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Author Topic: At Peace....  (Read 3993 times)

Dog Lover

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At Peace....
« on: August 17, 2008, 08:34:22 pm »
This forum has been invaluable. I reached a point tonight of total peace.

I'm at peace with my decision, am confident in my surgeon and I'm just not worrying about it. (disclaimer: I reserve the right to change my mind at any time! LOL)

Surgery Thurs the 21st, mid fossa, U of IA Hospital, Dr. Gantz. 9mm left side AN. Thanksfully small.  :)

I've read a lot, posted a little. I have decided to take the advice of some of my new friends and Wed night my son is taking me out to a nice Rib dinner at Texas Roadhouse! yummy!

Big hugs to everyone on the forum for the support, words of wisdom and welcome. It really DOES make a difference.

Cathy
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Cathy
9mm x 3mm Left Side AN
Mid Fossa Aug. 21, 2008
Dr. Gantz / Dr. Woodson
Univ. of Iowa Hospitals and Clinics
No facial issues, hearing saved, I keep active and feel back to normal.

lacey7

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Re: At Peace....
« Reply #1 on: August 17, 2008, 08:41:12 pm »
I will be thinking about you and praying for you on Thursday.  I'm so glad you are at peace about the surgery and with your doctor.  That helps alot.
This web site was so helpful to me, also.  It just makes you feel better to know that you aren't the only one out there with this disease.....and that others have gone thru it, and are doing great.  My surgery was just last month, so know that it takes awhile to start feeling better.  I'm sure you will do fine, and may God bless you!
Enjoy your dinner on Wed!!!!!
Lacey
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Diagnosed 4/15/08.
AN - 1.4 cm.  Translab surgery 6-26-08.  SPF leak 7-5-08, and went back into surgery 7 -6-08.
SSD left side, after surgery
Dr. LaRoure - Providence Hospital, Southfield, MI.

wendysig

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Re: At Peace....
« Reply #2 on: August 17, 2008, 09:06:59 pm »
Hi Cathy,
I know the feeling you are having of being totally at peace with your decision.  I too had this feeling before my surgery on July 25.  All of my questions had been answered, I had total faith in my doctors and was fairly certain my outcome would be good.  So far, my recovery has surpassed anything I'd  hoped for. I feel I owe the peace of mind I had largely to the support I found here.  I will be thinking of you on Thursday and you will be in my prayers.  Is someone posting for you after your surgery?  We're like mother hens here and like to know how our chicks are doing.

Wishing you all the best,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Dog Lover

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Re: At Peace....
« Reply #3 on: August 17, 2008, 10:00:19 pm »
Yes, I have asked my daughter to post for me in my absense.  ;)  Is there any certain topic she should post updates in?

Cathy
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Cathy
9mm x 3mm Left Side AN
Mid Fossa Aug. 21, 2008
Dr. Gantz / Dr. Woodson
Univ. of Iowa Hospitals and Clinics
No facial issues, hearing saved, I keep active and feel back to normal.

leapyrtwins

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Re: At Peace....
« Reply #4 on: August 17, 2008, 10:02:30 pm »
The Post Treatment category might be a good place.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Pooter

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Re: At Peace....
« Reply #5 on: August 17, 2008, 10:54:57 pm »
Coingrats on your decision and being at peace with it.  I wish you all the luck in the world.  Send some left over ribs to Texas for me!  ;)

Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

satman

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Re: At Peace....
« Reply #6 on: August 18, 2008, 06:07:07 am »
at peace is a good place to be,prayers from texas are heading your way.
see ya on the other side.
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kicked my little 8cm buddy to the curb-c ya !

MAlegant

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Re: At Peace....
« Reply #7 on: August 18, 2008, 08:24:55 am »
I remember that feeling.  I describe it as feeling as if someone (everyone?) was holding me in their arms.  We'll be thinking about you and sending prayers and good thoughts your way.
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

sgerrard

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Re: At Peace....
« Reply #8 on: August 18, 2008, 08:27:54 am »
Best wishes, Cathy. Have a good surgery and a gentle recovery.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Syl

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Re: At Peace....
« Reply #9 on: August 18, 2008, 09:33:24 am »
Cathy,

Glad you're at peace about your decision. I, too, felt like that after making my decision. I don't know that I had felt that way without this forum and all that I have gained and learned from it.

I will be thinking of you on Thurs. and praying for a good outcome.

I'll be looking for updates.

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

Debbi

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Re: At Peace....
« Reply #10 on: August 18, 2008, 09:39:06 am »
Cathy-

Glad you are feeling at ease.  I think that many of us, me included, found the last few days leading up to surgery to be strangely peaceful.  I'll be sending you prayers and good wishes on Thursday and will look for your daughter's post.

Debbi, sending good energy and prayers your way...
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Jim Scott

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Re: At Peace....
« Reply #11 on: August 18, 2008, 11:26:31 am »
Cathy:

Please allow me to offer my congratulations to you on your decisions and express my happiness in knowing that you are, as you so succinctly put it: 'at peace'.  That is a beautiful place to be.  :)

The hopes and prayers of many, many people will be going out to you and for you on Thursday....mine will be included.

See you 'on the other side' as a 'postie' (post-operative AN patient).  May you have a flawless surgery and a rapid recovery.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Omaschwannoma

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Re: At Peace....
« Reply #12 on: August 18, 2008, 12:45:32 pm »
Cathy,

You will be in my thoughts Thursday as will your doctors and nurses who will do their very best for you.  Sending prayers your way, may you be at peace, may you have joy in your heart and may you be loved!
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1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear

ppearl214

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Re: At Peace....
« Reply #13 on: August 18, 2008, 02:08:36 pm »
Hey Cathy,

I'm sending my wellness wishes to you and will be saying prayers and sending good wishes on Thursday!  Hang tough!

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

cindyj

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Re: At Peace....
« Reply #14 on: August 18, 2008, 02:15:11 pm »
Cathy,

So glad you're at peace about things, now just hold that thought and head in with the same positive attitude.  We'll be watching for updates from your daughter.

Wishing you the best,

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings
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