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Author Topic: Anissa's Updates  (Read 27082 times)

Rich56

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Re: Anissa's Updates
« Reply #105 on: April 05, 2009, 09:05:23 am »
Hi Anissa,

We hope you had an uneventful ride home today, and that your able to get some much needed rest.

Scarlett's parents and two of her siblings spent most of the afternoon visiting shortly after we got her home.  She was wiped out by the end of the day.

All our wishes for a speedy recovery,

Rich & Scarlett

P.S. Chris, thank you, it was really nice of you to give us the play by play while your pacing the floor, and the updates that followed. :)
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SML (Scarlett's) other half, she had - 1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid on 3/18/09 at MGH in Boston, MA. Dr. Barker & Dr. Lee of MGH/MEEI
no facial issues, SSD right side, balance issues to work on.
The AN Calendar is here: http://www.my.calendars.net/AN_Treatments

yardtick

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Re: Anissa's Updates
« Reply #106 on: April 05, 2009, 08:06:13 pm »
Anissa,

Once a mother always a mother :)  I understand your hesitations about going home.  Your children are still very young and need mommy.  I'm sure with your husband support the transition will be smooth.  Listen to your body, when it says "enough, I need to rest" you rest.

The house work, the laundry and meals can all wait.  The hugs, kisses and big smiles from your babies are going to help the healing process.   

Be well,
Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

anissa

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Re: Anissa's Updates
« Reply #107 on: April 14, 2009, 10:04:21 pm »
Hi folks!  Just wanted to post an update on my recovery.  I can't believe its been so long since I posted about it!  I was so glad that I went home, leaving the hospital was the best thing I could have done for my morale and my recovery!!  Here is the excerpt from my blog:

I can’t believe its almost been two weeks since surgery! Life is starting to come around again and I am so thankful for that. Chris took the last two weeks off work (week of surgery and first week home) and went back in the afternoons only this week. My mom has been here most every day during the week to help with the housework. Friends are still dropping meals off each day and I can’t tell you what a huge blessing that is. I’m still not driving although I think I’m getting close to trying. The constant pain has dwindled and I’m down to one pain pill at night to help me sleep and ibuprofen during the day. I still have some cobwebs in my head, by that I mean dizzy and tired, but I’m starting to get used to it and am doing a bit more. My scar is starting to look good and my hair is coming in again. Its amazing what two weeks will do.



Here's Chris & I
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Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

NancyMc

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Re: Anissa's Updates
« Reply #108 on: April 14, 2009, 10:11:20 pm »
That's unbelievable.  You have amazing healing powers!  I'm a week tomorrow and still pretty gory looking from my scar photo.
You are a beautiful woman, and you have this behind you.
I'm happy for you.
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

anissa

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Re: Anissa's Updates
« Reply #109 on: April 14, 2009, 10:23:12 pm »
Nancy, the scar heals so fast!  Its almost kind of sad because I went through a lot for it.  Every person that has come into my house has had to see it, ha ha! 
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Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

sgerrard

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Re: Anissa's Updates
« Reply #110 on: April 14, 2009, 10:54:40 pm »
Nice! Two weeks, all better. :)

The scar will probably heal up completely before you do. Some people report that at three weeks, the recovery seems to slow down, just when it was getting good, and it can be a little disappointing. But it sounds like you are doing fine, and the rest of the discomfort and cobwebs will get better, even if you have to wait for it.

Best wishes to you and Chris.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

EJTampa

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Re: Anissa's Updates
« Reply #111 on: April 14, 2009, 11:03:10 pm »
Whoa!  Even today, 6 weeks out of surgery, my scar doesn't look nearly that healed.  Just today I was getting some pinkish oozing from a small part of it, but it looks like some hair might be growing into it?  Hard to say.
 
Also, I have much less hair regrowing where they did the surgery.  I'll have to get another picture soon to post.
 
Ernie
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-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

NancyMc

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Re: Anissa's Updates
« Reply #112 on: April 15, 2009, 12:00:39 am »
Quote
Some people report that at three weeks, the recovery seems to slow down, just when it was getting good, and it can be a little disappointing.

Huh?  That's the first I've heard of that, Steve.  Great, now I really won't be able to get to sleep.
May be time to bake muffins.   ;D
Logged
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

EJTampa

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Re: Anissa's Updates
« Reply #113 on: April 15, 2009, 12:03:29 am »
Quote from: Nancy McDonald on April 15, 2009, 12:00:39 am
Quote
Some people report that at three weeks, the recovery seems to slow down, just when it was getting good, and it can be a little disappointing.

Huh?  That's the first I've heard of that, Steve.  Great, now I really won't be able to get to sleep.
May be time to bake muffins.   ;D

Steve!  See what you've done?  Now I'm gonna have to jump on a plane, fly to New Hampshire, and help her eat those muffins!
 
Ernie
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-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

NancyMc

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Re: Anissa's Updates
« Reply #114 on: April 15, 2009, 12:04:39 am »
be here by 4 am if you want 'em hot
Logged
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

suboo73

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Re: Anissa's Updates
« Reply #115 on: April 15, 2009, 03:11:10 am »
Anissa and Chris,

Hi!  So glad to see the pic, you both look great! 
Who would ever guess you had brain surgery, Anissa?
I hope your healing continues - and just hug those babies, they grow up WAY too fast!
-------
Hijack - Nancy:  Muffins, i want homemade muffins!
May i suggest you TAKE the muffins to Ernie - those warm Florida breezes - maybe you can write off the trip on your insurance as post 'treatment!'
(Like have PT or VT, LOL!)
And i will be happy to come help you carry the muffins southward!

Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

tenai98

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Re: Anissa's Updates
« Reply #116 on: April 15, 2009, 04:42:46 am »
I'm behind you Anissa. MY stitches comes out this monday..I KNOW WHAt you mean by going thru alot for it..pics and more pics. My gold is to be drivin   by end of May. I know the dangers of driving being an instructor. My son is also one so I will have him assess me and be incar with me to take over if need be.  I get to see 2/6 grandkids tonight..yeaaaaaaaaaaaaaaaa..morale booster
JO ;D
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

TaraT

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Re: Anissa's Updates
« Reply #117 on: April 15, 2009, 06:47:26 am »
Anissa,

You look so good!  The scar looks really good.  My son was dying to go to Wal-Mart yesterday so I took him.  We made it home safe and sound.  I was a little worried because of my eye and drove most of the time with my finger over the bad one.  It was nice to drive again though.  I am so glad you have had so much help in your recovery.  Nothing like family!  Tara
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1/7/09 2 cm AN diagnosed
3/24/09 Translab surgery
Dr. Chen and Dr. Aziz, AGH, Pittsburgh, PA
SSD right ear
Facial paralysis right side 3/6

leapyrtwins

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Re: Anissa's Updates
« Reply #118 on: April 15, 2009, 07:00:19 am »
Anissa -

incredibly beautiful scar   ;D  Mine healed fast, but not that fast  :o

Great picture of you and Chris - you're looking very good for someone who had AN surgery recently.

Tara -

congratulations on the "Driving to Walmart" milestone.  You did good!!!  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

NancyMc

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Re: Anissa's Updates
« Reply #119 on: April 15, 2009, 07:31:20 am »
muffin hijack - it's so nice up here this week, i'm not leavin' for anywhere!
I am getting really nervous about driving.  I totally relate to going around with a finger holding my eye down.  Did we have the same surgery?  ;D   Going out to get an eye patch in a few minutes and a box of thank you notes.  I get stitches out on Monday, too, can't wait.  Sorry my hair will still be gross at the brunch, Guys.
Logged
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness
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