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Author Topic: Joebloggs Update  (Read 38511 times)

suboo73

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Joebloggs Update
« on: March 11, 2009, 03:55:06 am »
Here is a brief note from JB's friend Aimee.  Sounds like JB is doing well!
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JB gave me your email address so I could pass on news about her AN surgery.  I've literally just heard that it went really well - they got all the tumour out and the facial nerve should be fine.  She's still in Recovery right now; I won't be able to see her until she's in the High Dependency Unit in a couple of hours, but I'll keep you posted on how she's going.

What a relief!!

Cheerio,
Aime
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Thank you Aime!  Great news!

Sue (aka Suboo)

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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

suboo73

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Re: Joebloggs Update
« Reply #1 on: March 11, 2009, 06:43:13 am »
More news from Aimee...

JB is in the High Dependency Unit (don't you love that fancy name!) and having the 'first three days don't count' syndrome - swelling, nausea, dizziness, eating ice chips, and not really with it just yet.  BUT - Aimee also said that the surgeons are very happy with the results and no facial paralysis!

Aimee is a great friend to be there with JB - THANK YOU Aimee!

All our thoughts and prayers out to you, JB!
Sincerely,
Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

NancyMc

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Re: Joebloggs Update
« Reply #2 on: March 11, 2009, 06:56:04 am »
Wonderful news!  I've been pacing the site and just found the new thread.  Give her my best wishes for being up and around in no time.
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

Kaybo

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Re: Joebloggs Update
« Reply #3 on: March 11, 2009, 07:01:15 am »
So great to hear - thank Aimee for quick and informative updates.  Way to go JB!!

K ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

cindyj

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Re: Joebloggs Update
« Reply #4 on: March 11, 2009, 07:33:57 am »
Great to hear she's through the surgery!  Thanks for passing on Aimee's updates, Sue!  Will be watching for further news later.

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

sgerrard

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Re: Joebloggs Update
« Reply #5 on: March 11, 2009, 08:55:55 am »
Thanks Aimee for the update. Thanks Sue for passing it on. Thanks Internet for making it possible. :)

Atta girl JB. Won't be long now.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

NancyMc

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Re: Joebloggs Update
« Reply #6 on: March 11, 2009, 09:19:16 am »
Send pics!
Logged
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

tenai98

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Re: Joebloggs Update
« Reply #7 on: March 11, 2009, 09:49:34 am »
Fabulous news.  Keep us posted
JO
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

lori67

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Re: Joebloggs Update
« Reply #8 on: March 11, 2009, 10:55:02 am »
Thanks Aime - that is good news to hear!  I hope we'll hear even more soon!

Tell her I said "good on ya'!".

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

anissa

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Re: Joebloggs Update
« Reply #9 on: March 11, 2009, 11:20:03 am »
Yay JB!  Thanks for the updates Aimee.  Please tell JB "good on ya" from me too. 
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Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

Jim Scott

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Re: Joebloggs Update
« Reply #10 on: March 11, 2009, 02:57:15 pm »
Thanks to Aimee and Sue for the updates.

I'm so pleased to learn the effervescent JB came through the surgery O.K. and seems to be doing well, with no facial nerve involvement.  I'm sure she'll be out of the 'High Dependency Unit' quickly as that lady doesn't seem to be the high dependency type.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Pooter

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Re: Joebloggs Update
« Reply #11 on: March 11, 2009, 05:07:54 pm »
Yea!  Great news!  Keep the updates coming!  Thanks for doing the updates for us Sue (and Aimee).

Regards,
Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

GeorgiaMei

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Re: Joebloggs Update
« Reply #12 on: March 12, 2009, 09:08:47 pm »
Thanks so much for the note.  Congratulations JB!  You are strong and doing great!  I am so happy to hear you are doing so well!  You are in my thoughts this week!  Wishing you wellness, Karen
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3.3cm x 2.6cm : Translab resect 3/08
Post-op epilepsy , multiple clots in brain sinuses
Chronic H/A, Facial paralysis, Imbalance, Vertigo
CN VIII removed-deaf in R ear
Received amazing care from Drs. Roberson and Colen at CEI/Stanford (www.californiaearinstitute.com)

suboo73

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Re: Joebloggs Update
« Reply #13 on: March 13, 2009, 01:11:49 pm »
I have not had any recent updates for JB.  I am hoping 'no news is good news' applys.

JB - Here's my thoughts and prayers for your speedy recovery.
We are all thinking of you.

Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

nancyann

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Re: Joebloggs Update
« Reply #14 on: March 13, 2009, 04:39:20 pm »
JB:   Glad to hear all is well from Aimee.   You are going to feel quite fatigued,
so take it easy.   Take 'little' walks, & nap when your body tells you to.
It took me a couple of months before I could go back to work, but we're
all different,  sounds like you may be 'up & at 'em' sooner than me !

Continued healing my friend,  keep a peaceful heart. 

Always good thoughts,   Nancy
« Last Edit: March 13, 2009, 07:52:43 pm by nancyann »
Logged
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis
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