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Author Topic: Here's a provocative question  (Read 25688 times)

leapyrtwins

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Re: Here's a provocative question
« Reply #30 on: August 06, 2008, 05:18:32 pm »
I'll bet his parents didn't put him in a car seat, either  ;D

Actually when you think of today's world, it's amazing we all lived long enough to be diagnosed with an AN.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Joef

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Re: Here's a provocative question
« Reply #31 on: August 06, 2008, 07:06:32 pm »
LOL ... funny you should say that .. I did end up in ER as a kid (7 yo?) ... hit my head on the pavement.....  :'( and was out cold for a while ... gave my parents a good scare.....  :'(
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

wendysig

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Re: Here's a provocative question
« Reply #32 on: August 09, 2008, 10:26:38 am »
David,
Interest question -- I'll play too.  I'm a real melting pot baby, English, Irish, Native American (Blackfoot Sioux) on my mother's side.  Austrian on my father's side.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

GM

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Re: Here's a provocative question
« Reply #33 on: August 09, 2008, 01:58:40 pm »
Good post !!

Lets see...basically I'm a mut...Irish, German, Scotish, and Cherokee Indian.

Gary
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Originally 1.8cm (left ear)...Swelled to 2.1 cm...and holding after GK treatment (Nov 2003)
Gamma Knife University of Virginia  http://www.medicine.virginia.edu/clinical/departments/neurosurgery/gammaknife/home-page
Note: Riverside Hospital in Newport News Virginia now has GK!!

Rivergirl

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Re: Here's a provocative question
« Reply #34 on: August 09, 2008, 03:26:37 pm »
I think the ethnic thing is very interesting........  I am Scotch-Irish-Hungarian-Sweedish also grew up pretty much on a river and live on one now........FISH.......I love to fish!!!  How about a chocolate connection are any of you addicted? 
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Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

AMD

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Re: Here's a provocative question
« Reply #35 on: August 09, 2008, 03:45:07 pm »
Hmmmmmm..... Scot-Irish here.  Grew up on a river town (Nasty Ohio river to be exact) 
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Left side 1.7 cm AN diagnosed 7/30/08
Misdiagnosed for 8 + years
Surgery, Sub-occipital, 11/17/2008 at Indiana University Hospital
Left SSD
Tumor much larger than expected. Facial nerves intact, but had RARE swelling resulting in brachial plexus injury and tracheostomy after surgery.

Esperanza

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Re: Here's a provocative question
« Reply #36 on: August 09, 2008, 04:12:23 pm »
See there is a lot of variety going on here, I am English but have a London/Yorkshire/Welsh mix!  Grew up eating a lot of cod roe, rollmop herrings and chocolate though, oh dear  :P
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Profoundly deaf suddenly on AN side with vertigo January 3rd 2008.
12mm left side AN diagnosed 20th Jan. 2008.  MRI  in July shows no growth. What do I do now?????

lori67

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Re: Here's a provocative question
« Reply #37 on: August 09, 2008, 08:23:33 pm »
Maybe we found a possible cause of AN's.... could it be related to chocolate addiction?  I think a lot of us suffer from this!   ;D

Let's hope that's not it - I don't want to have to give up my chocolate - I'm REALLY addicted!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

sgerrard

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Re: Here's a provocative question
« Reply #38 on: August 09, 2008, 10:40:22 pm »
Quote from: Esperanza on August 09, 2008, 04:12:23 pm
Grew up eating a lot of cod roe, rollmop herrings and chocolate though, oh dear  :P

What a lovely combination - does that dish have a name?   :D

Steve (English)
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

chocolatetruffle

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Re: Here's a provocative question
« Reply #39 on: August 10, 2008, 01:20:10 am »
i am seriously addicted to chocolate, it is my 6th food group - i believe we stumbled upon an AN connection here!!
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chocolatetruffle


2.8 cm left AN
Translab @ House/St Vincent's 11/27/07
Drs. Brackmann, Schwartz, Wilkinson, Stefan

wendysig

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Re: Here's a provocative question
« Reply #40 on: August 10, 2008, 10:08:05 am »
I hope chocolate has no connection to ANs.  I am as addicted to it as the rest of you.  I can give up a lot of things but chocolate would be next to impossible!  Sometimes chocolate is the only thing that helps when I'm feeling down.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

MAlegant

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Re: Here's a provocative question
« Reply #41 on: August 10, 2008, 01:30:10 pm »
It IS the chocolate!  It just has to be.  It's the only food group that counts.
M
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Kaybo

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Re: Here's a provocative question
« Reply #42 on: August 10, 2008, 02:17:36 pm »
Then there must be a LOT of people walking around that are undiagnosed!!!!!!    ;D

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

lori67

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Re: Here's a provocative question
« Reply #43 on: August 10, 2008, 04:50:04 pm »
Well, then if we've all been diagnosed and/or treated, then it must be safe to eat all we want!

Hey David, how did your provocative question turn to chocolate?   ;D

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

MAlegant

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Re: Here's a provocative question
« Reply #44 on: August 10, 2008, 05:50:55 pm »
A hijacking gone bad...or, rather, good? 
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.
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