NF2 Support Group at NYU

[marymomof3]

Hi everyone.  I am not diagnosed with NF2, but was at a recent appointment with my surgeon, Dr Roland at NYU, and heard about a new group they have put together for patients diagnosed with NF2.  I thought it was good know, and wanted to pass the info along.  I believe that Dr Roland is heading the team of doctors to collectively focus on working with patients diagnosed with NF2.  I read an article (while I was waiting for my appointment) that so many patients with NF2 find it difficult to get the proper care from 1 or a team of doctors so I thought this info might help 1 person, it was worth posting it.