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Author Topic: Stoneaxe's Update  (Read 48807 times)

leapyrtwins

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Re: Stoneaxe's Update
« Reply #150 on: July 14, 2009, 06:45:10 am »
Official go ahead to get back on the water.

Now there's a milestone worth celebrating!   ;D

Congratulations, Bob!  ;D
« Last Edit: July 14, 2009, 10:28:54 pm by leapyrtwins »
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: Stoneaxe's Update
« Reply #151 on: July 14, 2009, 07:05:20 am »
YEA!!   ;D

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Keri

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Re: Stoneaxe's Update
« Reply #152 on: July 14, 2009, 08:40:14 am »
Great news! Glad it's official, esp since you already did a bit of paddling!
Driving in Boston - yikes!

Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

joebloggs

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Re: Stoneaxe's Update
« Reply #153 on: July 14, 2009, 09:03:29 am »
That's so awesome Bob!
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Right sided AN 2.7cm at last MRI.  Hearing loss/facial numbness.  Translab scheduled March 11th 2009.  Translab at Royal Melbourne Hospital, Australia successful!  Total tumour removed, SSD, no facial issues, numbness has left the building, balance issues but they'll get better and I'm loving life!

tsl

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Re: Stoneaxe's Update
« Reply #154 on: July 14, 2009, 10:22:47 am »
Bob,
I am really happy for you.  Be careful in the water and try not to overdo it.  You've made it thru the rough patch.  There's no stopping you now.
Take care,
Theresa
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AN diagnosed Dec 2006
Approx. size 9 x 6  x 4 mm
Proton Beam radiosurgery wtih Dr. Jay Loeffler (radiation oncologist) and Dr. Paul Chapman (neurosurgeon) at Mass. General on Nov.2, 2007

stoneaxe

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Re: Stoneaxe's Update
« Reply #155 on: July 15, 2009, 08:43:28 pm »
4 miles today with a couple of friends. Felt great if a bit off. Only real issue was my eye. I thought the sunglasses I bought with the gasket would be enough to keep the wind off...not. Got dry and irritated. I forgot to bring the  clear eye patch Dr McKenna gave me. Should solve the problem...we'll see tomorrow.
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

msmaggie

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Re: Stoneaxe's Update
« Reply #156 on: July 15, 2009, 09:27:08 pm »
Driving in Boston?  Gives me the willies just to think about it!  So glad yo uare doing well and are back doing the things you love!

Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

stoneaxe

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Re: Stoneaxe's Update
« Reply #157 on: July 17, 2009, 12:09:52 pm »
Thanks for the kind words all.

12 miles today with a few friends training for the CCBC. Eye patch works good. Makes things blurry when it fogs up but I manage. No falling anyway... ;D.  I was very tired the last couple of miles. With only 3 weeks of training left before the event I have my work cut out for me.
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

Helga

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Re: Stoneaxe's Update
« Reply #158 on: July 18, 2009, 07:12:09 am »
You are the man! I am happy to be walking, and you zip around on the water! Well, I come from a long line of couch potatoes, and my plan for the future is to actually change that and beome a lot more active again, no more excuses. You are setting such a great example, thansk!
Helga
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cindyj

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Re: Stoneaxe's Update
« Reply #159 on: July 18, 2009, 02:03:58 pm »
Way to go, Bob!  Happy paddling to you!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

stoneaxe

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Re: Stoneaxe's Update
« Reply #160 on: July 18, 2009, 06:01:54 pm »
Thanks all...not so sure about being a great example...I just want to be like these guys when I grow up... ;D
http://vimeo.com/4601346
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

stoneaxe

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Re: Stoneaxe's Update
« Reply #161 on: July 22, 2009, 12:04:28 pm »
Everythings been going so smoothly that i guess I'm spoiled. Just waiting for my facial nerve to join with the program so the eye problems will stop...hopefully.

I did have a bit of a scare this morning....potential CSF leak in my ear. Had some fluid come out. Called the doc and the nurse had me tilt my head to the side and strain...no more fluid though. Doc says it may just be some of the fat put in after the surgery has liquified. It was only a few drops with a little blood mixed in. Not leaking anymore. Doc said if it comes back and is worse to call. Fingers crossed. Was surprised after 5 weeks to have something happen.
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

joebloggs

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Re: Stoneaxe's Update
« Reply #162 on: July 22, 2009, 03:20:28 pm »
Jeez, that's a bit scary!  Glad you're ok though.  I wish the fat in the rest of my body would liquify and pour out!
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Right sided AN 2.7cm at last MRI.  Hearing loss/facial numbness.  Translab scheduled March 11th 2009.  Translab at Royal Melbourne Hospital, Australia successful!  Total tumour removed, SSD, no facial issues, numbness has left the building, balance issues but they'll get better and I'm loving life!

NancyMc

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Re: Stoneaxe's Update
« Reply #163 on: July 22, 2009, 07:36:07 pm »
 ;D  then get that pink sprinkly donut out of your face, silly

Bob,
Dr McK asked me to swab gently with alcohol after each shower.  I usually get a bit of yellow coloration on the swab when it is withdrawn.  I wonder if that is fat.   :o   ???

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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

stoneaxe

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Re: Stoneaxe's Update
« Reply #164 on: July 22, 2009, 09:50:43 pm »
LOL...yeah me too JB...me too. I must admit though I'm feeling pretty good about the shape I'm in despite the weight gain of steroid induced indulgence....never thought I was going to stop eating! i've already burned off most of it with my training. Hope to be at 250 lbs for the event.

Nancy...I've been diligent with the alcohol at least once a day and always after showers. I was getting the yellow discoloration too but I thought the damn thing was pretty much all healed. Also seems to be a bit soft/spongy within the confines of the big incision. If I touch it I can feel the pressure transfer to the inner ear plug...feels weird. Going to keep close watch on it. Hate to have something happen now that would require more work and keep me off the water for the CCBC.
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org
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