NF2 Tumour Suppression

[tony]

Unreal - no known cure
and suddenly there are seemingly new options every week
Anyhow, early (Human tissue in mice - Lab) results are seeming to show
postive shrinkage of the NF2 type tumours
- this as a result of Propolis Extract in liquid form (Bio 30 is one brand - but there seem to be more)
If you check the link below it gives full details - Utah NF2 meeting 2007

homepage2.nifty.com/daikon_tom/nfj/nfj_2007_06.htm

The really good news : its an existing healthcare type remedy
- already on the market

Best Wishes to all
Tony

[leapyrtwins]

Very encouraging news, Tony.

Thanks for passing on this information.

Jan

[mindyandy]

Tony- have your tried or are you currently trying bio 30? I have been on the NF2 forum and some people are now trying it. I havent really heard from anybody whom has been on it for awhile. It is a fairly new thing and it is hard to tell how well it works when MRI's happen so often and since most tumors are slow growing. It does look show good results. I'm happy to see there are new trials going on and that we are...although not quite there yet but getting closer to treatments.

[tony]

I am going to give it a shot
- hardly expensive, and if it puts a surgery back by 5 yrs or more
...worth its weight in oil ?
best regards
Tony

[mindyandy]

Give it a shot yes...I agree. Make sure you visit the NF2 crew website and look up bio 30. They have a link where it is from New Zeland (the best and most potent bio 30) website where you can get a discount if you tell them you are apart of the NF2 crew & part of the drs trials or something

Check it out and check out the message board there too. 

[tony]

OK - long story
Yes there is a trial in USA - about 30 of the crew currently on
Too early to say yet - good or bad
The reports author has been in touch and asked if I want to join in - I just might
In terms of product
Bio 30 is one brand - Manuka Health - there are others made in other ways
Its unclear to me if any water based New Zealand sourced product
would work as well - USA product might not
as the original fauna and flora (plants etc) are different
so the honey/propolis type is different also
We live in interesting times ?
Best regards
Tony

[mindyandy]

Tony you should give the trial a try...what does it hurt?

[tony]

So, yes I am going for the trial
I plan to pep it a bit
early days here - but - there is now evidence that the natural ingrediants
found in freash fruit and veg help supress the condition
NF2crew (USA) confirm some success with strict "good" food diets
Basically it seems to help the body counter the condition
 I will with the trial, and go for the freash food option too
So we have surgical, radiological and now chemical/biological options too ?
Best Regards
Tony

[nancyann]

Tony:  great news buddy.   Good vibes going out to you.  I wish you well !

Always good thoughts,   Nancy

ps:  how's that T3 coming along ?    I'm 9 1/2 months out & folks at work have been telling me 'the old Nancy is coming back.'
I think it'll be about 1 year to really see the great results !

[sgerrard]

The "good food" diet makes a lot of sense to me, a healthy body is the most likely to minimize the impact of the NF2. I don't know about the propolis extract, and they may have trouble validating it if all the testers are also eating "good food" diets - was it the propolis or the food? But if either or both work, you win, and good health is always a good thing, so you can't lose.

Steve

[tony]

Yes I am no bio-chemist
basically the propolis is CAPE rich (which is good at supressing cancer growth in lab tests
and the same anti-PAK1 mechanism appears to work for NF2 as well)
yet the CAPE also exists in lower concentrations in fruits and veg
The only issue for me in terms of the supplement approach - is how
well does the human gut digest such supplements ?
- vitamen supplements are quite poor in this respect
It seems prudent to cover all the angles ?
If the above is all true - then it has serious implications for modern
western society - and town folk generally
Basically a same-day-picked-and-eaten apple
has 10x the CAPE content as the same crop 3-4 weeks later
So by freash - I really do mean TODAY
not a usual supermarket definition (not in UK anyway)
In other words the more "industrialised" the process,
the more time to market - the less effective it will be
So at a time when there are more cancer promoting substances
in the environment - as a result of greater indusrtial process
- our food is even less able to assist us to repair the damage
Hmmm.....project that forward a 100 yrs.
Anyway on a brighter note my face has settled down
and I am considering one more tweak !
Best Regards
Tony

[DontLookBack]

Yes I am new to this site and newly diagnosed, but if all of this is true and this stuff truely does work where do I sign up. I have over 20 tumors..... I'm trying to be a part of a study right now at NINDS but waiting for a reply. What is this other site you all belong to...NF2 Crew??? This really interests me because this case of NF2 started with me. No other known case in my family.

[tony]

Yes NF2Crew link directly to the trials
- much of the earlier work was done in conjunction with them
- and many of them are trial members
Sorry to get personel here, a thousand applogies....
The Bio 30 is unwise if you are "with child"
Its unproven of course - but it could prevent
a natural and full development in the unborn
it is in theory, a natural Angiogenesis inhibitor
If you recall so was Thalidomide (birth defects etc etc)
So best for grown ups - who dont plan any more growing ?
If you need extra links to the info
let me know
Best Regards
Tony

[tony]

Just to update I now have a shrinking tumour
- I have been on the Bio 30 just a month so most likely due to
earlier radiotherapy treatments. That said, I am not complaining !
I will continue with the Bio to sort out the the critters (!?!)
I am begining to see the light here
Best Regards
Tony

[jerseygirl]

This is awesome, Tony! Congratulations! What kind of tumors are these - spinal? Anyhow, this is great and gives all of us hope.

           Eve