Brief poll on conditions post-treatment

[jazzfunkanne]

. size of tumor pre-treatment 4,5cm
2. treatment type (radio-surgery or surgery) surgery
3. delivery method or surgical approach taken

4. balance pre-treatment (1-10) 10
5. balance post-treatment short term (3 months) (1-10) 8
6. balance post-treatment long term (1-10) 8

7. hearing pre-treatment (1-10) 6
8. hearing post-treatment short term (3 months) (1-10) 0
9. hearing post-treatment long term (1-10)0

10. headache pre-treatment (1-10) 0
11. headache post-treatment short term (3 months) (1-10) 0
12. headache post-treatment long term (1-10) 0

13. Facial pre-treatment (1-10) 10
14. facial post-treatment short term (3 months) (1-10) grade 6
15. facial post-treatment long term (1-10) grade 2

16. cognitive pre-treatment (1-10)
17. cognitive post-treatment short term (3 months) (1-10)
18. cognitive post-treatment long term (1-10)

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful 8
20. Comments - clarifications -
21. where was your treatment performed, Drs? glasgow
 
 
« Last Edit: April 16, 2009, 01:02:01 AM by stoneaxe »  Report to moderator    Logged 

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[EJTampa]

1. size of tumor pre-treatment  1.3 cm
2. treatment type (radio-surgery or surgery) surgery
3. delivery method or surgical approach taken retrosigmoid

4. balance pre-treatment (1-10) 10
5. balance post-treatment short term (3 months) (1-10) 7
6. balance post-treatment long term (1-10) not there yet

7. hearing pre-treatment (1-10) 8
8. hearing post-treatment short term (3 months) (1-10) 1
9. hearing post-treatment long term (1-10) not there yet

10. headache pre-treatment (1-10) 10
11. headache post-treatment short term (3 months) (1-10) 10
12. headache post-treatment long term (1-10)

13. Facial pre-treatment (1-10) 10
14. facial post-treatment short term (3 months) (1-10) 10
15. facial post-treatment long term (1-10)

16. cognitive pre-treatment (1-10) 8
17. cognitive post-treatment short term (3 months) (1-10) 8
18. cognitive post-treatment long term (1-10)

19. would you deem your treatment a success (1-10) 9
20. Comments - clarifications - I have light headedness issues turning my head or with an up/down motion.  Not really balance related, so doesn't fit a category here.
21. where was your treatment performed, Drs? Tampa General Hosptial.  Dr. Bartels and Dr. Danner.  http://www.tampabayhearing.com/

[Seal]

Great idea. I was going to do something like this, but this is outstanding.

1. size of tumor pre-treatment   ---  2.1cm X 2.2cm
2. treatment type (radio-surgery or surgery) ----  surgery
3. delivery method or surgical approach taken --- retrosigmoid

4. balance pre-treatment (1-10)  --- 5 maybe less
5. balance post-treatment short term (3 months) (1-10) ---- 5  plus after four days already better
6. balance post-treatment long term (1-10)  ----   doctors expect a full recovery at of near 100%

7. hearing pre-treatment (1-10)  ---- less than a 2
8. hearing post-treatment short term (3 months) (1-10) ---- zerio
9. hearing post-treatment long term (1-10)  ---  zero

10. headache pre-treatment (1-10)  --- none
11. headache post-treatment short term (3 months) (1-10)  ---   none
12. headache post-treatment long term (1-10)  ----  none

13. Facial pre-treatment (1-10) ---  10 (meaning good)
14. facial post-treatment short term (3 months) (1-10) ---  9
15. facial post-treatment long term (1-10)  ---  10

16. cognitive pre-treatment (1-10) ---  8
17. cognitive post-treatment short term (3 months) (1-10) ---- 7 right now (five days postop)
18. cognitive post-treatment long term (1-10)  ---  should be at 10

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful -----  10 plus
20. Comments - clarifications -  I do have tongue numbness left that should subside slowly as everything heals
21. where was your treatment performed, Drs? ---   Drs. McKenna & Barker -   MGH/HEEI

[/quote]

[salamander]

1. size of tumor pre-treatment - 2.9 CM
2. treatment type (radio-surgery or surgery) - Surgery
3. delivery method or surgical approach taken Suboccipital

4. balance pre-treatment (1-10) 9
5. balance post-treatment short term (3 months) (1-10) 5
6. balance post-treatment long term (1-10) 7

7. hearing pre-treatment (1-10) 7 (right side)
8. hearing post-treatment short term (3 months) (1-10) 0
9. hearing post-treatment long term (1-10) 0

10. headache pre-treatment (1-10) 9
11. headache post-treatment short term (3 months) (1-10) 2
12. headache post-treatment long term (1-10) 4

13. Facial pre-treatment (1-10) 10
14. facial post-treatment short term (3 months) (1-10) 0
15. facial post-treatment long term (1-10) 0, still hoping 5 months out

16. cognitive pre-treatment (1-10) 10
17. cognitive post-treatment short term (3 months) (1-10) 9
18. cognitive post-treatment long term (1-10) 9

19. would you deem your treatment a success (1-10) 10
20. Comments - clarifications - very successful because the tumor is gone.  Still adjusting the the new me.  I'm alive and greatful.
21. where was your treatment performed, Drs? Mayo, Link & Driscoll

[Jeanlea]

1. size of tumor pre-treatment - 3.5 cm
2. treatment type (radio-surgery or surgery) surgery
3. delivery method or surgical approach taken- translab

4. balance pre-treatment (1-10)  10
5. balance post-treatment short term (3 months) (1-10)  7
6. balance post-treatment long term (1-10)  9

7. hearing pre-treatment (1-10)  9
8. hearing post-treatment short term (3 months) (1-10) 1
9. hearing post-treatment long term (1-10) 1

10. headache pre-treatment (1-10) 10
11. headache post-treatment short term (3 months) (1-10) 10
12. headache post-treatment long term (1-10) 10

13. Facial pre-treatment (1-10) 10
14. facial post-treatment short term (3 months) (1-10) 1
15. facial post-treatment long term (1-10) 7

16. cognitive pre-treatment (1-10) 10
17. cognitive post-treatment short term (3 months) (1-10) 10
18. cognitive post-treatment long term (1-10) 10

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful  10
20. Comments - clarifications -  tumor's gone, so it's successful; I've adjusted to face and SSD
21. where was your treatment performed, Drs? Milwaukee Medical College-Froedert Memorial Drs. Friedland and Meyers

[anissa]

1. size of tumor pre-treatment  2.1x1.8x1.9 cm
2. treatment type (radio-surgery or surgery) surgery
3. delivery method or surgical approach taken translab

4. balance pre-treatment (1-10) 9
5. balance post-treatment short term (3 months) (1-10) 7
6. balance post-treatment long term (1-10) not there yet

7. hearing pre-treatment (1-10) 7
8. hearing post-treatment short term (3 months) (1-10) 0
9. hearing post-treatment long term (1-10) 0

10. headache pre-treatment (1-10) 10
11. headache post-treatment short term (3 months) (1-10) 9
12. headache post-treatment long term (1-10) not there yet

13. Facial pre-treatment (1-10) 10
14. facial post-treatment short term (3 months) (1-10) 10
15. facial post-treatment long term (1-10)
 
16. cognitive pre-treatment (1-10) 10
17. cognitive post-treatment short term (3 months) (1-10) 8
18. cognitive post-treatment long term (1-10) not there yet

19. would you deem your treatment a success (1-10) 10
20. Comments - clarifications - I have light headedness issues turning my head or with an up/down motion.  Not really balance related, so doesn't fit a category here.
21. where was your treatment performed, Drs? University of Utah Med Ctr., Drs. Shelton and Couldwell

[Tamara]

I'll play too...are you going to summarize this eventually?

1. size of tumor pre-treatment - 7 mm
2. treatment type (radio-surgery or surgery) - surgery
3. delivery method or surgical approach taken - translab

4. balance pre-treatment (1-10) -10
5. balance post-treatment short term (3 months) (1-10) -8
6. balance post-treatment long term (1-10) -9

7. hearing pre-treatment (1-10) -3
8. hearing post-treatment short term (3 months) (1-10) - 0, SSD
9. hearing post-treatment long term (1-10) 0, SSD

10. headache pre-treatment (1-10) - 10
11. headache post-treatment short term (3 months) (1-10) - 10
12. headache post-treatment long term (1-10) - 10

13. Facial pre-treatment (1-10) -10
14. facial post-treatment short term (3 months) (1-10) - 5
15. facial post-treatment long term (1-10) - 7

16. cognitive pre-treatment (1-10) -10
17. cognitive post-treatment short term (3 months) (1-10) -10
18. cognitive post-treatment long term (1-10) -10

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful  - 9
20. Comments - clarifications - Successful in that I don't have a tumor in my head anymore, but could have done without the CSF leak and surgery to fix that
21. where was your treatment performed, Drs? Waukesha Memorial Hospital, Waukesha, WI, Drs. Steven Harvey and Kenneth Riekert

Tamara

[/quote]

[Keri]

 1. size of tumor pre-treatment  15 or 16 mm
2. treatment type (radio-surgery or surgery) - surgery
3. delivery method or surgical approach taken - translab

4. balance pre-treatment (1-10) 10
5. balance post-treatment short term (3 months) (1-10) 8
6. balance post-treatment long term (1-10) na

7. hearing pre-treatment (1-10) 3
8. hearing post-treatment short term (3 months) (1-10) - 0, SSD
9. hearing post-treatment long term (1-10) 0, SSD

10. headache pre-treatment (1-10)  9 just a few occassional headaches
11. headache post-treatment short term (3 months) (1-10) 4 some killer headaches for the first few weeks
12. headache post-treatment long term (1-10) at almost 3 months, they're pretty much gone

13. Facial pre-treatment (1-10) 10
14. facial post-treatment short term (3 months) (1-10) 4
15. facial post-treatment long term (1-10) expecting full recovery, just slow!

16. cognitive pre-treatment (1-10) 10
17. cognitive post-treatment short term (3 months) (1-10) 8
18. cognitive post-treatment long term (1-10) 10

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful   10
20. Comments - clarifications - glad it's gone; facial issues are improving; i feel pretty good!
21. where was your treatment performed? Univ of MD in Baltimore; Dr Eisenmand and Dr Eisenberg

[stoneaxe]

Tamara asked if I planned on summarizing this eventually. I'm not sure if thats a good idea. I don't want folks looking for answers to look at this as scientific data...this is very subjective obviously. On the other hand...it's how folks feel that counts....not what some dry medical definition of what success is.

What do you folks think...is a summary a good thing...worthwhile? If I do it I'll break it down by a range of tumor sizes, treatment type and approach and give averages for the responses. I think I'll want to wait for a little larger sample too.

[Jim Scott]

What do you folks think...is a summary a good thing...worthwhile? If I do it I'll break it down by a range of tumor sizes, treatment type and approach and give averages for the responses. I think I'll want to wait for a little larger sample too.

My inclination is that you should do exactly what you stated.  Wait for a slightly larger sample size, break it down (tumor size/treatment type/averages) and make it abundantly clear that the summary is not scientific but simply an indicator based on AN post-operative results form a small sampling of our members.  That would be both factual and effective.  Well, it works for me. 

Jim

[Tamara]

What do you folks think...is a summary a good thing...worthwhile? If I do it I'll break it down by a range of tumor sizes, treatment type and approach and give averages for the responses. I think I'll want to wait for a little larger sample too.

My inclination is that you should do exactly what you stated.  Wait for a slightly larger sample size, break it down (tumor size/treatment type/averages) and make it abundantly clear that the summery is not scientific but simply an indicator based on AN post-operative results form a small sampling of our members.  That would be both factual and effective.  Well, it works for me. 

Jim

Also, keep in mind that we are likely a skewed group ( ) in that those who post are those more likely to have or have had difficulties.  There ARE multiple exceptions to this generality, our Jim included, but I would still postulate that most of the folks here are here because they've had issues.

Tam

[ppearl214]

Hey Tam,

thanks for sharing this... I think, in my case, I have to respectfully disagree... as I know many that are posting sans post-treatment issues since they want to help out others that may be newbies. Tough call.

Phyl

What do you folks think...is a summary a good thing...worthwhile? If I do it I'll break it down by a range of tumor sizes, treatment type and approach and give averages for the responses. I think I'll want to wait for a little larger sample too.

My inclination is that you should do exactly what you stated.  Wait for a slightly larger sample size, break it down (tumor size/treatment type/averages) and make it abundantly clear that the summery is not scientific but simply an indicator based on AN post-operative results form a small sampling of our members.  That would be both factual and effective.  Well, it works for me. 

Jim

Also, keep in mind that we are likely a skewed group ( ) in that those who post are those more likely to have or have had difficulties.  There ARE multiple exceptions to this generality, our Jim included, but I would still postulate that most of the folks here are here because they've had issues.

Tam

[NE Farmwife]

1. size of tumor pre-treatment     2.1 cm
2. treatment type (radio-surgery or surgery) - radio-surgery
3. delivery method or surgical approach taken - CK

4. balance pre-treatment (1-10) 10
5. balance post-treatment short term (3 months) (1-10) 10
6. balance post-treatment long term (1-10) n/a

7. hearing pre-treatment (1-10) 5
8. hearing post-treatment short term (3 months) (1-10) - 5
9. hearing post-treatment long term (1-10) 0, n/a

10. headache pre-treatment (1-10)  10
11. headache post-treatment short term (3 months) (1-10) 10
12. headache post-treatment long term (1-10)  n/a

13. Facial pre-treatment (1-10) 8 - numbness
14. facial post-treatment short term (3 months) (1-10) 8
15. facial post-treatment long term (1-10) n/a

16. cognitive pre-treatment (1-10) 10
17. cognitive post-treatment short term (3 months) (1-10) 10
18. cognitive post-treatment long term (1-10) n/a

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful   10 - really is too early to tell
20. Comments - clarifications - Symptoms after CK is the same as before CK - have tinnitus, lower facial numbness, loss of hearing.  CK performed mid-January 2009.
21. where was your treatment performed? Stanford - Dr. Chang and Dr. Soltys

[sgerrard]

What do you folks think...is a summary a good thing...worthwhile? If I do it I'll break it down by a range of tumor sizes, treatment type and approach and give averages for the responses. I think I'll want to wait for a little larger sample too.

I would not summarize this along the lines of X percent retained hearing with translab, Y percent with retrosig, or other such technical measures. There is not enough data for that, and the 2008 ANA Survey is a better place to get those kind of numbers (Phyl posted the link).

I do think it is worth summarizing along the lines of "how good was your outcome." I notice that many rate it quite high, even when there is a significant negative symptom involved. Patient perception of quality of life, and satisfaction with results, seems to get overlooked, and would be useful information for new patients.

Steve

[kenneth_k]

In my humble opinion, it should be summarized in order to call it a poll. At least that was what I expected when I answered. And now I'm darn curious.

Regards, Kenneth.