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Author Topic: NY/NJ Area ANers - Mark Your Calendars!  (Read 9722 times)

Debbi

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NY/NJ Area ANers - Mark Your Calendars!
« on: January 29, 2010, 04:16:37 pm »
Yes, folks, it's about time that we got together again for brunch and fun!  Wendy and I have arbitrarily picked Sunday, May 2 at 12 Noon for our next get-together.  As usual, we will meet at Brendan's in NYC (42 W. 35th Street - Btwn 5th & 6th)  Please spread the word - it would be great to have another good turnout!

So, who is in?  :D :D

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

wcrimi

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #1 on: January 29, 2010, 04:26:25 pm »
Barring the really unexpected, count me in this time. I never work on Sunday!   Looking forward to finally meeting everyone. ;D
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1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

jerseygirl

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #2 on: January 29, 2010, 05:45:08 pm »
I am in! Thanks for arranging this luncheon.

      Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

ombrerose4

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #3 on: January 29, 2010, 09:35:56 pm »
I am looking forward to seeing everyone again. Alan and I will definitely be there, and I will have my BAHA on so I will be able to enjoy it even more :)
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Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

nteeman

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #4 on: January 30, 2010, 11:06:38 am »
Me too!

Neal
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Diagnosed 12/16/2008
AN 2.4 X 2.0 X 1.6 CM
surgery performed on 1/27/2009 Mt. Sinai Hospital, NYC
Dr.Bederson & Dr. Smouha
9:30am thru 5:50pm
http://www.facebook.com/neal.teeman

JerseyGirl2

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #5 on: January 30, 2010, 11:36:50 am »
I've marked my calendar  -- thanks, Debbi and Wendy!

Catherine (JerseyGirl 2)
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Translab surgery and BAHA implant: House Ear Institute, Los Angeles, 1/2008
Drs. J. House, Schwartz, Wilkinson, and Stefan
BAHA Intenso, 6/2008
no facial, balance, or vision problems either before or after surgery ... just hearing loss
Monmouth County, NJ

Mickey

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #6 on: January 30, 2010, 11:59:02 am »
Looking fowards to our brunchen! Mickey
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ppearl214

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #7 on: January 30, 2010, 05:18:41 pm »
On my dad's bday! UGH!

Will want the updates on this.. and Debbi, have a fantastic time! Hugglez to that spouse of your's as well..... and well done in putting this together! You'll catch up to the "Apple Dumplin' Gang" brunch in no time! ;)

Have fun all!
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

leapyrtwins

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #8 on: January 30, 2010, 06:11:19 pm »
Don't forget to take lots of pictures for those of us who can't attend.

We'll be there in spirit!

Have a great time,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

jtd71465

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #9 on: January 31, 2010, 07:27:23 pm »
I'm in, but is Willie in for staying at the bar after brunch is over?


Joe-

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Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos

jerseyboy

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #10 on: February 02, 2010, 08:30:03 am »
Debbie,
I'll be in Thailand visiting my daughter who's living there.  Sorry I'll miss this, and look forward to catching up next time.
Jeff
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Watch and wait since May 2009.

another NY postie

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #11 on: February 02, 2010, 02:40:30 pm »
As of right now the date looks good so count me in!
Cheryl
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5 mm lateral IAC (impacted?) diagnosed 6-09-09
middle fosa 9/23 HEI - Brackmann/Schwartz
all tumor gone, facial perfect, no ringing
SSD on right side - Rockin' and Rollin'

jtd71465

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #12 on: February 06, 2010, 12:25:52 pm »
After two trips outside to shovel snow...May can't get here soon enough for me!!!
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Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos

Kaybo

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #13 on: February 06, 2010, 10:03:31 pm »
Joe~
Stay at the bar with Willie and you won't care about the snow!!  ;)

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

G_Man

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #14 on: February 07, 2010, 11:02:59 pm »
Debbi
I'm a recently diagnosed watch + wait patient.  I'd like to come and meet others with acoustic neuromas.  I'll be there.
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Diag: 08/11/2009 Left side
AN: 0.6cm.  65% Hearing loss, tinnitus, fullness, minor motion issues.
hearing loss over 25+ years.  MRI in 2000 showed nothing.
Optical Atrophy from infantcy
Watch and Wait.
As of 2017 I am on a 2 year MRI frequency.
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