7 Months Post CK MRI

[JuliePA]

I just had my 7 month Post CK MRI - No Change in the size of my Tumor, but; he did say that the texture has changed (Whatever that means) He wouldn't commit to saying it was dying or not dying, just it looks dormant and the texture is changing. Said it looked like it had fluid (he called it cysting). It was a different color than the first MRI, kind of patchy looking. He wasn't saying much, but: did indicate it was a good thing. My next follow-up is 1 year.. maybe then will get some real news.   

Has anyone else had or heard of this??   

                                                                 Thanks, Julie

[carter]

i am only 5 weeks post ck .... so i can't say about your condition....  sorry?

may i ask if the dr just left you hanging?  of that he/she would get back to you?  or wait till teh next mri?

do you have an ent to ask?  a good gp?

my thoughts and prayers are that this is good...

i "love" doctors

[macintosh]

Julie--

I guess I'm going to say what the doc wouldn't say--that this sounds as good as it can be at this point, but doctors often won't be too optimistic too early. My first MRI (one year) was similar (dark spot, no change in size), and the two year MRI just showed slight shrinkage. That's the thing with radiosurgery--you avoid the big, messy one time scene of surgery, but you have to have the patience to deal with a little bit of uncertainty for a longer time.

Hang in there, though--it really does sound like good news.

Mac

[wendysig]

Hi again Julie,

I'm glad to hear your tumor appears to be dormant --  hopefully next year will showtumor  necrosis.  In the meantime I hope that you are feeling well and that this report has given you some comfort. 

Wishing you all the best,
Wendy

[Jim Scott]

Julie:

I'm going to be bold and offer you my congratulations because I surmise that your AN is slowly entering necrosis (cell death) stage but your doctor is being conservative and doesn't want to mislead you if necrosis isn't absolutely evident.  They're like that, sometimes.  In addition, the fact that he scheduled your next MRI for one year from now indicates that he certainly isn't worried about re-growth at this point and probably wants to give the AN time to clearly show necrosis he can point to with confidence.   I would be very pleased. 

Jim

[sgerrard]

No Change in the size of my Tumor

That's all you need to know.

Steve

[JuliePA]

Thanks everyone, I am still having swelling issues after 7 months,even though there was no indication on the MRI. My Dr. doesn't want me to go back on Steriod's.. so it's Motrin/Ibu's for the time being.

How long have any of you had swelling Issues??? and what did you take in place of Steriod's?

Thanks for all your help,
                                      Julie   

[sgerrard]

I took ibuprofen when it was bothering me a little, and Aleve (naproxen) when it was really annoying me. Never took steroids after the treatment itself. Mine was over by about month 5 or 6, but sometimes it can go on for 12. Hope you get past it soon!

Steve