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Author Topic: 8cm AN  (Read 3409 times)

kimbo

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8cm AN
« on: May 31, 2009, 04:33:30 pm »
Hi folks

Has anyone ever heard of an AN being 8cm, I purchased a book the other day (Love Has No Limits) and the story has been written by the wife of a 29 year old diagnosed with an 8cm AN in April 1997 in Wollongong NSW Australia.  The story is about her journey supporting her then fiancée and now husband through his ordeal after being diagnosed with a large Acoustic Neuroma.

Kimbo   :o
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Diagn 8/8/08 AN right 13mm x 9mm
mod/severe hearing loss & tinnitus
Translab surgery 05/17/2011
SSD & CSF leak x 4
Aussie

Brendalu

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Re: 8cm AN
« Reply #1 on: May 31, 2009, 04:37:27 pm »
Yes, I have.  I believe that is really close to the size a sports writer from Texas had and he is doing great.  I'll have to pick up that book.

Brenda
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AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

mimoore

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Re: 8cm AN
« Reply #2 on: May 31, 2009, 06:50:54 pm »
Yikes!!! Now that is a big one!
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

leapyrtwins

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Re: 8cm AN
« Reply #3 on: May 31, 2009, 07:32:15 pm »
Our very own Satman had an AN that was 8 cm.

So it does happen.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

ppearl214

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Re: 8cm AN
« Reply #4 on: June 01, 2009, 05:31:58 am »
Quote from: leapyrtwins on May 31, 2009, 07:32:15 pm
Our very own Satman had an AN that was 8 cm.

So it does happen.

Jan

Satman is the  only one I am aware of that size... although many here have come fairly close (definately over 5cm).

Phyl
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Soundy

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Re: 8cm AN
« Reply #5 on: June 02, 2009, 04:49:44 pm »
I had to go check this out ...he and his friends and family sound like a wonderful bunch with alto of love and
support to go around for everyone ... I am going to order the book come payday ...



http://www.taniahayes.com.au/extract.html

http://webdiary.com.au/cms/?q=node/2351
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3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

nancyann

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Re: 8cm AN
« Reply #6 on: June 02, 2009, 06:54:19 pm »
Incredible story - what love & strength can do...
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

kimbo

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Re: 8cm AN
« Reply #7 on: June 03, 2009, 04:11:31 am »
AN folks

For those that are interested in purchasing the book details as follows:

Published by:

Mira Books (2008)
Level 5
15 Help Street
Chatswood NSW 2067
Australia

Book Title - Love Has No Limits

Author - Tania Hayes



This guy had a very difficult recovery having numerous operations to deal with "fluid on the brain" and he has left sided paralysis, however; the book states that he literally was fighting for his life after diagnosis because the tumor was so entangled around tthe brain stem that he is lucky with his outcomes.  I am still reading.

Wishing you a good day.

Kimbo

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Diagn 8/8/08 AN right 13mm x 9mm
mod/severe hearing loss & tinnitus
Translab surgery 05/17/2011
SSD & CSF leak x 4
Aussie

moe

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Re: 8cm AN
« Reply #8 on: June 08, 2009, 09:51:43 am »
Thanks for the book idea.
I will definitely read it.
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty
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