Tumor growing on the hearing nerve

[james e]

Will there be a test tomorrow?

[leapyrtwins]

Will there be a test tomorrow?

Well, I certainly think there should be.  And Steve should knit the winner one of his famous hats!   

Jan

[Jenn15b]

Jenn -

I don't want this to sound harsh, but there are worse things in life than being SSD.

Many of our fellow Forumites have adapted to being SSD and don't use any kind of "assistance"; others (me included) have a BAHA implant; still others have a TransEar.

Jan

Sorry Jan, just checking the thread now.  I didn't intend for the statement about SSD to sound like it was something awful and unadaptable.  HEI just stated that since it was growing on the hearing nerve SSD was almost a guarantee.  Since mine was small, I was hoping that it was caught early enough to salvage it.  I was not trying to sound insensitive at all.


Thank you all for the input, I go see the specialist on Wednesday,maybe I can get him to draw us a picture or something...I respond better visually.

[leapyrtwins]

Sorry Jan, just checking the thread now.  I didn't intend for the statement about SSD to sound like it was something awful and unadaptable.  visually.

I didn't take your statement that way at all.  Just wanted to point out that there are options for SSD - and they are good options.

Jan

[AMD]

Years ago in nursing school we were given a way to remember the cranial nerves.     I can not think of what this is called as there is a name for this.     
  Think of "On Old Olympus Towering Top A Finn A German Viewed A Hop".             Think some surgeon also told us a "naughty" version but can't remember that one.                       Anyway is a help in remembering the nerves.
                                                       Cheryl R
                                                       

Hahaha.  Cheryl, I was taught both, and for some reason, the naughty one is the only one I can remember.....  PM me if you want a refresher

-Amy

[AMD]

Jenn -

my AN was on the 7th and 8th cranial nerves.

During my surgery the docs found it was wrapped around the hearing nerve, which is why I "lost" it and ended up SSD.

In order to remove the entire tumor, they had to sacrifice the hearing nerve.

Jan

Jenn, what Jan said above goes for my situation too 

[Tracy Lynn]

I don't know for certain, as I've not studied it, but I only know that mine is on the 8th, and that until this past week, I've never had a problem with my balance. (I'm just a natural klutz to be honest).

Mine was 100% that I was losing my hearing-based only.

[leapyrtwins]

Tracy Lynn  -

translab generally means that the patient automatically loses his/her hearing, so whether the AN is on the 8th cranial nerve or another cranial nerve is usually irrelevant when that surgical approach is used.

Because I had the retrosigmoid approach I had a chance of saving my hearing, but the fact that my tumor was wrapped around the 8th cranial nerve ended that chance.

Jan

[Tracy Lynn]

Jan,

I just meant that mine hasn't caused me many if any balance issues so far. I don't imagine they can tell me exactly what its wrapped around until they go in.

[leapyrtwins]

I don't imagine they can tell me exactly what its wrapped around until they go in.

This is true.  MRIs only show so much.