49:03 pm »
That is great news!  Congrats!  Continued shrinkage and ultimate necrosis!  Yea for you!

Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

ppearl214

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Re: Good News
« Reply #11 on: August 01, 2008, 05:48:05 am »
Hi Mary,

we love great news around here! Congrats to you and continued wellness.... Pls keep us updated.

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"
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