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Author Topic: Eat rads and die (please), my 1-yr post-CK pics  (Read 6845 times)

jb

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Eat rads and die (please), my 1-yr post-CK pics
« on: August 22, 2008, 02:09:21 pm »
Ok, just finished my 1-year post-CK MRI yesterday and met with my RO today.  My swelling is way down and everything is looking good!  WOO HOO!!  :D

Here's the series over the last year:




I'm down more than 5 mm since the last time and even the "edema in the right cerebellar peduncle abutting the tumor"  (brain goop that showed up on my 7-month MRI FLAIR scans) has disappeared, so I couldn't ask for a much better result at this point.  RO says I should see continued shrinkage at this point.  The AN is still nearly 2 cm, but my brain looks like it's getting tough and pushing back now.  Go brain!!!

Seriously, though, I know these things don't always go to plan, so I'm not taking anything for granted.  But it looks good at this point so just thought I'd share.   :)

JB
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2 cm right-side AN, diagnosed July 2006
Cyberknife at Georgetown Univ. Hospital, Aug 2007
Swelled to 2.5 cm and darkened thru center on latest MRI's, Dec 2007 and Mar 2008
Shrinking! back to 2 cm, Aug 2008
Still shrinking (a little), I think about 1.7 cm now, Aug 2009

ppearl214

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Re: Eat rads and die (please), my 1-yr post-CK pics
« Reply #1 on: August 22, 2008, 02:25:05 pm »
Eat rads and die is an understatement! WOW! Look at that suck'a die its fugly death!!!!!!! Congrats, congrats!!

I meet Monday with my CK team, now 2-1/2 yrs out.  Rub some good luck off on me, will ya?  :)


jb, I'm so thrilled for you! It looks great!!!!!!!!!!!!!

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

mindyandy

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Re: Eat rads and die (please), my 1-yr post-CK pics
« Reply #2 on: August 22, 2008, 03:32:05 pm »
CONGRATS JB!!!!!!  :D VERY HAPPY TO HEAR THE GOOD NEWS! i SURE HOPE I HAVE THE SAME GOOD NEWS AT MY 1 YEAR.....

EVERYBODY LETS CHEER TO JB.....
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

Jim Scott

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Re: Eat rads and die (please), my 1-yr post-CK pics
« Reply #3 on: August 22, 2008, 03:55:11 pm »
JB:

Who would have thought an MRI would look so good?  Congratulations!  Your AN is certainly dying.  Good riddance!  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

mimoore

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Re: Eat rads and die (please), my 1-yr post-CK pics
« Reply #4 on: August 22, 2008, 04:53:29 pm »
JB That is sooooooo amazing, I am soo happy for you. Those images are amazing, it is so great to see it shrinking - die-die-die AN. That is such great news - celebrate and enjoy!!!
Michelle  ;D
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

sgerrard

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Re: Eat rads and die (please), my 1-yr post-CK pics
« Reply #5 on: August 22, 2008, 06:43:38 pm »
JB,

I am so glad to hear that the edema in the right cerebellar peduncle abutting the tumor has now vanished. It is just too awkward a phrase to have to repeat all the time. :)

Your MRI series is awesome. The tumor is back down to its original size, but it is a hollow shell of its former self. It has lost the battle and given up. Bye bye, AN!

Congratulations, and have a great 2nd year.

Steve


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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

leapyrtwins

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Re: Eat rads and die (please), my 1-yr post-CK pics
« Reply #6 on: August 22, 2008, 10:08:27 pm »
Very, cool, JB  8)

Congratulations!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sher

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Re: Eat rads and die (please), my 1-yr post-CK pics
« Reply #7 on: August 22, 2008, 10:38:09 pm »
Congrats JB!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I hope mine dies like that.......!!!!!!!
Sherry
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1.2cm x 0.6 cm extracanicular component (7 mm) 05/08/08
MRI in AUG 08  showed 30 % growth
Having CK 9/30, 10/1 and 10/2/08
1/12/08 MRI shows swelling

jb

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Re: Eat rads and die (please), my 1-yr post-CK pics
« Reply #8 on: August 24, 2008, 11:21:56 pm »
Thanks for the kind words everyone.  The RO also says I don't need another MRI until a year from now.  That seems so strange after getting them every few months for the last couple of years.  I guess I'll manage.   ::)

I've also emailed the scans to my doc at Georgetown, so hopefully he will think I'm ready to graduate too.

Phyl, sending all kinds of good luck and tumor fighting mojo your way.  Will be thinking of you Monday and looking for a good report!

JB
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2 cm right-side AN, diagnosed July 2006
Cyberknife at Georgetown Univ. Hospital, Aug 2007
Swelled to 2.5 cm and darkened thru center on latest MRI's, Dec 2007 and Mar 2008
Shrinking! back to 2 cm, Aug 2008
Still shrinking (a little), I think about 1.7 cm now, Aug 2009

Debbi

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Re: Eat rads and die (please), my 1-yr post-CK pics
« Reply #9 on: August 25, 2008, 02:44:32 pm »
JB -

Aweseom pictures and even better result!  Good for you --- and BUH-BY, TUMAH!

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Sue

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Re: Eat rads and die (please), my 1-yr post-CK pics
« Reply #10 on: August 25, 2008, 04:10:32 pm »
Awesome, awesome and might I add, awesome. 

Radiation - $50,000 plus
MRI's       - $2000 or thereabouts
Seeing an AN die, die, die it's "fugly" death  - priceless

Sue in Vancouver, USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

fbarbera

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Re: Eat rads and die (please), my 1-yr post-CK pics
« Reply #11 on: September 02, 2008, 11:56:54 pm »
Congrats JB! Great results -- and encouraging to me personally since we had CK right around the same time.  Onward and forward!
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Tumbleweed

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Re: Eat rads and die (please), my 1-yr post-CK pics
« Reply #12 on: September 03, 2008, 12:54:09 am »
That's totally terrific news, JB!!!!!!!!! Your MRI series looks fantastic! It gives me hope for the same.

BTW, how did you put those 4 MRIs together and post them here? Did you use a graphics program or simply copy and paste?

Best wishes,
Tumbleweed
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

tenai98

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Re: Eat rads and die (please), my 1-yr post-CK pics
« Reply #13 on: September 03, 2008, 06:02:27 am »
Forum's new chant as mimoore states.....DIE...DIE...DIE...AN....AGAIN...DIE....DIE....DIE...AN
Congrats that is awesome news..
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

windy

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Re: Eat rads and die (please), my 1-yr post-CK pics
« Reply #14 on: September 03, 2008, 04:03:05 pm »
Great news JB!  I am so happy to hear you have received good news from your RO! :)
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* Diagnosed w/AN (9mm x 11mm x 9mm) - 6-10-08
* GK @ UPMC w/Dr. Lunsford - 8-5-08
* Stable MRI - Aug. 2009
* 2 MM's Growth - Aug. 2010
* Lost 60% Hearing - Dec. 2010
* More Growth?? - Wait & Watch - Jan. 2012
* 1 MM Shrinkage - Aug. 2012
* 2 MM's Shrinkage - Aug. 2013
* Slight Shrinkage - Aug. 2014
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