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Author Topic: June 2nd....  (Read 6603 times)

wendysig

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Re: June 2nd....
« Reply #15 on: May 30, 2011, 10:50:39 pm »
Jen,

Best of luck.  Here's hoping that your MRI is clear.  I know you are  anxious,because you've had a previous regrowth.  I agree, keep breathing and like Debbi, I find chocolate helps almost any nail biting situation. Keep us posted.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

CHD63

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  • Life is good again!!
Re: June 2nd....
« Reply #16 on: May 31, 2011, 05:41:49 am »
Jennifer .....

As you know, I can completely identify with your anxiety over the dreaded MRI this week.  This normal reaction is probably something we will live with the rest of our lives.

I am determined, however, not to let the acoustic neuroma control my life.  Yes, the fear is always there and the deafness is always there, but how I react to it is what I am working hard to change.  For some reason the phrase "make lemonade out of lemons" keeps coming to my mind.  I am constantly searching for ways to turn all of these events into positives.

Many, many prayers for another clean MRI for you and a lessening of your fear of another regrowth.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Kaybo

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Re: June 2nd....
« Reply #17 on: May 31, 2011, 07:28:08 am »
Jennifer~

I completely understand your feelings and I can honestly say that the fears do get less & less as the years go on...but unforunately don't go away COMPLETELY.

This is certainly NOT something to let dominate your life - there is SO MUCH more to life and a LOT of living to do!!   ;D

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

RichB57

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Re: June 2nd....
« Reply #18 on: May 31, 2011, 09:37:44 am »
Good luck.  Hope it comes back clean.
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Diagnosed 12/1/2010, 12.3 mm x 15.2 mm x 15.2 mm, retrosigmoid removal by Drs. Barker & Lee at MGH on April 20, 2011. Lost blood supply to auditory nerve, so SSD. Facial paralysis.

Jwh

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Re: June 2nd....
« Reply #19 on: May 31, 2011, 07:54:32 pm »
Thanks everyone!  Tomorrow is my birthday so I am going to enjoy the day.  After all it only comes once a year ( :  Thursday off to the big city!  I love reading responses it makes me feel so much better.
Quote from: Lorbis on May 30, 2011, 06:49:45 pm
I have a 4:30 appt w Dr. Roland on June 2! My first visit with a specialist since being diagnosed by my ENT a few weeks ago!  Good luck to you!


Lorbis - you're in awesome hands with Dr. Roland.  You'll be amazed by his personality and knowledge.  Sooo down to earth. He's fantastic.  We will be crossing paths on Thursday.
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5/01  1.3 AN removed at NYU using Retrosig. Approach
2/07  Rediagnosed with Regrowth 8 mm (wait & watch mode)
1/09  1.4 AN removed at NYU using Translab (total tumor removal)

Debbi

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Re: June 2nd....
« Reply #20 on: June 01, 2011, 12:40:35 pm »
Happy Birthday, Jennifer!!!!  Hope you are having a great day!

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Jwh

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Re: June 2nd....
« Reply #21 on: June 02, 2011, 04:43:50 am »
off to the big city  :o
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5/01  1.3 AN removed at NYU using Retrosig. Approach
2/07  Rediagnosed with Regrowth 8 mm (wait & watch mode)
1/09  1.4 AN removed at NYU using Translab (total tumor removal)

Debbi

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Re: June 2nd....
« Reply #22 on: June 02, 2011, 05:11:22 am »
Good Luck!!  Let us know what happens.  Fingers crossed.
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Lorbis

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Re: June 2nd....
« Reply #23 on: June 02, 2011, 07:40:20 pm »
Did I see you at Dr. Roland's office??  :) How did the MRI go? You're right-I liked him very much!  He thinks I should have translab surgery-but he also thinks I should wait 6 months and do another MRI first.  Hard decisions...
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Jwh

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Re: June 2nd....
« Reply #24 on: June 02, 2011, 08:07:18 pm »
Hi Lorbis,
I'm not sure if we crossed paths.  I left his office at 3:15.  He's an amazing doctor!  I would trust what he says.  Why does he think you should wait 6 months?  I waited approx. a year (my own doing) and he finally told me that I should have it done and I listened.  What size is your tumor?
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5/01  1.3 AN removed at NYU using Retrosig. Approach
2/07  Rediagnosed with Regrowth 8 mm (wait & watch mode)
1/09  1.4 AN removed at NYU using Translab (total tumor removal)

Lorbis

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Re: June 2nd....
« Reply #25 on: June 02, 2011, 08:31:33 pm »
Mine is 1.5 cm.  He said if I have translab surgery I'll lose the hearing that I have.  There is no brain stem involvement so he said to do another MRI in six months to see if it's actually growing.  He thinks it is but he said I have time to wait. It gives me time I guess.
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Lorbis

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Re: June 2nd....
« Reply #26 on: June 02, 2011, 08:33:29 pm »
Oh and we didn't cross paths-I was in the hospital lobby at 3:15-got there nice and early...went up to his office at 4:00.
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