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Author Topic: First CK treatment  (Read 1815 times)

sher

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First CK treatment
« on: September 30, 2008, 05:11:20 pm »
Hi....
I made it through my first CK treatment... Thank you Phyl for your helpful words!!!!!!!! Only complaint was they didn't crank up the music enough.
Hugs to you all,
Sher
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1.2cm x 0.6 cm extracanicular component (7 mm) 05/08/08
MRI in AUG 08  showed 30 % growth
Having CK 9/30, 10/1 and 10/2/08
1/12/08 MRI shows swelling

fbarbera

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Re: First CK treatment
« Reply #1 on: September 30, 2008, 05:49:55 pm »
Hey Sher, Congrats -- you're almost home!  Be well, Francesco
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goinbatty

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Re: First CK treatment
« Reply #2 on: September 30, 2008, 08:43:03 pm »
Congrats!  Remember to get plenty of rest and keep us updated.
Sandra
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1/2007 - 6 x 4.5 mm AN
8/2007 - 9 x 6 mm
CK at Georgetown 1/7/08-1/11/08; Dr. Gagnon
3/2008 - 10 x 7 mm
7/2008 - 9 x 10 x 6 mm (NECROTIC CENTER!!!!!)
5/2009 - no change/stable
4/2010 - 10 x 7 x 6 mm; stable/no change
5/2011 - 10 x 7; stable/no change
6/2012 - 8.1 x 7 mm
4/2014 - stable/no change

leapyrtwins

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Re: First CK treatment
« Reply #3 on: September 30, 2008, 09:41:46 pm »
Sher -

thanks for the update; glad to hear day 1 went well.
 
Tell them to crank the music for day 2  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

andrea in slc

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Re: First CK treatment
« Reply #4 on: October 01, 2008, 08:32:55 am »
Sher, what are you listening to while you are getting your treatment? One down, a few more to go!  ;D
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ppearl214

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Re: First CK treatment
« Reply #5 on: October 01, 2008, 08:41:35 am »
well, Sher... it's the last day of CK.... so... did I win the bet? Huh? Did I? ;)

Congrats on finishing treatment.... now, remember those deep breath exercises and forge forward!  I'm feeling those fighting words and Postie-Land in now here for you! Congrats!

You're doing great... and honestly... I'm proud of ya!

BTW, last day with music... the CK team chose my last day's music... Frank Sinatra's "My Way"... and I sure did it my way!  Hoping you chose something fitting as well.

Congrats to you! Now, onward and upward.... keep them fighting words going! :)

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

sher

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Re: First CK treatment
« Reply #6 on: October 01, 2008, 10:47:32 am »
I wanted to listen to Pink Floyd... but didn't want to shock the techs... LOL (a 52 year old listening to Pink Floyd)   They have a website that they go to and punch in who you like and then it plays that or similar. I chose James Taylor and it also played Paul Simon, Crosby Stills and Nash, Cat Stevens... Love them all.

Phyl,
This actually will be my second treatment today as they pushed it back one day. Am starting to have some symptoms.. nothing I can't handle...

did anybody have tingling in the arm of the AN side? I also have a herniated disc in my upper neck so could be that flairing up.
Thanks for all your kudos...
love ya,
Sher
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1.2cm x 0.6 cm extracanicular component (7 mm) 05/08/08
MRI in AUG 08  showed 30 % growth
Having CK 9/30, 10/1 and 10/2/08
1/12/08 MRI shows swelling

Debbi

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Re: First CK treatment
« Reply #7 on: October 01, 2008, 01:46:00 pm »
Hi Sher-

Glad to hear you are doing well!  And, as another 52-year old woman, I'd say - tell 'em to crank up Floyd!  ;D Dark Side of the Moon ...

Good luck!

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Omaschwannoma

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Re: First CK treatment
« Reply #8 on: October 01, 2008, 01:55:38 pm »
Sher, glad all went well for you and now one down and how many more?  May you heal quickly and may your tumor shrink in fear!  Great music choices, Pink Floyd too!  To heck what others may think, besides maybe they would've liked to hear the Floyd too!
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1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear
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