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Author Topic: I could use some prayers, too...  (Read 5614 times)

Cheryl R

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Re: I could use some prayers, too...
« Reply #15 on: May 12, 2009, 10:54:23 am »
How great and what a relief!!          I was wondering what you had found out!          Glad we heard so soon!
                                                     Cheryl R
Logged
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Sue

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Re: I could use some prayers, too...
« Reply #16 on: May 12, 2009, 11:48:23 am »
I am so happy, too!  Now I can go back to worrying about the AN side of my face!  :D

Sue in Vancouver


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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

lori67

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Re: I could use some prayers, too...
« Reply #17 on: May 12, 2009, 11:52:37 am »
Great news Sue!   ;D ;D

I can't imagine losing my jaw....it gets the most exercise of any part of my body!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

wendysig

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Re: I could use some prayers, too...
« Reply #18 on: May 12, 2009, 12:22:06 pm »
Sue -

Great news -- thank goodness things turn out okay -- I am so relieved and happy for you! 

Best wishes
Wendy

Lori -- As usual, you are a riot!
Logged
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Jim Scott

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Re: I could use some prayers, too...
« Reply #19 on: May 12, 2009, 12:28:42 pm »
Sue ~

I'm so happy for you!  Prayers were answered.  Congratulations!  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

ppearl214

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Re: I could use some prayers, too...
« Reply #20 on: May 12, 2009, 12:39:35 pm »
Sue,

the heaven's were a-watchin' and ya done good! :) Congrats! :)

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Sue

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Re: I could use some prayers, too...
« Reply #21 on: May 12, 2009, 01:07:33 pm »
Lori, that thought occurred to me.  My family might have been happy to have me shut up for awhile since I might have to have my jaw wired shut! HA  See I had ALL sorts of scenarios going on there for a day or two!  Sheesh

Sue in Van
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

CHD63

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Re: I could use some prayers, too...
« Reply #22 on: May 12, 2009, 03:38:53 pm »
Terrific news!  Whew!   ;D

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Sue

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Re: I could use some prayers, too...
« Reply #23 on: May 12, 2009, 03:46:06 pm »
Well, we probably all are a little gun shy now about the small risk factors of rare complications.  We ALL know that "rare" happens to somebody.  Ya kind of feel like you are one of those ducks in a shooting gallery, weaving and ducking and running for cover trying to dodge the bullets headed in your direction.  Dodged this one! 

Thank you again for all your kind words and support.  Are we a great group or what!

Duckin' for cover in Vancouver, ;)
Sue
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Ellenmn

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Re: I could use some prayers, too...
« Reply #24 on: May 12, 2009, 03:55:35 pm »
Just saw the post. I'm soooo glad things turned out ok.

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Keri

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Re: I could use some prayers, too...
« Reply #25 on: May 17, 2009, 04:43:23 pm »
I'm so glad for you too!

Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Sue

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Re: I could use some prayers, too...
« Reply #26 on: May 17, 2009, 07:36:29 pm »
Me Too!  Thank you all.  Now you can return to our regularly scheduled AN program!  ;) ;)

Sue in Vancouver

PS
So glad you guys are here.
Logged
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

wendysig

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Re: I could use some prayers, too...
« Reply #27 on: May 18, 2009, 08:58:50 am »
Quote from: donnalynn on May 12, 2009, 06:33:41 pm
We are ducki'n together baby!!! :-*

Truer words were never spoken!  glad everything is okay!

Wendy
Logged
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

moe

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Re: I could use some prayers, too...
« Reply #28 on: May 18, 2009, 10:56:12 am »
Catching up. So glad everything's okay, Sue.
The imagination is  a crazy thing. I always think worst case scenario too. Why do we do that???!!!!!!!
Like you said-back to our regularly scheduled AN program!
No fosamax for me if the time comes.-THANKS!
Maureen
Logged
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty
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